I can really see the impact that Emma's diagnosis is having on our family. Its been a rough few days. We have been focusing on getting Emma's level's steady and making the adjustments to our schedule and our diet to accomodate Emma's needs.
We have also been trying very hard not to make everything about Emma and her disease. They "understand" that things have to change, but of course there are things they don't like about. The disruptions in our lives and schedules I think has been hardest on Michael. I had been getting frustrated with his level of anger for a while and had been working to get that more under control and then this happened. The past few days have been pretty miserable with him. He screams at the littlest things (which isn't exactly new), but the screaming is more frequent now. I know its made worse by lack of sleep but his arguments about that just make things worse.
I'll getting ready to call a friend to play to try and get him out of here for a while - hopefully that will help. I just don't have it in me to deal with his outburts and my own emotions and Emma's medical needs all at the same time. |