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Beginning Our Journey
Mar. 10, 2009
Some Tristan Updates...
Urgh... this morning I sent Tristan upstairs for his legos. I was being lazy and not wanting to get them for him when he asked. So I said, "I will stand at the bottom and you go get them." He said, "Ok mommy, did you know my knees hurt when I do?" .... oh no....
Tristan is on a steroid called Dexamethasone. It causes joint pains. They actually stopped using the steroid on new patients but since Tristan is past the HARD month long uses and down to the 5 day stretches, they continued him on this drug.
So far he has not mentioned any pains so I figured we were lucky not to have that side effect.
I was so sad this morning to hear that indeed, he is experiancing it. Now I know I have to watch him more! Because he carrys things down and up the stairs all the time. We have a full flight of stairs and a little half set to get up stairs. Big old house. If he would fall.... shudder.
But on the good news... Clinic went well. Tristan's Doctors said his counts once again were beautiful. A little TOO pretty and that most likely next month they will be upping his dose of chemo. We have already raised it 2 times. So now we will raise it up again. They want to artificially keep his counts low.
We leave the 22nd for our make a wish. please pray for our trip safety.
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Posted by
Mar. 10, 2009 - Untitled Comment
Rosemary NY