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Oct. 2, 2007
Trusting God-- No Matter What

Posted in Church God Faith

I am really hurting for my best friend.  Her daughter (Sydney and Macy's best friend) has a rare form of epilepsy known as Doose Syndrome, or MAE.  It took, I think, a year or more to get her diagnosed-- her mom was such an advocate for her when the doctors brushed her symptoms off as a tic or something else.  But Laura, my BF, knew instinctively that something was really wrong.  Finally, she was able to get an "episode" on tape, and found a neurologist who could diagnose the condition.  Now it has been a year or more of trying different seizure medications, trying to get them under control.  And the bad thing about MAE is that it apparently doesn't respond to the seizures meds, or responds briefly and then changes.  The next step is a severe high-fat, high-protein, low-carb diet that has stopped seizures in a great number of MAE patients when followed strictly.  It has a high rate of success, but it is alot of work and I would imagine hard on the parents and the child.
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When Spenser was born, he had to stay in the NICU for a week.  He required extra oxygen, and they weren't sure why.  I was devastated by the fear and the sadness and the separation from my baby.  A specialist came and talked to us about heart disease and all sorts of awful possibilities.  I wanted so much for him to be ok and us all to go home together and live happily ever after.  Jason and I prayed and prayed for him.  I remember sitting in that hospital room and praying, "God, I trust you to heal my baby."  Just as clear as anything, I heard His voice speak to me, "But do you trust Me if I don't?"  And I had to say, "No I can't face that.  Please don't ask that of me."

And for whatever reason, He didn't.  Spenser had apparently inhaled some of the meconium and fluid when he was born, and he was fine within a week.  We went home with our beloved baby boy, but the question weighed on my heart so heavily.  I knew the temptation was there to make Spenser an idol in my life.  It's a battle I still face at times with all of my children.  I can't bear the thought of something happening to any of them.  Could I trust God if something horrible happened?
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So here I am wanting so much for God to heal Haley.  I have read all through the Bible of God's healing power-- there is absolutely no doubt that He can heal her.  And I pray that she will be supernaturally and completely healed for His glory-- that we will all testify to His power and love and awesomeness.  And that question nags at my heart again.  "Do you trust me if I don't?"  Can you testify to My glory in spite of the suffering and heartache and pain?  Can you rejoice in the sufficiency of Christ in all things, not just the good times?   Can you say with Habakkuk

Though the fig tree should not blossom, nor fruit be on the vines, the produce of the olive fail and the fields yield no food, the flock be cut off from the fold and there be no herd in the stalls,  yet I will rejoice in the Lord; I will take joy in the God of my salvation. (Habakkuk 3:17-18)

or is that just something you tell the kids

And so we have to find a way to believe in His Divine power to heal and yet trust His sovereignty above all things.  And we have to find a way to be sorrowful yet rejoicing.  In the meantime, I ask you to pray for Haley-- for whatever path God chooses for her.  She is a precious child.


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Comments

Oct. 3, 2007 - Untitled Comment

Posted by Anonymous


Great post! Powerful story and challenging question. Thank you for sharing your friend's story as well as your own struggle over this issue.

Love that passage from Habbakuk.


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Oct. 3, 2007 - Verse

Posted by Anonymous


Awesome verse! Especially in light of Piper's video.

Love you,
Jason


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