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The Howlin' Johnsonberries
May. 11, 2006 - I Did Not Sign Up For This

Watching my children out my kitchen window the other day something became clear to me. I did not sign up for this. I was, I thought, never meant to be the Mother of Special needs children. For so long I was the mom of just 2. Two incredibly bright, great children. Successful academically and now both grown and married. When Jim and I decided to adopt and let the numbers fall where they may I selfishly pictured a brood of mini Katie and Adams (my older 2).

 

I used to see women in the past, pushing a stroller with an oversized Dev. Delayed child in it, and was secretly glad I was not the mom. I just knew I could not handle it. When 1 cousin had an autistic child and another cousin had a child with a cleft lip and palate my heart went out to them both. Both boys have grown in to brilliant young men. As Jim and I walked the special needs mine field of Foster-Adopt I knew God had His hand on me. It seemed all my babies were healthy and normal. Despite their bio-moms copious drug and alcohol use they all seemed fine.

 

When Thomas was born with a cleft-palate I thought “Oh it’s not like he’s delayed, I can handle this.” Surgery at 10 mos corrected his palate, but did nothing to increase his very delayed gross motor skills. He did not walk until 2 and still at 4 stumbles as he tries to run. By the time Steven was 1 we began to notice odd and repetitive behaviors. He raged and rocked and threw tantrums that would peel the wall paper. It was also clear that my precious Molly with a servants heart would never work for NASA or likely even go to College. Susie is a passive aggressive wonder in and of herself. Josh is very much large and in charge. Jimmy, well we call him our Human-Poodle. Everything and every change makes him nervous. He cries at least 3 x’s a day. Over nothing or something so insignificant it seems like nothing. At 9 he is still afraid of the dark, will not go in to his room alone etc. Both boys have to hug and kiss me 2 x’s when I leave to run errands. Thomas now 4 is obviously Autistic and happily stims and stutters his way through the day. Steven is now officially FAE and DD. Baby Jake marinated in meth and had it blown in his face the 1st 4 mos of his life, now is alternately smiling and raging. His brother Aidan is so passive it’s unbelievable.

 

That view out the window was remarkable. I could simultaneously see their flaws and their beauty. Josh and Steven(normally mortal enemies) were helping Aidan jump on the trampoline. Molly was mothering Thomas and introducing him to his new sensory water table. Jimmy was sitting on the deck with a big dog laying across him and he was reading his Bible. Susie was in the play yard with Jake singing him songs and making him giggle. They fight, they squawl, they whine, they stim, one rocks and bangs his head on his pillow to go to sleep, another spins in circles when something new is introduced. One spreads shampoo all over the bathroom floor when life does not go her way. They are not fearful enough of strangers, they have sleeping and eating issues, they tattle like seasoned tabloid reporters and they make so much noise by 4 pm I have the Mother of all Headaches. God knew exactly what I needed and what I could handle.

 

My children keep me on my knees, focused on my Heavenly Father. They show me all those initials are just letters and that they are amazing, incredible individuals, fearfully and wonderfully made by God.

I am the mom of 8 children who are by the worlds standards flawed. In Gods eyes and mine they are beautiful and perfect and I am honored that God blessed me with such a family as this.

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Comments
May. 12, 2006 - What a beautiful post...
Posted by Anonymous
We are so lucky to have our children as simultaneously perfect and flawed as they and we are!! Thanks for sharing this.

Amy
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May. 12, 2006 - Untitled Comment
Posted by Leigh2
What a beautiful post! Yes, you are surely blessed. :o)
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May. 13, 2006 - Untitled Comment
Posted by Mommaofmany
I so enjoy reading your blog, and and glad to get to know you and your Lambies better. Isn't it funny how God often gives us exactly what we thought we didn't want!? I, too, have a DD daughter age 4, who took her first steps just two days before turning two. She has a twin brother who is not DD, but has kidney disease (nephrotic syndrome). Isn't God good, though, that we have them, not their birth moms! Can you imagine what our dearies would be suffering if not detained and adopted?!?!?! CPS has many problems, but sometimes, they detain the right kiddo's.

Tell me about your nutritional stance with autism. Do you see an improvement with whole foods?
Momma
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May. 13, 2006 - Untitled Comment
Posted by teena6
beautiful~ thanks for sharing. I LOVE it.

blessings,
Teena
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May. 14, 2006 - Untitled Comment
Posted by Quiver0f10
Thank you for the beautiful reminder that our children are indeed blessings from above. I hope you have a great Mother's Day!

Blessings,
Jean
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May. 14, 2006 - Happy Mother's Day
Posted by Janne
Hoping you had a very Blessed Mother's Day!
Thank you for the time you invest in your precious children. God Bless!
~ Janne
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May. 17, 2006 - Untitled Comment
Posted by 6blessings
thank you Connie. That was a beautiful reminder.
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May. 20, 2006 - Welcome to Holland
Posted by kidsus8
by Emily Perl Kingsley © 1987 All rights reserved. (used with written permission)

Emily is a writer for Sesame Street and has an adult son with Downs Syndrome. This story tells you what it is like to raise a child with disabilities. I think it is a great explanation! This is what Emily writes...

"I am often asked to describe the experience of raising a child with a disability - to try and help people who have not shared that unique experience to understand it, to imagine how it might feel. It's like this...

When you are going to have a baby it's like planning a fabulous trip to Italy. You buy a bunch of guidebooks and make your wonderful plans. The Coliseum, Michelangelo's David, the gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go.

Several hours later, the plane lands and the stewardess comes in and says, "Welcome to Holland!" "Holland?" you say, "What do you mean Holland? I signed up for Italy! I'm supposed to be in Italy! All of my life I've dreamed of going to Italy!" But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guidebooks and you must learn a whole new language and you will meet a whole new group of people you would have never met. It's just a different place. It's slower-paced than Italy, less flasy than Italy, but after you've been there for awhile and you catch your breath, you look around and you begin to notice that Holland has windmills, Holland has tulips, Holland even has Rembrants.

But everyone you know is busy coming and going from Italy and they're all bragging about what a wonderful time they had there and for the rest of your life you will say, "Yes, that's where I was supposed to go...that's what I had planned." The pain of that will never, ever, ever go away because the lost of a dream is a very significant loss. But if you spend the rest of your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, lovely things about Holland."

Blessings,
Andrea
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May. 26, 2006 - Untitled Comment
Posted by Abiga51
Thank you and very well said. blessings.
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May. 27, 2006 - Beautiful
Posted by 5ChatterBugs
That is an amazing post. I really enjoyed reading it and learing a bit about you and your family. I will add you (if you don't mind) to my friends list so I may check back regularly and read your wonderful posts.
Thank you for sharing

~Dawn~
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May. 28, 2006 - This is the first time I have visited your blog.
Posted by Anonymous
I am the mother of a sibling group of 5 (through foster/adopt) + 1 bio. When I was making the decision to adopt I was worried about one of the children especially because she was dd, mild cerebral palsy and thought to be retarded. I went back and forth with God over this and then decided to be obedient to His call. Now 3 years later she is the easiest of the bunch and so sweet, my joy. Throughout this journey I have found out so much about my children, some things so sad I doubted if God picked the right mama for these children and some so precious that I felt so overwhelmingly blessed. Your post sounded similiar to me looking out my window and it really touched me. I will continue to read your blog. Thanks...Carrie
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Jun. 13, 2006 - Hi Connie. :-)
Posted by Anonymous
This is from LisaNC...I really enjoyed your last 2 posts. BUT......the one about the pride made me laugh. How can I feel bad for your day when I'm chuckling? ;-)....that's what my sister does....she has 3 kids (expecting #4) and as long as I can remember when she's lamenting something she's so funny about it (like her 4 yo having speech difficulties) she makes me laugh....and I shouldn't be...Ah,well...enjoy your day with all your sweeties. :-)
Warmly, Lisa NC (who is posting anonymously because she does not have a homeschoolblogger aco****).
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Jun. 18, 2006 - I have tears
Posted by QFmamato4
I have tears in my eyes, I could have writtent hat post. God sent me my stepson who is autistic, very mild though and Cerebral palsy, again very mild. Then God gave me my precious son who couldnt hear for the 1 year in his life and still does have hearing problems wich also causes his speech delay. Praise God for them al day and everyday.
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Jun. 20, 2006 - <i>Untitled Comment</i>
Posted by
Thank you for your article. It gave me the much needed push to start our homestudy for adoption. Ralph and I have wanted this for some time. We too are somewhat scared that we too would become one of those other moms...but after reading of your experience..I realized ...I am one of those mothers/ always have been one of those mothers/ always dreamed of being one of those mothers/ and really cant wait to be...yes ...to be one of those mothers.
A little complicated as I have 8 already of my own...smile!
Thanks

Edited by momto8 on Jun. 20, 2006 at 8:57 PM
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Jun. 21, 2006 - Just dropping by...
Posted by mamatc
...to say HI! I was hoping you would have a new post. I do enjoy them. Well, I'll just have to check back again later...not like you'd be busy or anything with 10 kids and all!

Blessings,
Traci :)

P.S.I'm praying for your family!
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Jul. 3, 2006 - Hello!
Posted by mamatc
Hope you're having a great summer! Happy Independence Day!

Blessings,
Traci :)
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Jul. 26, 2006 - Thank you for this.
Posted by CMMyers
I have two young children - a boy and a girl, 4 and 6. We cannot physically have more, but we are thinking about adopting. I hope and pray that I am blessed with wonderful adopted children such as those you have been blessed with. Thanks for modeling an attitude that trusts God's plan is the best even if it doesn't seem to fit our own view of best.
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Aug. 4, 2006 - Untitled Comment
Posted by stillgrowing
Your post made me cry!!! I am new to this blogging thing.......just trying to take it all in. Thanks for letting God bring those kids into your life. Your thoughts are sweetly profound and echo a truly grateful heart.....thank you so much for your transparency!

i'm a mom of 6 here on earth and one in heaven.....

every day is a Gift from God!

Leanne
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Aug. 6, 2006 - Untitled Comment
Posted by praiseherinthegates
I am the mom to 7 under 8! I could relate, and mine don't have the letters. 'Hope you can find the time to keep posting... Some of us are just starved for someone like us to cry and laugh with!

Love your sister in Christ Jesus,
Rebecca
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Jan. 18, 2009 - Thank you
Posted by Anonymous
I just found your blog today and only have time to read this post and the one before it but they have been a blessing to me. As the mom of five, soon to be seven, three adopted through the foster-to-adopt program, one FASD and multiple other disgnosises and one Asperger's on the severest end of the specturm, most think we are crazy to be adopting again and I just feel unbelievably blessed and feel as though most of what I have learned has been thanks to my "special needs" children. When we first applied, we said "anything but FASD" and now we have one that has the disgnosis and one that probably will have and I am so glad that God knew better than I did! Thank you for sharing your experience and for your willingness to open your home and heart.

Sharla

http://www.theblessing.ca
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Musings of a Unschooling Mom to 10. Just the random thoughts that escape my menopausal, middle aged brain. I suffer from hormonal overload (or is it deprivation) and I enjoy my own private summers! I am who they were speaking of when they said God uses the foolish (me) to confound the wise.

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• Christmas Letter 2006
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• Pride Comes Before the Fall
• Getting A Clue!
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