I haven't updated on Susanna in a while.  Thank you for all who continue praying for her.  Today she had an appointment with a GI doctor.  She currently weighs 15lb12oz (3% on the growth chart) and is 26.5" tall (10% on the growth chart).  The doctor asked us lots of questions.  He had us meet with a dietician who after talking with me felt that Susanna was taking in a higher caloric diet than would be normal for her height.  That would mean that either she's not absorbing properly the food she is eating or she's got a really high metabolism.  We're testing that over the next two weeks.  We are to give her a very high fat diet for two weeks and then weigh her.  At her recent rate of growth, that would put her at about 6oz weight gain.  The dietician says we should see at least 9oz of weight gain on a high fat diet if it is simply a matter of metabolism.  In the meantime, the GI doctor scheduled us to come back next Monday (9/18) for a sweat chloride test (for cystic fibrosis) plus a bunch of bloodwork and he's referring us to an Endocronologist.  So many doctors!!!  Anyway, I am going to go ahead and call her Geneticist and Nephrologist and see if they need any bloodwork done at this time, so that if so it can all be taken with that one stick next week.  I also need to schedule her next Genecist appointment.  She's up to 31 cafe au lait spots, so we now know for sure that she does have Neurofibromatosis.  She is also going to need to see an Allergist when she's a bit older for food allergy testing.  So far, she's shown herself to be allergic to dairy, wheat, corn, grapes, apples, pears, peaches, and carrots.  In fact, we've only found 7 foods so far that she can eat in addition to my breast milk.  We'll keep slowly trying her on more, one at a time.  She is developmentally about 3 months behind on motor skills, but seems to be steadily progressing.  Really her developmental skills line up with her size really well and are all at about the 7 month level.  Interesting.  Despite everything, she continues to be an incredibly happy baby and brings immense joy into our lives.  She has said her first word - "Papa," much to the delight of her Daddy.  The children got all excited, so now she regularly chants his name.  lol