Joyful Mother
of
Six Children


Nov. 25, 2008
Happy Birthday Rebecca!!!

Happy Birthday to my beautiful Rebecca! I can't believe that you are 13 years old already. That sounds so old in some ways - and yet you are still my little girl. What an amazing 13 years it has been to have you in our family!

I've been thanking God for you since the day I found out about you (on Christopher's 2nd birthday). I haven't stopped thanking Him either! What an incredible gift He has given us - and many others - in YOU! I wanted a daughter named Rebecca even before I was married. I'm so very thankful for you as you are more than I ever hoped for in a daughter.

There are so many things I could write about you - I'm not sure where to start. Perhaps with your precious heart. Your heart that reaches out to others - constantly. You are always wanting to help and often find ways to do things on your own. You began giving things to the homeless on the way to church. You started your own business making and selling bracelets to raise money for babies with heart problems (like your little sister). You are eager to participate in other projects like Samaritan's Purse and making things for the children in the local homeless shelter. Just recently, you decided that you wanted to have birthday gifts be a donation to Reece's Rainbow, an organization that helps with the adoption of children with Down syndrome from other countries. You are a beautiful example to me of a giving and selfless person.I love your creativity and eye for beautiful things. I enjoy seeing the things that you make – like the beautiful ornament last year for Christmas. I appreciate your attention to detail and desire to make things special – like at our recent Japanese meal. You went above and beyond anything I would have done by making placecards with Japanese characters, hanging lanterns and making the table beautiful.

 

I love your willingness to help others – starting at home. You do so much for all of us. I am thankful that you are willing to help your siblings in so many ways from fixing meals to helping with therapies and schooling. Our home runs so much smoother because you are always willing to jump in and help wherever you are needed.

I am thankful for your work ethic. You are a hard worker who will do things without waiting to be asked. You are diligent in doing your chores and ready to take on extra when asked or needed. You work hard and with a good attitude. Your example is a blessing.

I am thankful that you know Jesus as your Saviour. It’s so evident in your life – from the way you treat others to the way that you live day to day. I’m thankful for your desire to be more like Him and to reflect His love in your words and deeds. I thank God for you Rebecca and for the ways that you teach me more about Him.

There is so much more I can say about you sweet girl! Rebecca, you are beautiful through and through. You are a precious child of the King. I’m so very blessed to call you daughter and am so thankful for these years we’ve had. I’m looking forward to many more.

Happy Birthday precious Rebecca!

I love being your mom and I love you! 

Mommy

Nov. 23, 2008
NOV - Quick Catch-up on a variety of things

Well, now that November is almost over, I'm going to write about some of the things that have been going on around here. 

Football - Christopher's team played in the Championship game the first week-end in November.  He team was undefeated this year going into the game.  It was a beautiful day - and great game too if you were a Saints fan!  I loved watching them play and appreciated again the good sportsmanship that is stressed to these young men!  It was an excited season!

Praying for a player who is hurt while the game is stopped. 

Keepers of the Faith - For the month of November, we worked on the Pie Baking badge.  Yum!  I think this one is going to be enjoyed by the whole family.  The girls learned a variety of things about types of pies and types of crusts.  They also made a pie to take home.  If you want to read more, you can visit my KOF blog post here


Field Trip - We had planned to attend a field trip which was cancelled at the last minute.  Really last minute due to weather.  Since we were already on the road, we made a spontaneous trip to the Science museum.  First though, we made a short stop at Krispy Kreme for a yummy mid-morning snack.  We watched the doughnuts being made and enjoyed our treats.  I had a pumpkin one and it was so yummy.  Eliana tried a little of it - though not much.

Next to the Science Museum in Raleigh - a great place for a rainy day (plus it's free!).

This little girl loves to climb and found a little nook behind a display that was just the right size for her.  Speaking of size ...

I love photos from behind and this one I thought was really cute of little Eliana and her big friend Dillon.

We attended a program on animals while we were there.  The teacher allowed the children to touch some of the animals - a rabbit, snake and bird.  Eliana was thrilled with this!  Can you see the delight on her face?  The teacher was quite taken with Eliana.  I like it when other people enjoy my children.

We spent some time in a hands-on nature room.  There were discovery boxes, microscopes, dress-up, toys and more!  We enjoyed this spotaneous outing with our friends!

Visitors  - My Mom and Dad came to visit.  We always enjoy spending time with them.  Eliana really took a liking to my Dad and spent a lot of time playing with him.  I think he really liked that too!

Here are a few more things that I'll post about separately.

*Our FIAR homeschool group's Family Event - an amazing cooperative event!

*Eliana's dedication

*Awesome field trip

*An incredible ministry that our family is supporting

*Fashion event

We also have some fun upcoming things this week, including Rebecca's birthday in just a few more days!  It's hard to believe she is almost 13!  My baby is becoming a young woman right before my eyes.  She is such a delight to me!

More later - hopefully not too much later.  I'll end with a few fun pics of Eliana.  She is enjoying this twirly dress.  I love her facial expressions!

Blessings,

Leslie

 

 

Nov. 20, 2008
Last bit of October - a field trip to Jordan Dam on 10/30

Some of you may be shocked – but this is my last post for October – and I’ll be starting November ASAP. Yippee!!!  There are so many fun things I want to share. :-) It’s a good problem.   The not so good problem is our computer - it's very, very slow.  I keep thinking it's on it's last leg.  We'll see. 

This was another wonderful field trip.  We visited Jordan Dam.  We had beautiful weather which was so very nice! 

This is the dam.

This is the view looking in the opposite direction.  It's really lovely out there!

First, the rangers gave us a brief history of the dam to our group.  We were then split in half by age.  The younger children focused on learning a variety of things which would enable them to earn a Junior Ranger badge.  They learned about various animals that live in the area from snakes to foxes to squirrels and more. 

Then they went inside and listened to a story and made ranger hats to wear. 

At the same time, the older children were learning about water quality by playing a hands-on game called Macro-Invertebrate Mayhem.  It looked like a lot of fun.

We then gathered together again for a quiz.  Two groups (mixed ages) played against each other to see how much they knew and had learned. 

We then walked to the dam for a special presentation.

The younger children were presented their Junior Ranger badges.  It was a neat ceremony.

We then went to a lovely park, with lots of green space, at the bottom of the dam.  This was a great place for a picnic and to play.  It was a lovely day! 

Just had to include one of my littlest cutie pie.  Doesn't she look like a big girl?!

I'm so thankful for the opportunity to learn in this manner with my children.  It's really a lot of fun!

Blessings,

Leslie

Nov. 19, 2008
State Fair - Oct Retropost

Yes, I'm getting close to winding up Oct - and have much to share already about November!  I'm trying to catch up but our computer is very, very slow these days and it makes it hard to upload photos sometimes.   

 We went to the State Fair this year.  It's something we enjoy doing every year.  We had the pleasure of going with dear friends.  The food, the crafts, the rides, the animals - so much to enjoy and there is something for everyone! 

Just liked this photo of Joshua and Isaiah. 

Rebecca entered several items in the fair and won ribbons!  She entered a mobil.  She made paper stars and won a 3rd place ribbon. 

She also entered a Christmas ornament.  She made this as a gift for me last year and it is so beautiful - and fragile.  She won a 4th place ribbon for this.  There was a note on it that the judges thought this was beautiful and it would have won money had it not been so fragile.  This was meant to encourage Rebecca - and hopefully one day it will - though I think it made her a little sad.  It's a good lesson though on details and finishing things well. 

We enjoyed seeing some of the prize winning vegetables and animals. 

Daddy and his little girl! 

I should have gotten a photo of Christopher with food - he loves the variety and takes advantage of it too! 

This was in front of a really fun exhibit on foods in  North Carolina. 

Each of the children received a basket and then collected various foods through out the exhibit.  Even Eliana was given a basket. 

It was too big to carry for long - but it was still fun.  When the children finished collecting food, they were given money in exchange for the food.  They could use this to buy a bag that included an apple, peanuts and a pencil.  A good trade.

We enjoyed the rides - the bumper cars were a hands-down favorite for my family.  They did this one several times and I saw lots of smiles.  There is more - and more photos too - but in the interest of catching up, I'm going to stop here.  Here is one last photo of my little sweetie and I.

  Blessings,

Leslie

Nov. 17, 2008
Field Trip - Oct 16 to Duke Homestead - Retropost (again!)

We continue to enjoy wonderful field trips with our Five in a Row homeschool group.  I'm thankful to be a part of the wonderful group of families.  We go on field trips every other month and I enjoy these so much.  One of our trips this month was to Duke Homestead which is one of our State Historic Sites.  (Click on the name if you'd like to visit the website.) 

Because we had a large group, we were split in half to participate in the planned activities.  We started with a film in which we learned what life was like on a farm in the early 1900s.  Next, the children learned how to play townball.  It is similar to baseball in some ways, though different enough that the younger children were not at a disadvantage in playing.  It was a lot of fun!

Listening to instructions.

My biggest and smallest boys.

It is hard to tell, but the bat is longer than a typical bat and flat.

The children ran clockwise around 4 bases (not including "home").  The tall sticks in the ground are bases.

Next, we did an archeology project.  The children worked in groups to discover things hidden in a box of sand.  They learned about measuring and recording data.  They then discussed what they might learn from the things that they found.  My younger boys loved doing this!

Lastly, we learned about food preservation.  They talked about types of foods eaten and how to save or preserve them.  They helped to churn butter and then ate some buttered bread.

When we finished, we had a picnic lunch at the site.  It was a beautiful fall day and it was a great time to relax, play and spend time with friends. 

Blessings, 

Leslie

Nov. 13, 2008
Catch-up post for Oct

SPORTS

We spent a lot of the month involved in sports - soccer for Rebecca (practice once per week and games once per week) and football  for Christopher (practice twice per week and games once per week). 

Soccer is a sport we've been involved in for the last 12 years.  I just counted, has it really been that long?  Christopher started playing the year he was 4.  One year we had 3 children playing - and Roger was the coach for 2 of the teams.  That was a nutty year!  This year, Rebecca is the only soccer player.  She enjoys the sport and is a good player.  I enjoy watching her run, pass, score - and just have fun!

Football is a new sport of us.  Christopher is playing in the homeschool football league.  There isn't a team in Durham, so he joined the Raleigh team that he played flag football with in the spring.  Unfortunately, the practices ended up being moved about 30 min away in a new location - which was about an hour away for us!  It was worth the drive though.  The focus on learning the sport, while also learning the importance of your relationship with God was wonderful.  They stressed being good team players, respect for others and basics of the game.  The spent time in devotions and prayers at every practice and game. 

Christopher plays defensive end.  He enjoys defense.  His team is strong - they were undefeated this year.  In some of the games, when they got off to a strong and early lead, the coaches would scramble their positions to try to balance things between the teams.  This helped to balance things out a little bit.

At one of the games, Christopher's team was off to a very strong, early lead and the positions were again scrambled.  Only this team the offensive players were on defense and vice versa!  It was fun watching Christopher play a different position - and really exciting when he caught a pass for a touchdown!!!  We were sitting at the end of the field and had a great position to view it all.  There was lots of cheering going on!  Eliana has even learned to sign "touchdown" which is really cute.

FRIENDS & FAMILY VISITING

We loved having our friends from VA come down to visit.  We enjoyed lots of activities from watching football and soccer, making cards with our Keepers group and just hanging out having fun.

For those who are curious, we are eating paella and tapas to go with one of our FIAR book titles - The Story of Ferdinand.  It was a yummy meal!

We also enjoyed having my sister and niece visit us while Daniel was having his MRI.

Keepers of the Faith

We met in October to learn about card making.  This was my class to teach and it was a lot of fun!  We learned to work with different tools and do different techniques.  I had planned for each girl to make 4 cards.  It was fun to see how they did things their own way to add in their creative style.  Here's a picture of the girls with their cards.

If you want more details on this class, you can visit my KOF blog HERE.

I just thought this was a fun picture of Joshua and Isaiah being "spies" with the new spy kit they received for their birthday. 

Just a fun couple of pictures of Eliana.

 I love this cute little outfit on her. 

When we ask Eliana a question now, she will often do this.  LOL  It doesn't really help answer the question, but it does give us one more thing to chuckle about.

I still want to add in another field trip and some pics of our time at the State Fair - then I'll be caught up with Oct - and on to Nov.  ;-)

Blessings to you and yours!

Leslie

 

Nov. 10, 2008
Therapy Updates

I thought I'd share a little bit of what we've been up to here.  Therapy takes up a lot of time in our week - with 2 children in several therapies.  I'm thankful for the progress I'm seeing and thankful the the things I'm able to learn from these therapists.

Speech

Both Daniel and Eliana are seeing the same therapist in our home.  (I love that we are able to be home for this!)  Daniel will be doing speech therapy for a short amount of time.  He loves it as it is mainly like focused time to play.  Our therapist does a great job making things fun and really working with the child's interests.

Some of the things we are working on with Daniel are his vocal qualtiy (he sounds high pitched and a little nasal at times) and breathing quality (able to sustain long breaths).  Some of the things we've done include blowing on whistles and practicing using a deep voice. 

Eliana is still working on communicating.  She has a few words - bye, gentle, hi - sometimes mama.  She has many, many more signs!  We have all been learning signs - thank you Signing Time  ! We practice these with her often.  I will frequently ask her to repeat several words in a string - for example, milk please mommy.  She is very good at repeating things she hears.  She does sometimes initiate them on her own.  The most used sign - PLEASE.  It's a nice one. 

This week she has started combining a sign with a word!!!  Big grin here.  She loves Baby Signing Time and sometimes will walk up to the tv and sign "baby" (which is what we call the DVDs) and say "ba-ba".  Of course she is rewarded with the movie. 

One of the things that I need to do more of is working on her oral motor skills.  This falls into speech and also OT.  It seems that there is a lot of overlap between the therapists which is also nice.  Eliana really dislikes any types of exercises involving her mouth which makes it hard to do things.  I need to do a better and more consistant job at working at it anyway!

PHYSICAL

This is just for Eliana.  She is doing well.  She has reached a lot of the milestones and is fun to watch.  The main thing we are working on now is trying to strengthen some of her inner thigh and core muscles.  She walks with her feet spread too wide.  She needs to learn to bring them in more and have a smaller base.  This will help her as she grows older and may want to do sports and games. 

We've tried several things thus far including the following:

*Theratogs - a velcro contraption that seems neat, but is very difficult to put on a wiggly baby.  Not sure why we didn't try this longer.

*Tape - A specialized tape across her stomach muscles and her inner thighs to her knees.  We tried this brielly.  She didn't seem to really mind the tape, but it really irritated her skin!  Reminded me of the days of much tape and feeding tubes.  (I'm so glad we aren't dealing with that now!)

(If someone is curious about this and wants to see a picture, please email me.)

*Lycra skirt thing that I made which goes from her chest to mid-calf.  It's to try to force her to keep her legs together.  She doesn't mind at all and it does seem to help.

(Same thing with a pic here.  I don't have a good one or I would post it.)

*Exercises - This involves me holding her, usually in my lap, and keeping her legs and feet together.  It helps if I can get her to move and exercise her core muscles.  It's a challenge to do for long.  If I can keep her entertained, she does much better with it.

OCCUPATIONAL/FEEDING

This is another dual therapy appointment - though this one is outside the home.  We start out in a really fun room with balls, foam mats, swings, and much more.  The therapist works mainly with  Daniel in here to help him experience new things.  As a sensory avoider, there were many things that he would not even try.  He is definitely improving in this area and seems to have fun here too.

Afterwards we move to another room for feeding.  Daniel is being exposed to new foods.  It is a slow and sometimes tedious process.  We look at food, talk about it, describe and touch it.  It's an improvement just to have new foods on his plate!  The next step is smelling or licking it.  Obviously the goal is to try to eat it. 

While this is slow, we are seeing improvment.  Just recently he has eaten some peanut butter and jelly (though not together yet).  Some days are hard and frustrating for him, but he is trying.

Eliana is learning some self-feeding.  One of the techniques we use with her is "hand over hand" where you just place your hand on hers to help guide her in doing whatever it is you want her to learn. 

Though messy, she is doing a good job.  We are still working on drinking from a cup.  In terms of food, she still likes things pretty mashed and will gag or spit out food that has too much texture or is too big of a chunk.  (Not my favorite meal activity - the spitting.)  In terms of variety she does pretty well.  One of her favorites is spaghetti.  She actually does well with a variety of pasta as long as there is some sauce (I often used pureed veggies) with it.

Daniel is also doing some listening therapy.  We do this 5 days per week.  He listens to specialized tape and does fine motor activities while listening.  He doesn't seem to mind this at all.  One of the improvements we've seen in this area is his tolerance of noise.  When we first started with therapy he had a very difficult time if other people were in the same room with us (hard in a large therapy room).  He was very bothered by any noises they made.  Now, he is better able to handle these noises and people    and just tune it out or ignore it. 

PIC

Well, this has gotten long - and may not be all that interesting.  Maybe though it's helpful to someone.  I thought I'd share an article on milestones for children with Down syndrome.  It was written by a local therapist that has a great reputation in our community.  He did a free evaluation of Eliana and I was impressed with his knowledge and skills.

 Developmental Chart

 This chart might be helpful for others working with a child with Down syndrome - or perhaps someone just wanting to understand more.

I'm grateful for all that these sweet children are learning and thankful for the assistance I'm receiving!  I was planning to add more pics - but in the interest of getting this posted, I'm going to go as is.  :-) 

Blessings,

Leslie

Nov. 8, 2008
Buddy Walk - Retropost - Oct 12

 Well, I’m behind – and going to try again to catch up. So, you’ll probably be seeing a few "retroposts" from me for the month of October. I really want to catch up so we can share what we did TODAY! We were part of an awesome event with our homeschool group and I can’t wait to share pictures! More later.

On Oct 12, we attended our local Buddy Walk. We went to our first one last year. I remember not knowing what it would be like and not really knowing many people. We went anyway and I am so glad that we did. This year, we were all very excited to go. Our local group does an awesome job in putting on the event! So many things going on and not nearly enough time to do it all!

We arrived and checked in – receiving a goody bag and t-shirt to wear. I was amazed by the size of the event. There was a very large tent with tables for eating lunch. There were games and rides for the children, clowns, face painting, booths with information and goodies and more!

There was various entertainment – including a drum group with one member being a young man with Down syndrome. The highlight of the day was Rachel from Signing Time! She was there with Alex and Leah to perform a variety of songs. We had front row seats and loved the entire show!

If you aren’t familiar with these DVDs, please check them out here. The company was started by a mom (Rachel) to help teach others signs. She was motivated to help her daughter was was born deaf. She in turn is helping many other families to be able to better communicate! While Eliana does have a couple of words, she has many, many more signs! This is a fabulous way for all of us to learn to communicate with her. As a family – we are sold!!!

After the show was the walk. It was a short walk around the grounds on a paved path. Last year Eliana was in a stroller. This year, I carried her and then decided she could probably do part of the walk herself.

My favorite part of the walk is the signs. There are signs all along the walk with pictures of children with Down syndrome. We bought one for Eliana this year which she found interesting.

This is the picture that we used for her sign.

 We were thrilled to be joined by some dear friends at this year’s walk. We’d love to have more of you join us next year. It really is a neat time of celebrating a special group of people. Last year, I remember just crying at seeing all of the beautiful faces of other children with Down syndrome. Having spent much of the first 10 months of Eliana’s life at home, we hadn’t gotten out much. I am thankful for the support we have here locally – and the support we have personally.

And while I wasn’t sure I’d ever say this soon after Eliana was born – I can say it completely now. I’m so glad to have a precious little girl with Down syndrome in my family. She is a delight!!! I’m thankful for the amazing gift of children – all of them!

Blessings,

Leslie

Oct. 31, 2008
Results are IN!!!

Normal!  Normal.  Normal.

What sweet words which caused instant tears of gratitude.  Thank you God!  Thank you!

Waiting has been hard.  One more opportunity to trust in God.  I am thankful for the peace He gives even when the unknown can be frightening.  God is good.

We will get the full results and reports some time next week.  Sorry this is brief, but I wanted to post for those who are waiting to hear. 

In His Love,

Leslie

Oct. 29, 2008
No News Yet

Still waiting.  I called our eye doctor yesterday.  Since she is the dr who asked for the MRI, the information will be sent back to her.  She was out of the office yesterday at a meeting.  I was told she would need to complete some paperwork today to send to Duke requesting the results.  She will hopefully receive them back today - maybe tomorrow.  I'm hoping we will hear something today, though it may be tomorrow.

All this to say, we don't know any more and are just waiting.  Thank you for your prayers.

Love,

Leslie

Oct. 27, 2008
MRI Update

Hi Friends,

Thank you for praying.  We had a good day - a really good day.  I'm going to write a lot of the details, just to share our day.

We started the day early (for us).  We had to make sure Daniel had eaten before 8am - and nothing afterwards.  I thought it might help to have some distractions, so we drove to the State Fair to pick up Rebecca's entries.  It was crowded and hectic, but we found all of her things.  Thankfully we were able to sign for the items for which we had lost the tags.  She found a note on one of her items - the Christmas ornament.  The note told her that the ornament was beautiful!  It also said she would have won money if it had not been so fragile.  (I'm glad she was told that as it is an encouragment for her.)  She did win 4th place.  (More pics of her entries when I get to our State Fair post.)

On our way out, Laura (my sister)'s driving skills were tested as trucks, trailers, etc. were trying to dodge in and out and around everything.  I'm surprised one didn't run into us!  (One almost did.)

When we arrived home it was time for therapy.  Daniel usually goes first, but since he had some time left to drink clear liquids, I thought maybe he could watch a movie and drink some sprite which he opted to do.  He watched a new movie that Christopher purchased for him.  Christopher thought it might be hard for him to have so much time when he couldn't eat and that this would be a good distraction.  Wasn't that sweet?!

Daniel took the whole eating/drinking limitations very well.  He even explained to his therapist what he was doing and why he couldn't have more to eat/drink.  He did a great job.  We left for the hospital shortly after therapy concluded. 

Roger and I drove with Daniel over to Duke.  Our appt was at 2.  We waited for a short time in the waiting room, filling out forms and playing with the toys there.  More questions when we were taken back into one of the cubbies.  Our nurse, Christy, was fabulous!  I was excited to meet her as a friend had told me she was great.  I was glad to see her stay even through the shift change at 3 - our blessing!

The dr came in to explain sedation - the types and the benefits and risks of each.  After discussing it, we then have to sign a release.  Roger did this.  A list of all the things that could go wrong - and thankfully don't usually happen. 

Next we exchanged his shirt for a hospital gown.  (He was not thrilled with this, but didn't put up a fuss.)  The sedation was done with an IV.  In order to make it easier for Daniel, they put a numbing cream (emla) on 2 places - his right hand and left elbow (to give them options).  They let this sit for about 30 minutes to take effect.  While this was going on, they let him pick out a movie to watch while we continued to discuss what would be happening.

When it came time for the IV, 3 nurses came into the room.  I was really concerned about this part.  Daniel watched them preparing his hand and then I distracted him while they inserted the needle.  He didn't move at all!  He was just perfect!  What a sweet answer to prayer.  After getting it taped to his hand, they used this to administer his meds.  He was given 2 different meds and the first went in easily, the second one burned.  I saw tears well up in his eyes as he looked up at the nurse.  She was very comforting to him and thankfully it soon passed.  He was such a trooper!

The drugs began to take effect very quickly.  Roger lifted Daniel and carried him to the MRI room after we had removed all the metal we could from our bodies.  Shortly after he was layed on the table, he began to move and even tried to get up.  They tried to settle him, gave him more meds to sedate and let me talk to him.  He settled quickly and was great for the remainder of the test.  He looked so very tiny on that table positioned to go into that tube.  I'm thankful he won't remember this part of it.

Roger elected to stay in the room and I stayed just outside of it.  The scan started about 3:45.  At about 4:10, the put contrast dye into his IV which helps them to see things with greater accuracy.  Things were complete about 4:30.  We saw a peep of an eye, but he wasn't ready to wake up.  Roger carried him back to the first cubby we were in and we waited as he slept.  We were told that it was best if he woke on his own.  We let him sleep for about an hour.  We then tried waking him - and tried and tried.  We offered a variety of things to entice him - but sleep was winning out!  Poor little guy was just out!

He did finally wake enough to take a few sips of apple juice and a few bites of graham cracker.  They were satisfied that this was good and also that this was a good sign that he was not going to react negatively to the meds.  He opened a gift from my sister - a cute book - but was really too tired to read it.  The nurse offered him a toy - cars - which he took but was still so very sleepy.

We left the hospital about 6pm.  We arrived home to friends and our children.  My sister and niece had left earlier.  We are grateful to both families for being here with our children!

Daniel continued to sleep until about 8:30.  He then ate some pretzels and drank some sprite.  He tried to get up to walk and fell.  A few more times he would try to stand and was just very wobbly and woozy.  They had told us it would be like this today - and possibly into tomorrow as well.

We are to keep an eye on him tonight for any unusual reactions and any vomitting.  So far, no signs of problems.  He is sleeping with Roger and I tonight to be on the safe side.  Tomorrow is to be a calm day for him - "no rough-housing". 

In terms of news, now we are going to have to wait.  We were told that it will take about 24 hours for a preliminary report.  Since the scan was done late in the afternoon, I'm not sure if it will be done by tomorrow afternoon.  The report will be sent to our eye dr since she is the one who requested the test.  I'm planning to call tomorrow to let them know that the test was completed and hopefully to hear something.  If not, we'll just wait.  We were told that it would take several days for a completed report. 

Isaiah 40:31
But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.

Thank you for your prayers for our precious Daniel and for our family.  When we have more news, we will update.  For now, I'm headed to bed.  It's been a long day and I'm exhausted.

Love,

Leslie

Oct. 26, 2008
Daniel's MRI

Is scheduled for 2pm tomorrow (Monday October 27).

My wonderful sister and niece are here to be with the kids which is great fun!  They have had a blast playing together and I'm thankful that they were able to come! 

Here's a little of what I know - and there is still a lot that I don't know.

Anything that Daniel is going to eat must be eaten prior to 8am.  No food after that.  He can have clear liquids (apple juice, sprite - not sure what else may be included?) until noon.  Our appt is at 2pm.  He will be sedated for this.  I'm not sure what method they will use to sedate him.  He has sensory issues wihch may limit some of our choices.  I'm not sure if he'll drink something, but the other option is an IV which I don't think he'd be fond of either.  I'd love prayers for this.

The scan itself should take about 40 minutes.  We are not expecting to hear anything tomorrow.  That will be hard!!!  I'm hoping we will hear something on Tuesday and definitely by Wednesday at the latest.  We'll know more tomorrow.

Please join us in praying for clear, good results. 

Also, I don't know if this will clear up any of my questions about the shape of Daniel's head (it's shaped differently than normal and on the larger side), but I'm planning to ask.  I'm wondering (though not too much) if this may be part of the problem. 

Thank you for praying with us.

Blessings,

Leslie

PS.  Roger took some pics with his cell phone.  We should have brought a regular camera.  If they turn out, I'll post some.

Oct. 24, 2008
Making a Difference - 31 for 21

A friend sent me this link (thanks Sharon!) and I wanted to share it.  (Just click on the title below.)  I love the idea that everyone is important and can make a difference.  Everyone can be a blessing.  So many times in our world, someone is valued based on things that don't really matter.  I love this story about a young man with a heart to serve, bless and love others.  I think you'll like it too!

The Simple Truths

Blessings,

Leslie

Oct. 23, 2008
Salamander Room ... and a field trip or two

I'm thinking that this is my last retropost for September.  Then I can focus on the month at hand - for a fwew days anyway.  lol

We have had an extended study of this fun FIAR title (The Salamander Room).  I love the story and it's been a big hit with all of my children.  We've learned about various aspects of nature and had some fun field trips that tied in beautifully with our lessons. 

We visited the Stevens Nature Center and went on a hike to learn about mammals.  The younger children first played a game.  Each child was given a picture of an animal tied onto a necklace.  The photo hung behind them and they were to ask questions to figure out what type of animal was on their card.  We then went on a lovely hike and stopped all through the hike to learn about each of the animals on their cards.  It was interesting and informative.  The only live animals we saw were not mammals - we saw a skink and a frog.

Love this picture of my girls!

I enjoyed finding a couple of neat books in the gift shop to add to our library.  Some that we read to go along with this study include A Skink's Tale, Are You a Butterfly? and Are You a Grasshopper?  All have great illustrations and were helpful in learning more about those particular animals. 

For a fun activity, the children made clay salamanders and painted them.  (Thanks Candace for the great idea!)  I enjoy watching them create and to see their strengths, talents and interests displayed in this way.

We had a second field trip with our Five in a Row group to the North Carolina Botanical Gardens.  As I'm typing this, I'm remembering that this one happened the first week in October!  (Makes me feel a little more caught up.) 

The children were split into 4 groups by age and led on a tour of plants of our state.  They specifically learned about the "Pitcher Plant" (carnivorous plant) and were able to dissect a leaf (to see what the plant had eaten!).  I don't have many pictures of this as I wasn't with these groups.  I'm thankful that others were though so I'll get some later.

The youngest children went on a scavenger hunt/tour through the herb garden with the moms and the older teens. 

It was a beautiful day and everyone had a great time.  We went to a nearby park afterward to picnic and to play. 

I'm thankful for this wonderful group of families with which to go on field trips!

Blessings,

Leslie

Oct. 22, 2008
Inspiring Story - 31 for 21

This isn't a new story - but I thought it was encouraging and inspiring.  Enjoy!

Dreams

Blessings,

Leslie

Oct. 20, 2008
Cops & Robbers Party - Retropost

One more retropost from September.  I think I'll have one more and then can move into October - maybe right before we finish the month!  lol

We celebrated 2 birthdays in September - Joshua and Isaiah.  Since their birthdays are just 6 days apart, we typically have a joint party.  This has worked well.  Only one year did they choose different themes - and it was nuts having 2 different things going on!!!  Now, I work hard to help them chose a theme that with which they are both happy.  This year, it was Cops and Robbers.

I found this cute cake pattern online.  We started with activities.  The children made police vests and hats when they arrived.  Not real comfortable to wear though, so we just took a photo with them and then moved on. 

The first activity was a scavenger hunt.  They learned that "Brooke the Crook" had stolen the birthday pinata and it was up to them to find her - and the candy.  They had a series of clues that they had to decipher and then do an activity before locating the next clue.  For example, in the photo below the activity is to build a tower taller than the birthday boys.

After a series of clues, the did find the loot.

They led the crook to jail. 

While she was in jail, they throw wet sponges at her.  She was a good sport about it!

Next, we had a series of activites including the following.

*Deciphering coded messages for a piece of candy (this one was popular)

*Making art by driving cars throw paint (see photo below)

*Playing red light, green light.

We ate cake and ice cream, opened gifts and finished off the party with a game of cops and robbers.  This one was a bit different.  There was a bank (our back deck) where the loot (water balloons) were located.  The robbers (in the tree area) were to try to steal the loot.  The game ended up being a bit difficult so we made some modifications so the loot was actually attainable.  The crooks when caught could be thrown into the jail. 

We ended with a pinata.  More candy for everyone.  lol 

It was a fun day and we enjoyed celebrating our boys!  Hope you enjoyed the photos.

Blessings,

Leslie

Oct. 16, 2008
Happy Birthday Isaiah! Retropost

I am late in posting this - but we celebrated 2 birthdays in September.  Our sweet Isaiah turned 7!  What a wonderful 7 years it has been!  I know the pic is fuzzy, but I love his smile!

One of our family traditions is that we spend the day doing whatever the birthday person wants to do.  Isaiah had a full day planned for us - and we had a great time.  He wanted to start the day with a picnic breakfast in the park.  He picked a great park that is on a lake and has a fun play structure, picnic tables and hiking trails.  He wanted biscuits for breakfast - we had a variety of things to go in the biscuits including sausage, egg, cheese, jelly and ham.  It was a yummy start to the day.

We then spent some time playing on the play structure.  Since we were the only ones there, dodgeball was the game of choice.  If you were tagged you were frozen.  Once frozen three times, you were then it. 

Then we spent some time hiking.  We followed one of the nature trails and read about various animals and plants living along the trails.  The camera battery died partly through our hike, so I don't have a lot of pictures.

We then headed to Golden Corral for an early supper/late lunch.  It's a great choice because everyone is happy with what they are eating.  Even Eliana has some things there she enjoys.  The waitress even fixed a special dessert for our birthday boys (Joshua and Isaiah have birthdays just 6 days apart).

We had a fun day celebrating our Isaiah.  For those that don't know him, I'll share a little bit of what I love about him.  I love his voice - it is deep.  Really deep for a little boy - and it's always been that way too.  He sings beautifully and projects like a professional.  I often wonder what type of job he'll have and will he use his magnificent voice.  (The flip side is that we always know where Isaiah is playing b/c we can hear him!  lol )

Isaiah has a great imagination and loves to pretend a great variety of things.  He loves to dress-up, build and play with playmobil!  We have large cities and fortresses frequently in our home. 

Isaiah has a great money sense - though I'm not sure if he'll work on saving or spending.  He likes to earn money and is frequently wanting to have some type of "stand" in front of our house selling something.

Isaiah is active and full of energy.  He is constantly moving and doing.  Isaiah enjoys learning about pirates and adventure stories.  He loves doing Five in a Row - it's his favorite part of school.  Isaiah has strong opinions and is quite comfortable sharing them.  Did I mention that he is very funny?!  He often has us in stitches and I love his sense of humor!

I thank God for this sweet boy and am so glad he is a part of our family!!! 

I love you Isaiah!  Love, Mommy

Oct. 15, 2008
31 for 21: Contagious!?!

Thanks to my friend RK for sharing this!  (Click on her name to visit her blog and see her cute little Braska!)  It was too good not to pass on - and every bit of it so very true! 

*~*~*~*~*

Newsflash: DS is contagious!! Keep reading!!

Down syndrome is a genetic disorder characterized by a triplication of the genetic material on the 21st chromosome. This trisomy occurs with the first division of the developing zygote, as a result there is extra genetic material present in every cell of the individual. Recently, science has discovered that this cellular abnormality is highly contagious. As result, family members (and even friends) of individuals with Down syndrome often find themselves exhibiting dramatic changes due to this "something extra" permeating their bodies at the cellular level. These changes manifest themselves in a number of ways. Something extra in the visual cortex results in parents who view the world differently. In addition to seeing things in an entirely new light, these parents also report having an increased ability to focus on what is important. Spontaneous appearance of tears of joy have also been confirmed. The section of the brain used in logical thought undergoes dramatic changes.

Parents suddenly find themselves able to comprehend and discuss complex medical procedures. The ability to decipher long strings of acronyms appears almost immediately and it is not uncommon for affected parents of newborns to be able to differentiate between ASD, VSD and PDA. Familiarity with G-tubes, picc lines and the NICU is another side effect.

Over time, the entire nervous system is transformed, enabling parents to perform tasks previously thought impossible. These changes result in individuals finding the nerve to advocate before large crowds, speak to classrooms of medical students and educate the population at large about issues they are passionate about. These changes are closely tied in to dysfunctions in the verbal abilities, which makes it virtually impossible for parents to bite their tongue. Often, individuals who previously considered themselves reserved will find themselves outspoken and effective communicators.

The pulmonary system is altered to a dramatic extent. Parents report having their breath taken away at the slightest prompting. The cardiovascular system develops similar vulnerabilities and reports of hearts pounding loudly and swelling unexpectedly are not uncommon. One mother reported that her heart skipped a beat when her son smiled at her for the first time. The extremities are also altered. Arms reach out to strangers for support, and in turn, hands comfort and nurture those in need. Legs strengthen and balance improves, allowing parents to stand firm in their convictions and walk without faltering, even when shouldering a heavy load. Scientists are baffled by the widespread scope of these symptoms. Equally perplexing is the response of those afflicted. Parents readily acknowledge fundamental changes in their being, however, almost universally declare a preference for their new, altered level of functioning. "I wouldn't change a thing" is a common refrain. Apparently, the presence of a little "something extra" enhances the lives of individuals fortunate enough to be infected.

Wendy Holden

*~*~*~*~*

Blessings,

Leslie

Oct. 14, 2008
Prayer request for our sweet Daniel

Hi friends,

Would you join me in praying for our sweet 4yo boy. We had what I thought was going to be a routine visit to the eye doctor today. The appts with Rebecca and Joshua went smoothly. Joshua's vision has improved with the continous patching he has been doing!  The appt with Daniel took longer.

We talked and I had shared some of what had been going on with Daniel regarding sensory issues.  I wasn't sure if she knew what to make of that - but then again lots of people don't.  She even commented that my last two children were giving me a run for my money. 

As the appt continued, she just kept looking and looking into his eyes. I thought it was just because he was wiggly (he was) and maybe not cooperating as best he could. I didn't realize that she was looking for something specific and having a hard time finding it.

When she finished the exam she told me that she could not find the outline (may not be remembering the words exactly right) of his optic nerve in one eye because it was swollen. She said it had been difficult at times in the past, but that she had always found it. Well, this time she couldn't. As I sat listening to her, I really had no idea what she was talking about or what this could mean.

Her next words though sent a chill through my body. She wants Daniel to have an MRI to see if there is a mass or ??? causing him to have a swollen optical nerve. As her words sank in, I could feel tears coming to my eyes.

We talked about details - when would it be done and where (Duke). What the process entails (40 min scan of his brain inside one of those tubes) and would he be sedated (yes!). As I worked on details, it was easy to let go of the idea that something might be wrong in my little boy's brain. She tried to assure me that she didn't think that there was anything, but that we needed to do this to rule it out.

I didn't ask a lot of questions about what this could mean. A "mass"? I don't know. I wasn't sure I wanted to go there. At times, the details can just overwhelm me and I'm trying to just be reassured by her thoughts that everything is probably fine. 

Daniel also has a malformation of his skull (it has a name ... cranio ... something). His ped told me when he was a baby that we could have it repaired, but that it was purely cosmetic and wouldn't affect him in any way. I took his word then and didn't ask for any further testing. Now I'm wondering if I should have done more.

I'm trying not to think about it because when I do it's scary. One more opportunity for me to learn to trust. To be willing to put my child into God's capable and loving hands. He is there anyway - I just need to trust. I know Gods love and I'm thankful for that.

We have scheduled an MRI for the 27th at 2pm. I would love your prayers - for peace for us while we wait, for a smooth procedure and clear results. Obviously too we are praying that there is nothing wrong with Daniel.

Thank you dear friends for standing by me once again.

Blessings,

Leslie


Oct. 13, 2008
A short entry for 31 for 21

Well, I was hoping to post yesterday about our fabulous Buddy Walk!  I will post soon - and with pictures.  We had a fabulous day and I'm so glad we were able to be there!

I wanted to share a blog entry with you.  It is a powerful story of the influence of a little girl on a woman's life.  There is so much to this story - deep sadness that breaks my heart.  And hope that encourages too.

Click on the link below to read Linda's story.

Gather My Children

Reading this story encourages me to pray fervently and look for ways to help children find homes with a loving family.  I'll be sharing more about this in the future - and ways you can help too if you are also led.

I'm so very thankful that our Eliana was born at a time when bringing her home was encouraged.  Our lives are so much richer for having her in it.  I'm so very glad to have her in my family.  God has blessed us abundantly!

Blessings,

Leslie

Our family

Leslie

Wife to Roger

Mom to:

Christopher (15)

Rebecca (12)

Joshua (9)

Isaiah (7)

Daniel (4)

Eliana Joy (12/16/2006)

Little ones waiting in heaven



Philippians 4:6

Be anxious for nothing, but in everything by prayer

and supplication with thanksgiving let your requests be made known to God.

v7 And the peace of God, which surpasses all comprehension, will

guard your hearts and your minds in Christ Jesus.

v8 Finally, brethren, whatever is true, whatever is honorable,whatever is right, whatever is pure, whatever is lovely, whatever is of good repute, if there is any excellence and if anything worthy of praise, dwell on these things.



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Recent Posts

Happy Birthday Rebecca!!!
NOV - Quick Catch-up on a variety of things
Last bit of October - a field trip to Jordan Dam on 10/30
State Fair - Oct Retropost
Field Trip - Oct 16 to Duke Homestead - Retropost (again!)
Catch-up post for Oct
Therapy Updates
Buddy Walk - Retropost - Oct 12
Results are IN!!!
No News Yet
MRI Update
Daniel's MRI
Making a Difference - 31 for 21
Salamander Room ... and a field trip or two
Inspiring Story - 31 for 21

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