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Other than the fact that Charity wasn't fond of the tests themselves, she made it through like a little champ. The testing took about one and a half hours and was a bit exhausting for Tucker (who came with us), and myself as we made every effort to sing and dance, blow bubbles, and clap like crazy trying to make her happy and relaxed so that the machines could examine her bladder.
It became evident very quickly that she still has severe reflux. Almost immediately after beginning to put the radioactive liquid into her bladder, the liquid began to reflux back up the ureter into her kidney. There was reflux taking place on both sides of the bladder, and rather than keeping a lot of the liquid in her bladder, she instead sends it back to the kidney. Her bladder should hold 150 ml, but instead holds about 25 ml or so. The rest shoots back out. The tests showed clearly that she was experiencing contractions in her bladder, showing that she was trying to urinate but was unable. This continues to cause her discomfort particularly at night.
The doctor feels that the best option would be to do a procedure to allow her to pee-pee through an incision into her bladder (can't remember what that is called) until it is determined whether she should have more major surgery to repair damage or at least fix the anatomy of her little bladder and ureters. Once again, we are met with a lot of information and several options to "choose" from. We are reluctant to undergo unnecessary procedures and want to limit Charity's operations and procedures, so we hope to understand a little better and make a decision on how to best proceed.
We are thankful that Charity is growing, and gaining strength each day, in spite of her bladder discomfort, she remains happy and a joy to be around!
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Comments
Jun. 26, 2009 - Untitled Comment
Posted by Anonymous
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Praying that the best and most effective treatment be chosen by your family for Charity's bladder issues! God bless!
-Narobi
in TX
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Jun. 27, 2009 - tests
Posted by Grandma Alice
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We are with you, dear family. We continue to pray that our great Father will show clearly what you should do for this precious little gal.
Call on us anytime!
Love, Mom
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Jun. 28, 2009 - Hello there!
Posted by Testimony
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I read this post. I hope that your daughter pulls through this well. I found your blog by accident, but maybe it wasn't! Maybe God wantedMe to know so that I can pray for her. My son has to go for tests too. He has growth issues. They want to test his growth.
Blessings,
Karen
www.homeschoolblogger.com/testimony
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Jun. 28, 2009 - Untitled Comment
Posted by callmekate
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I'm glad the testing is over (I just went through a bunch of medical testing and routine stuff - ugh!!) Gosh, I wish she didn't need any other procedures ... but, God still is in control and I will pray for the decisions that you need to make. I'm thankful she is getting stronger and otherwise doing well.
- Kate
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Jun. 29, 2009 - Untitled Comment
Posted by earlyriser430
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What a blessing to know what's going on with your sweet little girl. I will be praying for you and your husband as you lean on the Lord in making yet another decision. God is faithful to those who seek Him -- I am so humbled by your story, so honored to be able to see (read:) such an AMAZING testimony. Always in my heart, EMichelle
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Jun. 29, 2009 - Untitled Comment
Posted by ams
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I haven't checked in lately. I'll be praying for doctor's wisdom in this area.
<>< Antoinette
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Jun. 30, 2009 - The Kanehe Family
Posted by Anonymous
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So Glad the tests are over!!! Sounds like a suprapubic cath?
Psalm 103:1-4
Bless the LORD, O my soul; and all that is within me, bless his holy name.
Bless the LORD, O my soul, and forget not all his benefits:
Who forgives all of your iniquities; who heals all your diseases;
Who redeems your life from destruction; who crowns you with loving kindness and tender mercies.
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