Charity continues to do well and all of the family is learning all about the G-Tube and how to feed her, give her medicine, clean it, remove /replace it if needed. The nurses and doctors have been so patient with us as we learn more each day!

Charity did take take a test yesterday called a VCUG (voiding cystourethrogram) which is where a contrast dye is instilled into the bladder through a catheter and a series of x-rays are taken. This helps determine if she has bladder reflux which would have caused the UTIs, which started us all on this journey several months ago. We found out this morning that she has between grade 4 and grade 5 reflux, grade 5 being the worst. We are waiting to hear from doctors on what this means, but what little research we have sone so far would require another surgery, but we do know now what was the root cause of the UTI. Regarding next steps we are not sure yet, but we are enjoing the day with our girl, She had a wagon ride to the preschool with 2 of her siblings to play with some friends, than her two siblings were going to learn more about the G-tube and do some additional tests on her :), next was a visit from the pain management team to talk about the process of weaning off the drugs - this includes a visit from Carlye the hospital dog and finally in the afternoon Charity will get to go in a wagon ride with her family on the roof top - which will be the first time outside in 10 weeks - yea. The evening time she will get to spend with Grandma and Grandpa tonight before going to sleep.

As always thanks for all your prayers, loving words and advice.

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Posted by Cousin Caiti

I love how much we feel "in-touch" with what is up with you guys.. all because of a computer program! It's great! Just know that we love you all and are still praying..... a Hi and a hug from all the Burkes!

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Posted by Anonymous

Blessed!!! Well please call us when you return home and have any questions with the G-tube would be happy to help in any way!!!!
Thessalonians 5:16-18
"Be joyful always; pray continually; give thanks in all circumstances."
God, help us always to remember to be joyful, to pray , and to be thankful so that we encourage others. Amen
So Glad for the testament of Faith you are to everyone that is around you!
xoxoxoxoxoxoxoxoxoxoxo

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Posted by Anonymous

Blessed!!! Well please call us when you return home and have any questions with the G-tube would be happy to help in any way!!!!
Thessalonians 5:16-18
"Be joyful always; pray continually; give thanks in all circumstances."
God, help us always to remember to be joyful, to pray , and to be thankful so that we encourage others. Amen
So Glad for the testament of Faith you are to everyone that is around you!
xoxoxoxoxoxoxoxoxoxoxo

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Posted by Stephanie Skelly

So great that the other children are learning to help with Charity! When James got his g-tube, our then-pediatrician said, "Don't do it all yourself!" So all the children learned to work his g-tube. Since then, James has had an ileostomy (which should be reversible, Lord willing) and the children help with that too. We have some budding medical folks, like you do, and I think the Lord is using all our experiences to give our children compassion... certainly none are squeamish anymore :*)..

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Posted by Anonymous

What a busy day it sounds like! Glad she is doing well. Thoughts and prayers for her continued recover.

Beth
beth.parmer@gmail.com

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Posted by callmekate

What a busy day! I hope it was a lovely day outside, just for Charity to enjoy. It's a good idea for the kids to learn how to care for Charity. So glad to hear she is continuing to do well. Will continue my prayers and add to them the test results of today. God bless!

- Kate

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Posted by Sara

Praying Charity gets to come home, soon. Glad to hear you are getting closer to finding the source of the problem, Lord willing. The reflux is something I've been reading about as we may have to contend with that with Melody. Please learn all you can so you can share. :) Oh, the things we're learning! Love you, Sara

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