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My baby. On our way of checking out of the hospital on Monday, we got a call from the head doctor of the NICU wanting us to immediately come down. Keith and I dropped what we were doing and ran down to have four of the top doctors waiting to talk to us. We were taken into a small room and told that Adelynn had a poopy diaper with mucus in it. They decided to immediately take her to x-ray and found out that she had Necrotizing Enterocolitis. She had no other warning signs. It had taken over her liver, intestines and her colon. Completely. They told us in that room that we needed to call our family in and have our children come to the hospital to see her before she got worse. They told us she had a 25% chance of death in the next 10 hours and that it would be a good idea to have her baptized if we chose to. Keith and I literally dropped. Our well baby, the one that was bigger than the other two had within 1 hour became one of the sickest babies in the NICU. They told us it was one of their worst cases they see. WIthin a few hours she was heading downhill fast, but she never had any of the side effects that we were expecting. They told us in the first two hours she had a 90% chance she would need a ventilator to breathe, they would need to treat her for shock, her body would shut down, she would need blood and bone marrow transfusions, she would get severe sleep apnea, her blood pressure would have problems, etc... She had none, but fought like crazy for the first two nights. She was miserable, but we couldn't give her pain medication because her heart would have too many decelerations and she would have to go on the ventilator. She has been suffering greatly the past few days. My poor, beautiful little daughter. Over the past few days, her x-rays have slowly gotten better each day. Her blood work is staying the same if not better every day. Today they told us that her x-ray was normal for the first time. She has to stay off all food for the next week or so and then they will slowly start her back on breastmilk. Our problem now is that she has a high chance of needing intestinal surgery over the next few weeks because of bowel blockages or parts of her intestine that have died. We are praying hard that won't happen. God has already granted us a miracle with her fighting through this ordeal. We are extremely grateful and thankful. We have so many people praying for her and we can feel it. Thank you so very much. The boys are doing great. They expect Landon and Evan to be home by the end of next week. Keith and I are very tired and mentally exhausted. Keith's parents flew out right away and are here and my parents were here for a few days. It's been nice having their support. I promise to try and update as often as possible, but we are at the hospital nonstop. Please continue to pray for all three babies and especially for Adelynn, who has stolen our hearts and showed us how unbelievably strong she can be. We love her so very much. |
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Posted by Amanda Brewster and crew