Chronicles from
Holland
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Apr. 10, 2007
I Am The Disabled Child
Posted in Neurodevelopmental Stuff
I am the disabled child
I am the child who cannot talk. You often pity me. I see it in your eyes. You wonder how much I am aware of... I see that as well. I am aware of much..whether you are happy or sad or fearful, patient or impatient, full of love and desire, or if you are just doing your duty by me. I marvel at your frustration, knowing mine to be far greater, for I cannot express myself nor my needs as you do. You cannot conceive my isolation, so complete it is at times. I do not gift you with clever conversation, cute remarks to be laughed over and repeated. I do not give you answers to your every day questions, responses over my well-being, sharing my needs or comments about the world around me I do not give you rewards as defined by the world's standards....great strides in development that you can credit yourself. I do not give you understanding as you know it.
What I give you is so much more valuable...I give you instead opportunities. Opportunities to discover the depth of your character, not mine; the depth of your love, your commitment, your patience, your abilities; the opportunity to explore your spirit more deeply than you imagined possible. I drive you further than you would ever go on your own, working harder, seeking answers to your many questions, creating questions with no anwers. I am the child who cannot talk.
I am the child who cannot walk. The world sometimes seems to pass me by. You see the longing in my eyes to get out of this chair, to run and play like other children. There is much you take for granted. I want the toys on the top shelf. I need to go to the bathroom...oh...I've dropped my spoon again. I am dependant on you in these ways. My gift to you is to make you aware of your great fortune, your healthy back and legs, your ability to do for yourself. Sometimes people appear not to notice me; I always notice them. I feel not so much envy as desire, desire to stand upright, to put one foot in front of the other, to be independent. I give you awareness. I am the child who cannot walk.
I am the child who is mentally impaired. I don't learn easily, if you judge me by the world's measuring stick. What I do know is infinite joy in simple things. I am not burdened as you are with the strife and conflict of a more complicated life. My gift to you is to grant you the freedom to enjoy things as a child, to teach you how much your arms around me mean, to give you love. I give you the gift of simplicity. I am the child who is mentally impaired.
I am the disabled child. I am your teacher. If you allow me, I will teach you what is really important in life. I will give you and teach you unconditional love. I gift you with my innocent trust, my dependency upon you. I teach you of respect for others and their uniqueness. I teach you about the sanctity of life. I teach you about how very precious this life is and about not taking things for granted. I teach you about forgetting your own needs and desires and dreams. I teach you giving. Most of all, I teach you HOPE and FAITH.
I am the disabled child.
From the Ohio Coalition for the Education of Handicapped Children
"Your are to rejoice before the LORD your God
in everything you put your hand to."
(Deut. 12:18)

~ Sonya ~
Jun. 6, 2006
Testimony to Neurodevelopmental Therapy and God's faithfulness
Posted in Neurodevelopmental Stuff
Here is a testimony that I wrote to go on the Hope And A Future website. It speaks of God's complete faithfulness and the miracle that He gave us, which is Neurodevelopmental Therapy.
A QUIRKY KID
Sixteen years ago Zack came into the world with a chubby face and with red ringed curls all over his head. A year later we found out that Zack had also come into the world with Agenesis of the Corpus Callosum (ACC). The middle band of tissues in his brain that connects the two hemispheres was almost completely missing. We were told by the neurologist that his prognosis was grim. They didn’t know if he would walk or talk. We enrolled Zack in an early intervention program at the local university only to be told by the neurologist that he didn’t see how that would help our son.
We went the public school route, not knowing any better, because that’s where I worked. Working two doors down from Zack’s class I got to see the “good, bad and the ugly” that most parents don’t get to see. God had been calling us to home school for some time and we finally obeyed that call when Zack was 12 and our youngest was 9. Things were not good for him at school and we were seeing no progress, so we were more open to the big leap.
To give you a picture of our son: Zack had moderate retardation with many autistic characteristics. He seemed to have every self-stim behavior in the book. We called him our “stim king”. We didn’t know that was bad until we found Hope And A Future, we were told it calmed him down. Hog wash! Zack ate only pasta, chicken nuggets, French fries and pudding. He was 12 and still wore diapers at night. He perseverated on his favorite topics until his Dad and I thought we would lose our mind. His gross and fine motor skills were very poor. Zack was prone to be destructive to his things when he was angry and at times would even injure himself. His hearing was so hypersensitive, he would cry when my dad would blow his nose. My husband would have to take him for a car ride just so I could vacuum. When we began home schooling he couldn’t correlate the number 3 to 3 marbles. He could read and loved to read God’s Word, but had very little comprehension.
We saw Linda Kane for the first time in November 2001. Linda’s first words to me as I talked with her after she evaluated Zack was “you’ve got one quirky kid.” I was shocked! I was so used to the school system “tickling my ears” and telling me how great Zack was doing (when I knew he wasn’t.) Linda gave it to me straight and I learned to love and respect her for that. We had a lot of work to do. At our first re-eval Zack made a huge leap in skills - we were hooked!! Whatever this Neurodevelopmental therapy was…it was working and we were committed to taking Zack as far as he could go.
Almost four years later, we have done a lot of work, and we will do more yet. Zack is not the kind of child that is an “easy fix”. We’ll do this until God says we are done. However, Zack is no longer the same young man he was. He is no longer that same kid rocking and flapping his hands, saying the same things over and over. He’s a godly young man who loves the Lord, communicates very well, is self-sufficient in meeting his own needs. He runs and jumps and plays, and has interests of his own. His word recognition is at about a 12th grade level with comprehension at the 7th grade level. As I said before, Zack is no longer the same…he’s not the same “quirky kid”… his future is much brighter.
God is so faithful to His Word. He gave us hope…and now Zack has a future.
To God be all the Glory!
"Your are to rejoice before the LORD your God
in everything you put your hand to."
(Deut. 12:18)

~ Sonya ~
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Chronicles of our nutty daily life as we seek to glorify God on our journey in homeschooling our children, one if which has significant special needs, and bring our sons home from Liberia.
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