It has been wonderful to be home for a week now.  Charity is healing nicely, though we don't want that hole to heal up too nicely and close itself up again!  She appears to be getting another yeast infection around her vesicostomy site, which is likely due to the antibiotics that she has been on for awhile.  Last time the infection spread and became quite uncomfortable, so hopefully we will catch it before it gets too itchy and sore. 

The weekend was fun, the boys went to a motorcycle extreme hillclimb event, see www.skipspromotions.com they enjoy the noise, and the bikes and the food and everything.  They come back sunburnt, exhausted and totally bonded!  Harrison is wishing he can join them, but he has to wait another year before he can do the all-day or overnight event.  It is a highlight each year, and because Charity was in the hospital in the Spring, they willingly skipped the event...however,  Tucker is now trying to figure out how he can earn enough money to buy a motorcycle in order to enter the amateur events next year.  Anybody need their lawn mowed, garden weeded, toilet cleaned...?

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Posted by Grandma Alice

And you will let him ride a motorcycle? He is only 12! I'm glad they enjoy this together... a good thing for them.
I'll pray for the yeast infection to clear quickly!
And I'll pray for you, Elizabeth, for a peaceful heart and joyous outlook to continue!
Love you, Mom

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Posted by Grandpa Henr

If Tucker can get to Woodland, I would be happy to pay him good wages to mow my yard. However, I am not sure that what he would make would quite off set the cost of gas to get there.

Love,
Dad

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Posted by Cathy (Annabel's mom)

Someone gave me your link to read. I have a blog annabelgrace.blogspot.com I placed a comment if anyone had any experience with a vesicostomy or knew anything and someone sent me your link. I am grateful. You have a beautiful family. I have only read your recent post tonight but will read more tomorrow. My daughter has full Trisomy 18 and is now 4 1/2. It is also called Edwards Syndrome. Only 5% make it to a year so we are blessed beyond measure with the time He has given to us.
Annabel's had severe reflux since birth which began at a Grade 4 and progressed to Grade 5. WE had to beg doctors to do surgery but because of her diagnosis it was extremely hard to convince them. she had a surgery to reimplant her tube that travel from the kidney to the bladder. That stopped the reflux but then they diagnosed her with neurogenic bladder/bowel and very poor muscle tone. We have cathed her for a 1 1/2 yrs. In June they did a bowel resection with a dilation to help her unrinate. She is constantly infected from not being able to empty all the urine out of the bladder. Last week we were told she needed a vesicostomy. I have only read your blog and one other. It seems from what I have read that they stay fairly wet all the time. Is this your findings?? I know you are extremely busy but if you don't mind telling me your opinion when the site was working. Would you do it again knowing what you now know?? Thank you for your time. My email is suzyque92@hotmail.com Her blog is annabelgrace.blogspot.com

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