Today was the big day.  We took Susanna in for her appointment.  She has 11 definite cafe au lait spots now and several other probable ones.  The doctor said that until we get a second diagnostic sign, we can't say definitely that she has neurofibromatosis (NF), but it is highly likely.  She expects we'll see the next sign within a year and a half.  We need to go back in 3 months.  In the meantime, she is concerned because Susanna has high blood pressure (123/79 - should be about 80/40) and isn't growing well.  We did a number of tests on her kidneys and another blood draw to monitor her white blood cell count and will get those results back tomorrow.  NF sometimes causes kidney problems.  That's all we know for now.  Thank you for your prayers.

Love, Dawn