We got back from Children's today.  Her echocardiogram of her heart looks good.  Praise the Lord for that!  We met with the nephrologist.  He explained last week's kidney ultrasound results to us.  It looks like she might have a neurofibroma (tumor) growing on her kidney.  However, with her blood pressure results being better today and the doctor determining that it would be dangerous to do the angiogram on her at her current age/size, we're going to wait.  Her nephrologist, her geneticist, and our family doctor are going to consult on Monday and come up with a plan together that involves her having checks done on her every couple of weeks.  We're also going to add a failure to thrive specialist to her list of doctors.  Thank you for all of your continuing prayers!

Love, Dawn