About Gus' Gang

We are a small ministry reaching out and encouraging families with chronically ill children.

Read about Gus

Generals

• Home
• View my profile
• Archives
• Email Me
• My Blog's RSS


Recent Posts

• Moving....
• In Memory...Happy Birthday Gus!
• Noah Steven "Crowned in Peace"
• In Memory...Samuel Finn
• Happy 1st Birthday Grayson!!

Kids

Asher
Damon
Grayson
Stephanie
Aoife

Encouragement

Archive
Welcome to Holland

Sign Language

Archive
Learn Sign Language

Healed in Heaven

Gus
Emma
Jacob
Carter
Madison Elisabeth
Terran Robenstein


Sam's Spot

Archive
Miscarriage @ Family.org

Grief and Healing

Archive
Compassionate Friends

Siblings

Archive
SibShops

Wish List

Fabric
Note Cards
Postage
Volunteers

Medical Links

Archive
Short Bowel Syndrome

Organ Donation

Donate Life
Share Your Life
Common Myths
Religion and Donation

On the Nightstand

The Myth of ADHD and Other Learning Diabilities. Parenting Without Ritalin

Extras






Page 1 of 1
Last Page | Next Page




Nov. 27, 2006
Where's Asher???

Posted in Asher

Well...he's home of course!!

 

This is a photo of Asher getting ready to leave the NICU! 

 

 

 

 

 

 

How exciting for his family!  When Asher was born, he weighed 1 lb and 7 oz...the day he left the NICU he weighed a 9 lbs 14oz.  That is a miracle!  Asher still has to have special care but I am sure his mommy and daddy are perfect for the job!  Let's all continue to pray for Asher and his family and let's remember to praise God that Asher is able to live at home with his family!!

 

 


• Comments (1) • Post A Comment! • Permanent Link

Oct. 17, 2006
Eat, Monkey, eat!!

Posted in Asher

 

 

Asher is moving right along...except for the eating thing!  He has an occupational therapist working with him now...it's common for little monkies to need help in the eating department...suck, swallow, breathe, suck, swallow, breathe!!  Go Chunky Monkey go!!  Asher has also been tugging at his tubing and cannula so we need to be praying that everything "stays put"!!  He's a wild one!!!


• Comments (1) • Post A Comment! • Permanent Link

Sep. 26, 2006
I think Asher may have been extubated!!

Posted in Asher

Asher was supposed to be extubated this afternoon around 1pm.  He is supposed to hang out on the CPAP for awhile...he will have been sedated so he can rest and remain calm...and not be wild like the little "Chunky Monkey" he is! lol!!  Asher's mom picked up some neat monkey fabric today...she is planning on doing Asher's room in a jungle theme.  I am so happy for this family!!  Please pray that Asher can make this jump off the ventilator and that they can start making plans for him to go home soon.  It's nice when you get to do your growing at home!!

• Comments (0) • Post A Comment! • Permanent Link

Sep. 12, 2006
Asher Update

Posted in Asher

Asher seems to be doing really well right now.  He does have a little bit of an infection and his lungs have a bit of secretion so he needs some extra Os (oxygen) off and on.  Pray that this infection clears up soon and that he continues to do well with his feeds!!


• Comments (1) • Post A Comment! • Permanent Link

Aug. 24, 2006
Asher Update

Posted in Asher

Asher is weaning down on the oxygen (fondly called O's in the NICU!) and the CMV test came back negative!  He seems to be feeling better but still is infected so he's not out of the woods yet.  Asher's mom, Heather has made a list of specific prayer requests that I would like to share:

 

Please continue to pray for the monkey and his infection, blood count, oxygen, and anything else you can think of.

Below are some other prayer requests:

That everything works out with insurance issues with the cars.

That God provides the way and things he knows we need not what we think we need.

Healing for broken hearts.

Strength for my relationship with Adam.

A sense of humor.

Insight into God's will and strength for faith (sense sometimes it is hard to have faith when everything seems to be coming down around you).

We are thankful for all of you. God blessed us greatly when he gave us all of you.

Heather


• Comments (0) • Post A Comment! • Permanent Link

Aug. 20, 2006
Urgent Prayer Request for Asher!!!

Posted in Asher

August 23

 

Asher is still fighting the infections...he seems to be getting stronger and the bleeding still continues to slow down.  Please continue prayers for this little guy and his family!!

 

 

 


  Asher appears to be doing a tad better.  His CT scan showed no abcesses, however, the scan was not a full body scan so that still may be a possibilty.  The doctor thinks that  Asher may have CMV instead of a Gram Negative Cootie.  Both are serious "bugs" to have...so please continue to pray for this little guy.  The bleeding from his ostomy has seemed to slow down too and this is great news...hopefully it's a sign that the meds are working. 




Asher is very sick right now.  He has a horrible infection that has been classified as a Gram Negative infection...these types of infections are really tough on a body.  the doctors are still waiting for the cultures to grow out so they will know exactly what this bug is.  Then they will be better able to treat the infection.  There's a possiblity that Asher has an abcess where this infection is hanging out...if that's the case, then hopefully it can be drained.  Gus had several abcesses drained due to the same reason so we know it certainly can be effective.  Asher is also experiencing bleeding from is ostomy and this is very concerning.  Please pray for this family right now...

Prayer requests:

That Asher will become infection-free
That if there is an abcess it can be drained
That the medicines are effective
That the bleeding from the ostomy will stop
That the family remains strong and full of faith and hope








• Comments (1) • Post A Comment! • Permanent Link

Aug. 18, 2006
Neat Videos from Aunt Laura!

Posted in Asher

Just click the pictures to go to the videos.  I think these are really good for people to see what it's like in the NICU.  I wish we had thought about doing this with Gus!  Great idea...and thanks for sharing Aunt Laura!!


  





• Comments (0) • Post A Comment! • Permanent Link

Aug. 14, 2006
Asher

Posted in Asher

Asher is doing well and is recovering from his surgery that took place awhile back.  His Aunt Laura went to see him and confirmed that he truly is a "Chunky Monkey"...that's his nick name!  Please continue to pray for little Asher...pray for his parents too.  His mom was in a car accident...she was hit by another car and she's ok...other than the stress of dealing with car issues and having a child in the NICU! lol!  What a ride!!

 

Here's some baby bananas for you Asher!

 

 

 


• Comments (1) • Post A Comment! • Permanent Link

Aug. 10, 2006
Praise God! Asher doesn't have CF!!!

Posted in Asher

This was posted earlier on Asher's site!  I couldn't have said it any better....

 

 

Praise the Lord, Asher DOES NOT HAVE CYSTIC FIBROSIS!!!!!!!!!!!!!!!!!!

To celebrate, here is psalm 148:

"Praise the LORD from the heavens, praise him in the heights above.

Praise him, all his angels, praise him, all his heavenly hosts.

Praise him, sun and moon, praise him, all you shining stars.

Praise him, you highest heavens and you waters above the skies. Let them praise the name of the LORD for he commanded and they were created.

He set them in place for ever and ever; he gave a decree that will never pass away.

Praise the LORD from the earth, you great sea creatures and all ocean depths,

lightning and hail, snow and clouds, stormy winds that do his bidding,

you mountains and all hills, fruit trees and all cedars,

wild animals and all cattle, small creatures and flying birds,

kings of the earth and all nations, you princes and all rulers on earth,

young men and maidens, old men and children.

Let them praise the name of the LORD, for his name alone is exalted; his splendor is above the earth and the heavens.

He has raised up for his people a horn, the praise of all his saints, of Israel, the people close to his heart.

Praise the LORD."

We couldn't feel more blessed!

Aside from this exciting news, another important piece of information is that Asher will be transferred back to Mercy tomorrow. Please pray for a good transfer. We are not anticipating another surgery for a while, so we don't have to worry about this. They anticipate him going home on the ostomy, so he can grow bigger and stronger before fixing his intestines. Also, they are not worried about the kidney levels, as they think the levels are off because of nutrition issues. Please pray this is correct and he has happy kidneys!

Also, Asher is up to 70%, which they say he is compensating for the lowered vent settings, but it still makes us a little nervous. Please pray this goes down.

Heather is going to head out to cuddle her little monkey even though she is feeling really sick. She wants to make sure she gets this in just in case she is unable to for a while after the transfer.

THANK YOU SO MUCH for your prayers. God is certainly answering them one by one. We couldn't be more grateful that God has blessed us with such amazing prayer warriors!!

This update was brought to you by ONE BIG HAPPY FAMILY!

Aunt Laura, Heather, Adam, Asher, ^Jacob^, and the whole family


• Comments (0) • Post A Comment! • Permanent Link

Aug. 3, 2006
Prayer Vigil Friday, August 4th at 9am

Posted in Asher

 

 

 

UPDATE:

Surgery went well!!

 

 

 

 

Meet Asher!!  Asher will be undergoing exploratory abdominal surgery tomorrow at 9am.  Please pray throughtout the day for this little guy and his family.  This is a list of prayer requests from Asher's website:

 

 

 

  • For God to guide the hands of the entire medical staff as they perform the surgery
  • -Asher's strength for the surgery
  • -The problem to be found easily, to be a simple problem and easy to fix
  • -NO COMPLICATIONS
  • -For Asher to be able to handle the conventional vent well during the time he is required to be on it.
  • -Asher's lungs to not be compromised in any way. If they are, for it to be minimal.
  • -For Asher to be able to switch immediately back to the bi-level vent after surgery
  • -Strength for the whole family and all who love Asher, especially Heather and Adam
  • -And pray for anything else you can think of! :)

 

 

 

To read more about Asher and his twin brother, Jacob, who is now in Heaven, point your cursor to Asher and Jacob .  Be sure to leave an encouraging note for the family!! 

 

 

 

 

 

 

 

 

 


• Comments (0) • Post A Comment! • Permanent Link