Wow. It never ceases to amaze me how much I still have to learn. When I was pregnant with Nemo, I was so confident. After all, he was my fourth baby. I was a pro at this. Now, it's like first time parenthood all over again. If nothing else, the Lord is teaching me humility and unconditional love. All my children are such great gifts from God!

Today, N.'s doctor scheduled him for an EEG to be performed on Tuesday. They suspect some seizure activity could be happening on N.'s really bad days, because he loses his balance and often runs into furniture and walls while he's walking.

I have to wake him at 3:00 a.m. and keep him up until at least 1:30 p.m. on Tuesday. The docs say that they want to sleep deprive him so he may be forced into some abnormal brain activity and they'll catch it on the test. I'm so scared. What if he goes into a full blown seizure? What's the sleep deprivation going to do to him, period? When he's out of his routine, it's worse than a nightmare!

So what do I do? Put him in God's hands, where he always belongs. God held him, then, when he was struggling for life in a NICU and God will hold him now. But if you read this blog and want to say a prayer for my little one, I will really appreciate it!

Thanks and God bless!

Psalm 91 - How real it is to me now - much more than mere words on paper!

Posted by cerese

My husband and I will pray for you and your son. I understand how scared you are over the unknown. We need to take my son to the dentist. He sees children with special needs at the hospital and will need to put my son to sleep to fix his teeth. The mere thought of this scares me to death. I understand, I will pray. Many blessings