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Avonlea Academy
Mar. 6, 2008
Our First Broken Bone
Yep. Sarah broke her wrist last week. It was already a rough couple of days for her; she had allergy testing on Tuesday, which showed that she is highly allergic to dust mites and a little less allergic to cats, trees, grass, ragweed, fish, and shellfish. Then she broke out in fresh hives Wednesday morning (probably a combination of the previous day's allergy testing and getting into some dust mites that morning). Wednesday afternoon, she was in Mom's basement playing. Then there came that cry that all moms know--the one that you just know means it's serious.
She slipped on the floor and put her hand out to catch herself. She has a buckle fracture of her right radius. She got her cast on Monday; it is lime green!
The pain hasn't been too bad, so I'm very glad for that.
Anyway, here is where dyslexia is an advantage--she is having to write with her left hand, and it's not all that different than her writing with her right hand (a little less nice but still quite readable). Most dyslexics are quite ambidextrous, and Sarah has proved that to be true in her case. Just a little silver lining!
 
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Nov. 23, 2007
Updates on Sarah and Dyslexia
Not to ignore Katie, you know, but I was rereading parts of my blog and thought an update of sorts might be helpful to someone out there dealing with dyslexia.
My emotions have settled down a bit. That's a good thing! And we're settling into the routine of tutoring every week. She works with my friend for an hour once a week (and usually gets to play with her daughter for a while as well, which is great), and then I work with her the rest of the week. The Wilson Language System is working fine, though I incorporate a lot of what Loa uses in my lessons with Sarah, and I've since adapted the overall format, too.
Sometimes there are tears when I say it's time for school or tutoring. I'm not sure that's anything out of the ordinary for any child; Katie often does the same thing. (Katie is a whole different subject, actually. I have become quite convinced that she has AD/HD. I have always suspected that, pretty much from birth. It was one of the reasons I chose to homeschool her, actually. It had been better for a while, though, but it is getting worse again. It's not so much the hyperactivity as it is the inattention and then the resultant emotional outbursts. Anyway, I don't think she's bad enough for meds or anything like that. I just want to research it a bit and find some parenting/coping techniques to help us both. She did even say to me the other day during history, "I don't know why it's so hard for me to concentrate. I'm trying to pay attention, but I just can't." So add that to my list of homeschooling/parenting challenges!!!)
Anyway, there has been a blossoming of sorts in Sarah. She is reading on her own a lot now; I see her trying to read everything she sees. She recently read through one of the mini-American Girl books! She put sticky note flags on words she didn't understand and asked me later.
She is also writing on her own! A lot! I get several poems a day usually. She writes music and songs. I'm just floored by this. Now, I love to write and was hoping that one of my kids would also love it. How ironic that it might be my daughter with dyslexia! 
She came up with an alternative way of writing music; realizing that reading music is also very difficult for people with dyslexia (basically the same thing as reading words), I wasn't sure what she would do with this. Well, she got out the lap harp, plunked out notes, and then wrote down on a separate sheet the note names. Above the note names, she wrote "L" or "H" to denote whether it was the low note or the high note. She also wrote in "R" for rests. And she wrote her own song!
So those things have encouraged me recently. I hope they might encourage anyone else out there with a child who is dyslexic. If you get the proper help and even learn the things you can do as a homeschooling mom (or dad), what a difference you can make in your child's life! |
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Aug. 28, 2007
Dyslexia Part II
This is what I wrote to some people recently. We met with Dr. Sullivan on Aug. 22nd.
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Today was our meeting with the Dr. Sullivan. He was very kind and encouraging. Sarah most definitely has dyslexia; the good news is that hers is pretty limited in its effects, meaning it's not a type of dyslexia that affects lots of different areas of her language skills and other areas. It's focused pretty much on her reading. The bad news is that it's, well, dyslexia, and that means she'll always struggle with her reading. Not that the future is bleak or anything; it's just what it is. She'll always have to cope with it. She can continue to improve, of course, and she already has. She'll be functional; she can go to college, get a job, function in society, etc. (especially with technological devices like voice recognition software). But she'll have to have special accommodations.
He was like, "Anything you need from me, letters or things like that, just email me and let me know."
He said that she is very smart. In fact, she did extremely well on several parts of the testing, including one test that she did better than 99% of other kids. So her memory is great, her vocabulary is great, her other language skills are good or very good; it's just when it comes to reading--wow. It's astounding. She scored in the 2-20% range for reading. I'll get the results when I get a copy of his full report.
He gave this analogy, which I thought was good. If you tell and show a paralyzed person how to kick a soccer ball 100 times and then go, "Okay, now you kick it!" well, of course, they can't because of a physiological problem. It's the same with a person with dyslexia. You can show them a word 100 times and they can still struggle with it. It's a physiological problem. (We talked about the amount of misinformation out there about dyslexia! We laughed.)
He was very supportive of homeschooling. He said that was the best thing for her, though he did think I should be able to get help from the school. He volunteered to go to bat for me, if needed, with our school district because he knows a lot of the people here. I told him that I seriously doubted they would be required to help us, but I may look into it just to be sure. (They wouldn't help us with speech therapy.)
I want to talk to a special ed teacher I know to ask her what they do for students identified as dyslexics in her school district because I honestly do not know what schools usually do. I've heard that it's not much, and Dr. Sullivan said it would certainly not be at the level I have been doing at home.
Dr. Sullivan was glad about me putting her on the waiting list for the Learning Center, and he was supportive of our decision to use my friend again as a tutor instead of Kumon. (He said, "Never contradict the mother!" when I told him that I didn't think Kumon would be a good fit for her.)
In fact, he said she has the double-deficit type of dyslexia, but the phonemic part of that was not really too bad. So he said the Orton-Gillingham work has been very good for her. She just needs to focus on learning more of the phonemes and phonics and her speed. Speed is the main thing.
The doctor said he had two major concerns: that I would get exhausted and that we would go broke.
He also said it's critical for Sarah to find something that she excels at--sports, music, art--something. I'm not sure what that is yet. We've been trying to find something like that for her. Maybe it's soccer (sports). She really enjoyed that.
Anyway, I'm still overwhelmed, but I'll get over it.
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Here's something I wrote a couple of nights later.
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A very odd thing just made me burst into tears. I am working through the course my friend took on dyslexia. I'm at the chapter about the brain, and here's the part about the angular gyrus. It's all very clinical you know. "The angular gyrus is at the juncture of the parietal, occipital, and temporal lobes and allows for integration between all three lobes. The angular gyrus makes it possible to associate the printed word (occipital lobe) with sensory experiences from the parietal lobe (how the word sounds, movement used to write the word, how the mouth moves to speak the word)." etc. It struck me. What a crappy thing to have not develop right in your brain! Here's this critical little area that allows three entire lobes to communicate with one another, and it gets messed up during fetal development.
Oh, I know it could be worse. That's not what this is about. I want to be sad for me, sad for Sarah, mad for both of us, and all of that without feeling guilty because "it could be worse" and "it'll turn out all right." I KNOW ALL OF THAT!!! (And I appreciate hearing it from people.) But it's still my baby whose brain didn't develop properly.
***************
I am doing better. Things were very overwhelming there for a while. I am in a much better place now emotionally and all of that. It just takes me a while to work through giant emotional things.
I've got a plan. We'll continue the O-G stuff. My friend is going to tutor her once a week. And I'll keep researching and all of that to find the best ways of working with her.
Something that has helped me is to realize that part of my sadness was a mourning over the fact that she won't enjoy reading like I do. But, here's the part that encouraged me, she can listen to any book she wants! Duh! So while she may not pick up a book to read it, she can certainly listen to it. She'll qualify for the Books for the Blind and Dyslexics. The library has tons of audiobooks, plus these cool things that are like mp3 players. Then there are all of these digital books we can download for free.
So I'm getting my thinking wrapped around this whole thing. |
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Jul. 24, 2007
Dyslexia
Well, today was the first part of Sarah's testing for dyslexia. She was nervous but relaxed after she got there and got a feel for how it was all going to go. Dr. Sullivan was great with her; they seemed to hit it off, but that doesn't surprise me. Sarah has a knack for charming people, and Dr. Sullivan said he likes Polly Pockets. So there you go--instant buddies.
Anyway, he called me into the office afterwards, which he doesn't normally do. I'm not supposed to get any results till the appointment we have scheduled at the end of August. But he decided to give me a heads up, I guess. (I was glad about that; I hate waiting!)
She does definitely have dyslexia. He said there's no doubt. He said that he thinks she has more of a defect in the angular gyrus connecting Wernicke's (sp?) area and Broca's area. IOW, she can understand the phonemes (for the most part), but she has trouble processing or outputing (sp?) them.
He's recommending a specific place for tutoring. I wonder if our insurance will pay for it or not.
Anyway, I'm fried. Craig gets to take her tomorrow for the second half of the testing.
I'm glad to have the diagnosis and glad that I have been on the right track, but I'm not glad, if you know what I mean. It's just a mixed kind of thing. Tonight, I'm mostly sad, but I'm sure I'll get over it soon enough. |
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Jan. 18, 2007
Overcoming Dyslexia
So I am reading this book now (among several others). The jury is still out, and I need to pursue more testing for Sarah, but, if I had to guess, I would say that she has a mild form of dyslexia. This is not an easy thing to say or to come to grips with. (Just ask anyone who was around me last Wednesday! )
On the other hand, I am a firm believer in the axiom "knowledge is power," so I view this as yet another step on the learning journey of "Sarah." No, I can't say for sure yet that she does have dyslexia. Maybe she does not. If she does, like I said, I do think it's a mild form because she is slowly catching on to things.
I have been using the Orton-Gillingham method to teach her reading. This has worked like nothing else I've tried! And this method was developed for children with dyslexia. I will begin using the Wilson Learning System soon, and I'm taking a seminar soon on Selmer Math. (I think that's the name anyway.) ETA: It's Shiller Math. 
As discouraging as this can be, I need to remember that the school would do nothing for her. She would get lost in the shuffle for sure. Centerville labels children with dyslexia as having a "specific learning issue." Then they shift them off to the side. So there would be no advantage to putting her in the school system. It'd only make things worse.
That is actually comforting in some ways, because it gives me the foundational reason I need to continue homeschooling her. She would not be better served in the public school. She is better served at home.
So there you go. That's the latest thing here. I will pursue more testing for her soon. Maybe I am wrong, but I haven't been so far about other educational issues related to her. |
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