We got the phone call late this afternoon with the rest of the information on the MRI.  I am still somewhat in shock and am really struggling.  I am asking for prayers for healing for her, for strength, courage, and peace for Aaron and me, and for wisdom for the doctors. 

Turns out that the tumor that we knew about that we can see under her tongue actually extends up her entire right cheek and goes all the way from her right eye to near her right ear.  It is all intertwined with the muscle, fat, nerves, and blood vessels.  It is possibly inside the bone around her right eye also.  She may get a CAT scan to determine that.  Tuesday a team of doctors - the heads of genetics, neuroradiology, neurosurgery, and oncology will meet to discuss her MRI and try to come up with some kind of a plan for what to do for it.  It is growing and very invasive. 

The MRI also showed that she has a second tumor.  This one is on one of her optical nerves.  At this time it is small and, as for as optical nerve tumors go, not in a bad place.  She will need to see an Optometrist  who will do a vision test on her and then in 3 months she will have another MRI and vision test to determine if it has changed at all.  If it has not, they will do another MRI in 3 months and if nothing has changed, she will get on a schedule of having MRI's every 6 months to check it.

Tomorrow her nurse will call the hospital concierge to schedule 3 appointments the same day, preferably this week, but if not next week.  Those 3 appointments will be 1) the NeuroFibromatosis Clinic, 2) the Ear Nose Throat Specialist, 3) the Optometrist.

"The Solid Rock"

My hope is built on nothing less
Than Jesus' blood and righteousness;
I dare not trust the sweetest frame,
But wholly lean on Jesus' name.

When darkness veils His lovely face,
I rest on His unchanging grace;
In ev'ry high and stormy gale
My anchor holds within the veil.

His oath, His covenant, His blood
Support me in the whelming flood;
When all around my soul gives way,
He then is all my hope and stay.

When He shall come with trumpet sound,
O may I then in Him be found,
Dressed in His righteousness alone,
Faultless to stand before the throne.

Chorus:
On Christ, the solid Rock, I stand -
All other ground is sinking sand,
All other ground is sinking sand.

Love, Dawn