HomeschoolingKeeperAtHome

Oct. 20, 2006

Doctor appointments - Miriam and Susanna

Posted in Susanna updates

The last two days have been very busy for us with doctor appointments.  Miriam's appointment was yesterday.  She is 2.5 and we have been highly suspecting that she is on the autistic spectrum for a while now.  We took her to our new family doctor (new since the move) yesterday and after asking a number of questions, the doctor was in agreement with us.  We will have an appointment with the Autism Clinic down in Columbus for the diagnosis.  Our son, Thomas (9) has High Functioning Autism/Asperger's, so we recognize a number of similarities from how he was at this age, yet they are also very different.  Early Childhood Intervention will be calling us next week to get us started up on free therapy for her.  We did that with Thomas and it really helped him.  Please pray that we can help her to become all that God intends for her to be.

 

Today we took Susanna (10.5mo) to Cincinnati Children's.  Her appointment with her Pediatric Geneticist went well.  We were delighted to learn that the high fat diet we've had her on has been effective and she's risen from 3% weight to 15%.  She's currently 18lb2oz.  Woo-hoo!!!  She's maintaining the 25% height and 75% head circumference.  They said they were so pleased to see a chubby Susanna.    They sent her over to the Allergist/Immunologist as she has been reacting to an increasing number of foods.  She'll barely start eating it and her right cheek will become bright red and puffy.  Anyone ever heard of anything like that?  They did skin testing on her and the foods all came out negative.  We'll get the results of the RAST blood allergy tests back in a week or two.  If those come out negative, they think she might be having a dermatological reaction to the food, not a food allergy.  In that case, she can probably go ahead and eat the foods.  That would be very helpful!  We could then test them one by one and see if she just stays red and puffed and then it goes away or if anything else (like rash, etc.) happens.  As long as it's not hurting her at all, I guess it's fine for her to get a bright red puffy cheek.  Weird.  They did some other blood work on her, too.  Oh, I almost forgot to mention, her blood pressure was great.  Thank You, Lord!

 

We'll be seeing Susanna's Family Doctor and her Gastroenterologist next in December, and her Geneticist again in February.  In the meantime, we need to also get her in to an Endocronologist for some tests.  I'll try to get that set up next week.  Susanna continues to be developmentally behind physically and her Geneticist is going to get Early Childhood Intervention set up to start working with her as well.  Thank you for all who continue to pray for her and our family!

 

Thank you also for the neat ideas for Christmas gifts I can make.  I'm getting excited about getting started on these various projects.  The holidays will be so nice this year.  We've spent quite a few alone as our families live far away.  This year, my mother-in-law and our neice will be able to visit us for Thanksgiving and my parents will be able to join us for Christmas.  Both will be so very special with our much loved family here!

 

I have a very exciting announcement, but will save it until my next post.  This one's long enough.   

 

Love, Dawn

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Comments

Oct. 20, 2006 - Untitled Comment

Posted by Anonymous
Hi Dawn,
(From a long lost stranger - LOL - Dana).

I am glad to hear that Miriam will be able to get diagnosed soon so that you can start getting her the help she needs! I am also very impressed with Susanna's weight gain.

I was wondering if you could send me a sample menu and/or food list that you have been using. When Fisher was a year old, he was diagnosed as 'failure to thrive' and we had to see a specialst. The specialist said he was fine and put him on Boost. He pretty much stopped eating after that but the Dr. wasn't concerned (even though he still wasn't gaining). We finally took him off the Boost and it has taken a year to get him eating again - but he still doesn't eat much. He is almost 25 lbs and will be 3 in December. Josiah eats like a pig but is small. He is 15 months and is a hair under 19 lbs.

I would love to find out what all you've been doing for Susanna because it may benefit my skinny little fellows.

Please feel free to email me at: halos_glow@yahoo.com
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Oct. 20, 2006 - Good Evening

Posted by coveredwifeoftim
Hi Dawn,
It's been ages since I signed anyone's blog. I will be praying for your family and I look forward to your exciting news.
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Oct. 24, 2006 - Untitled Comment

Posted by DebiG
Very exciting announcement?????????? What is it???? How long will you make me wait to hear what it is??? Are you????? OH I cant say it!!!
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Oct. 24, 2006 - Untitled Comment

Posted by DebiG
........Still waiting! LOL
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Oct. 27, 2006 - So happy for you

Posted by OhioSarah
I am glad things are getting better and the kids are getting the help they need.

I too am curious about your surprise. I know you just emailed me but still curious :)

God bless.
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Dec. 1, 2006 - Red puffy cheek.....

Posted by Mama2Many
I'm not sure if it's the same thing or not but my cousin would get a red streak (maybe slightly puffy) when he would eat things with red dyes, artificial colorings and sugar. My oldest son did the same thing when he was younger but it doesn't happen anymore. He's 23 now. :o) My aunt did the Feingold diet with my nephew because he had ADD and Tourett's.
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This is just my little spot to journal about my life including homeschooling my children in the Charlotte Mason method, raising children with autism, adopting children from Liberia, and sharing about my baby Susanna's journey with NeuroFibromatosis.

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