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Bow of Bronze

Sep. 16, 2009 - Trachea Update

Wow!  I cannot believe it has been so long since my last post.  I am so swamped right now with twin baby care, I barely find time for computer work.  My own laptop has permanently died, and so has my back-up laptop; both relic MACs that lasted well past their prime :).  So, the time has come for a new laptop but the finances have not arrived.  I am praying my husband's will hang in there for a bit!

At any rate, I felt I should give a brief update about my trachea.  I have had surgery yet again -- this time in Boston.  I chose to go to Boston because this is where the experts are for my particular disease and the permanent surgery I need.  Current plans are that I will return to Boston sometime in the next few months for a Tracheal Resection -- in which the diseased section of my trachea will be cut out and removed. 

Sounds a bit overwhelming when I put it in writing, but the truth is that I have gone into John Hopkins no less then four times expecting this surgery to be done according to my doctor only to discover that the surgery has been downgraded.  Now, with Boston I KNOW they will do the surgery!  This is what they do, and I am very happy to have found the place that does resections most often and most successfully!  Now all I have to do is bite the bullet and schedule the surgery plus multiple family members to come help with my children including the twins and homeschooling for 12 days while I am in Boston.  No small task. 

I covet your prayers!
Post A Comment!

Oct. 18, 2009 - choice of surgeon

Posted by Anonymous
Amy, My trachea history is like yours, but I live in west Texas and there is no one in this area that does the surgery. How did you find your surgeon/hospital and where will you have your resection surgery done in Boston? Thank you, Kristin
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The bottom line is; We try not to insist on parent-led learning or gravitate toward child-led learning. We try instead to focus on God-led learning and ask for His input and perspective on every aspect of our home school. That way, when others fuss about what Dan and I are doing and make me second guess our decisions -- I can go back to our decision process and find God's fingerprints, reminding me that this is His way.

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