I guess my visits here are getting few and far between. I'm finally updating you on how Reagan's MRI went.
We went on the 14th of January, with plans to have her sedated to get the MRI. Luckily, they wanted to try it first with some movie goggles on, to where she could watch the movie that she picked out. Then, they put earphones on her to where she could listen to it and it would drown out the sound of the machine. To our great surprise, it worked! She didn't end up having to be sedated! At first she was wiggling, but they only had to place something over her forehead to keep it more still and she was able to get through the whole thing. She did have a seizure at the end, but luckily, they had gotten enough pictures at that time so they ended there!
Since she didn't have to be sedated, we were able to leave a lot quicker than we would have been, so we had time to go get some lunch and run to a couple of stores. We took her to Incredible Pizza where she enjoyed eating and playing some games! Before we got there, she got incredibly car sick and managed to throw up the ice cream that they had just given her at the hospital! She hadn't eaten all morning due to the requirements of the MRI so she was more prone to get car sick. We hadn't brought a change of clothes so we headed over to JC Penney's sale racks to find her something to cover her body!
After shopping and eating, we headed back over to the neurologist's office for our scheduled appointment. It was a bit scary walking in, thinking that we could walk back out with some really bad news. Even though I didn't really believe that to be the case, my mind wandered a bit, trying to prepare myself for the worst. Thankfully, the MRI came back clear, everything looking normal. So, we talked a bit about how the medication that she's been on has affected her (hadn't really helped her yet) and he prescribed an additional medication to put her on. We had also noticed some clumsiness with her and pointed that out to the doctor. So... now she's on 3 different anti seizure drugs and they've finally started to help a bit! Her seizures are now down to 2-3 during the day, which is a major improvement! She's still having them at night but they seem quite a bit shorter most of the night and they are mostly when she's passing between the sleep and wake state. So... she tends to have more of them when she's first falling asleep or when she's starting to wake up in the morning. Although I'd like to see her seizure free, it is a relief to have them mostly gone during waking hours. She's a much happier girl during the day that way!
We will be calling the neurologist this coming week to give him an update on how she's doing on the new medications and we will return in mid February to see him for our monthly appointment. Our doctor has encouraged us to continue researching and is OK with us considering dietary changes as well. We may start looking into trying the ketogenic diet or possibly just a low carb diet and see how that works for her. Things have definitely improved, but they're not exactly where they're supposed to be yet either.
Please continue to pray for little Reagan. It can be very upsetting to her and to those around her to watch her endure a seizure. |
Jan. 30, 2008 - Prayers
I sure miss you all.
~Melissa