Join BlogrollSep. 24, 2009
Links galore for Mito Awareness week!
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Spend today better educating yourself about mitochondrial disease - whether you are affected or know someone who is!!! (Note from Heather: If you have more than one autistic child in the house your dr's should do basic mito testing! Mito is one of the KNOWN causes of autism!!) Here are some places to start: FAMILY SUPPORT: • United Mitochondrial Disease Foundation: http://www.facebook.com/l/ff795;www.umdf.org • MitoAction (Mitochondrial Disease Action Committee): http://www.facebook.com/l/ff795;www.mitoaction.org • Muscular Dystrophy Association: http://www.facebook.com/l/ff795;www.mda.org • Fatty Acid Oxidation Disorders (FOD) Support Group: http://www.facebook.com/l/ff795;www.fodsupport.org • Organic Acidemia Association: http://www.facebook.com/l/ff795;www.oaanews.org • European Mitochondrial Disease Network: http://www.facebook.com/l/ff795;www.emdn-mitonet.co.uk • Australian Mitochondrial Disease Foundation: http://www.facebook.com/l/ff795;www.amdf.org.au • Marcel's Way: http://www.facebook.com/l/ff795;www.marcelsway.org • Eli's Angels: http://www.facebook.com/l/ff795;elisangels.net RESEARCH GROUPS: • Mitochondria Research Society: http://www.facebook.com/l/ff795;www.mitoresearch.org • National Organization of Rare Disorders: http://www.facebook.com/l/ff795;www.rarediseases.org • Indian Society for Mitochondrial Research and Medicine: http://www.facebook.com/l/ff795;www.inmit.org • European Organization of Rare Disorders: http://www.facebook.com/l/ff795;www.eurordis.org • Mitochondria Interest Group: http://www.facebook.com/l/ff795;sigs.nih.gov/mito/Pages/default.aspx • Mitochondrial Medicine Society: http://www.facebook.com/l/ff795;www.mitosoc.org • Mitochondrial Physiology Society: http://www.facebook.com/l/ff795;www.mitophysiology.org • American College of Medical Genetics: http://www.facebook.com/l/ff795;www.acmg.net • Society for Inherited Metabolic Disease: http://www.facebook.com/l/ff795;www.simd.org • Society for the Study of Inborn Errors of Metabolism: http://www.facebook.com/l/ff795;www.ssiem.org GENETIC TESTS & RESOURCES: • GeneTests: http://www.facebook.com/l/ff795;www.ncbi.nlm.nih.gov/sites/GeneTests/ • Baylor College of Medicine, Medical Genetics Laboratories: http://www.facebook.com/l/ff795;www.bcm.edu/geneticlabs/index.html • MITOMAP A human mitochondrial genome database: http://www.facebook.com/l/ff795;www.mitomap.org/ • Mitoland: A Handbook for Patients and Parents http://www.facebook.com/l/ff795;www.mitosoc.org/blogs/wp-content/uploads/docs/mitoland.pdf • MITO 101: A Primer for Physicians and Patients - http://www.facebook.com/l/ff795;www.umdf.org/site/c.dnJEKLNqFoG/b.4585961/k.C6AC/MITO_101.htm • Mitochondrial pathways: http://www.facebook.com/l/ff795;neuromuscular.wustl.edu/pathol/diagrams/mito.htm • IUBMB-Nicholson Metabolic Maps, Minimaps & Animaps: http://www.facebook.com/l/ff795;www.iubmb-nicholson.org Special Thanks to MitoAction.org and FB Mito Awareness page for putting together such a wonderful list of links! God bless! |
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