HomeschoolingKeeperAtHome

May. 5, 2006

Susanna update

Posted in Susanna updates

We're taking Susanna to a closer Children's auxillary this afternoon to have her blood pressure and her renal bloodwork rechecked.  I took her in to our family doctor on Monday and we are delighted that she has grown in weight, length, and head circumference.  However, she isn't growing enough so is continuing to fall right through the growth chart.  She's now up to 12lb2oz and is 5 months old.  We are still waiting for an appointment with a Failure to Thrive specialist.  Thank you for your ongoing prayers!

Love, Dawn

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May. 5, 2006 - I was just getting ready to ask

Posted by homekeeper4him
I was just getting ready to ask you via email how Susanna was and then I decided to check your blog. Susanna has still been in my thoughts and prayers. I'm glad she is at least gaining even if it isn't within the chart ranges. Praying you get into a specialist soon. Friends of ours took their 9 month old to a specialist yesterday in St. Louis because he is losing weight.
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May. 5, 2006 - Update later in the day

Posted by hallfamily8
Oh that was so frustrating! I spent about 2 hours in a hospital to find out that they can't do that blood test there. Sigh!!!!!!!!!!!!!!!!!!!!!! Tomorrow we will be going to a different hospital. Apparently, the nephrologist ordered a very difficult blood draw that a physician must do. He wants to get the blood from an artery (not a vein) deep in the arm or leg.
Love, Dawn
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May. 6, 2006 - Untitled Comment

Posted by DebiG
Thanks for updating! I am still praying.
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May. 8, 2006 - Susanna

Posted by Christy Crawford
hi! I wanted to tell you that our family is praying for yours and baby Susanna. We had not contacted you to let you know we were praying because we had not heard from you personally about her. Having recently heard news about her in church we wanted to let you know in this way. Pardon me for posting here without permission, I found the link on your sig. I know there are many more concerns than weight going on here, but I did want to encourage you in this way that our Torie was only 16lbs at age 1 and 5% on the growth chart as well. Today she is doing so well, but has always been slow to gain. Healthy eating is the key to making even a tiny child grow well in their capacity. I see that is something you are dedicated to. The Lord will make everything work out in His time, and I praise Him for that assurance, don't you?
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May. 9, 2006 - Untitled Comment

Posted by DandelionSeeds
Praying and continue to have it on the prayer list on my blog as well...

In Him,
Amy
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May. 10, 2006 - keep praying

Posted by Jessica
Hi I will keep praying! How are the green smoothies going?
Blessings--Jessica
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May. 10, 2006 - Just heard...

Posted by Suzanne
...about your need for prayer from Amy at DandelionSeeds. I just breathed a quick prayer for you and your family.
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About Me

This is just my little spot to journal about my life including homeschooling my children in the Charlotte Mason method, raising children with autism, adopting children from Liberia, and sharing about my baby Susanna's journey with NeuroFibromatosis.

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