When I stop and think, this is the most bizzar situation that anyone can be put in. I am having to spend hours each day to keep a baby that is fighting for her life alive.
Isn't that the hospitals job?
We need media exposure at this point!
Our legal team has contacted the hospital and its been cleared to talk with the media.
What is happening is that every hospital that we are contacting is being scared off because of the Pediatric Ethics Committee meeting finding:
ETHICS COMMITTEE RECOMMENDATION
Since physicians have determined that the patients condition is terminal and incurable, further medical interventions other than comfort measures are futile and transfer to another facility does not serve the best interest of this child. Furthermore, since continued medical interventions offer no reasonable medical benefit to the patient and such interventions serve only to postpone the moment of death, the treatment team is under no moral obligation to continue life-sustaining treatment. The parent's right to seek a second opinion has been met. Since it has been determined that no additional interventions can be offered to this child, there is no benefit in transferring her to another facility.
No it has not been met! We can't get an unbiased assessment of our child because of the committee meeting!
When she had her surgery on 9/3/06 the doctors said she would be with the lord in two days. We accepted that.
She is still here! She is still hanging on for her life.
I cannot accept the fact the hospital can not open their eyes and help a child that is still alive and fighting every da










































Sep. 18, 2006 - Thank you