Beginning Our Journey

Oct. 10, 2008

Clinic Day today.

We had a really nice day today. Tristan cried when they accessed him, it is so hard. one person has to hold his feet, me his arms and the nurse accesses him. Then she makes him lay until she is done drawing blood because she gets a better return and he just wants to sit up and put his shirt back on. it is rough.

But he did SUPER for his spinal! They only gave him a half dose of loopy meds. this time - and he did better then normal! And he was pretty looped up. He was making me laugh because he was talking slurred and he says "why am I talking like dis?" you had to hear it. And he actually laid down for 45 mins after his spinal! Normally we FIGHT him to keep him flat for 15! They want 30.

he got his flu shot in his legs also and did not even flinch.

He is so sweet. All the kids in clinic today got stuffed cancer.org daffodil bears today. he cuddled it the whole time.

Then when he picked from the treasure chest of toys for spinal tap and blood transfusion days, he picked a baby toy out for his brother! What a sweetie! He already has been playing with them (linking chain things).


His ANC was low but they said that is because we upped his meds. It was only 800. It has been 1500 all maintenance and 1300 last time.


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About Me

A place for me to gather thoughts, keep memories and gain sanity as I embark on the homeschooling journey. Also a place to update my friends and family on my son's journey with fighting a.l.l. Leukemia.
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Alyssa(6),Tristan(4) and Wyatt(8 months)

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