While we were in New Orleans this summer, we got to bring Steven, our 3 year old with Asperger's Syndrome to a medical doctor that specializes in treating children with autism.  Dr. Stephanie Cave is a somewhat famous doctor who currently treats over 700 autistic children, plus many other people.  These are the notes from our 4 hour appointment:

 

These are my notes and I tried to remember it as closely as I could.  Much of the information was new to me and completely over my head, so I’ll try my hardest to be accurate.  However, if I mistakenly misquote her, trust a better source!  I thought this information might be helpful to some of you, but it is clearly second-hand, so keep that in mind.

I’d love opinions and won’t be offended!

 

The 2 hour appointment was overall very helpful, encouraging, interesting, and worth every penny!

 

Dr. Cave is a medical doctor who simply didn’t buy in to the “drug” solution for every problem.  She currently works with over 700 autistic children.  She is somewhat famous in the Biomedical field.  IMO, her emphasis is on Chemistry.

 

The appointment lasted 2 hours with Dr. Cave, then 2 more hours doing blood work, etc.  I went with my son Steven, my dad, and my step-mom.

 

When Dr. Cave walked in, she was friendly and looked young and healthy! She is probably in her late 50’s based on the amount of education, etc.

 

I explained to her that our son was diagnosed with Asperger’s syndrome a few months ago at 3 ½ years old.  She asked what I was seeing that made me bring him in.  I mentioned developmental delays, poor eye contact, unusual interaction with strangers and some peers, some rigidity in routines, sensory issues, and the fact that a few people had really encouraged us to test him.

 

Dr. Cave said that she didn’t think anyone could be diagnosed with Asperger’s Syndrome at age 3.  She felt it was hard to tell if a 13 year old had it. (I didn’t really agree with this part)  So, she felt that he may have some developmental issues and poor eye contact, but it was probably mostly related to physiology. 

 

She began explaining the body and how it digests, takes in nutrients, expels bad things (my wording!), etc.  She showed us this big chart of chemistry including the Krebs Cycle (which was the only thing I recognized from my one year of Chem in college!).  It made sense when she explained it.  And, it seemed very scientific…not fluffy.  She is an M.D.

 

Then, she explained some things about vaccines and how children born between 1930 (?) -2002 are fighting all the mercury, bad viruses, etc. that are in vaccines.  She said the first case of autism was discovered in 1932, two years after vaccines were introduced (?).  She is definitely not completely against vaccines, but is against the way they are done and the number of vaccines given.  She has a great book called, “What your doctor will NOT tell you about vaccinations.”  She also pointed out that many of the vaccines are for viruses that you don’t die from.  You get it, if it’s bad enough, take an antibiotic, then, you’re immune!

Also, the Mumps (or Measles?) outbreak recently is happening in people who had the vaccines…they are not testing to see how long this vaccine lasts!

The Hep B, which is given at birth, is a sexually transmitted disease!!  Now, I know kids are having sex younger, but come on!  Also, Dr. Cave said this vaccine only immunizes for 5 years!!  Who is thinking here?

I appreciated that she was not just pessimistic about the world.  What I mean is that I was a little nervous she would explain all these horrible things about our environment, food products, everything around us, corruption—can’t trust anyone, not doctors, not FDA, not anyone.

I know much of the skepticism about doctors, etc. is true and I know we are destroying the environment every day, but I also know that we live in a fallen world.  Even though it is fallen, it is the world God has placed us in. We’ve pretty much ruined it, but God knew we would, and He still has us here.  So, until Jesus returns, it must be the place He wants us in.

I can try to change the world some day, but today, I just want to protect my family and do what I can for them.  Besides, I’m not really a “change the world kind of girl!”

Dr. Cave was honest about so many things that are harmful and wrong, but she still seemed optimistic.  She mentioned at one time that we need to have a “living mentality”, not a “dying one”.  She also prayed for us at the end and said God would heal our child more than anything else.

 

Okay, back to the chemistry chart!  She explained many things, but I only understood a little.  I pray you won’t read this and think Dr. Cave doesn’t know what she’s talking about, but rather, that you’ll know this is MY report of what she said and she knows it…I don’t.

She explained how everyone is born with a gene code (MTHFR) and it is either +-, ++, or --.  A pos./pos. is the best and this person will have the strongest immune system.  A negative/negative is the worst and this person will get every virus, have allergies, etc.  You can build on it, but will need to supplement more than others.

She ran a test to see what my son’s is. 

She also explained how mercury/metals block healing, immune fighting, etc.  She gave me a prescription to exempt my son from future vaccines.  She said the 4 &5 year old vaccines are especially harmful.  She recommended we NOT vaccinate the rest of our kids.

 

She ran many blood tests and is going to design treatment based on that, but she started us off with a few supplements and one prescription for yeast. 

She recommended the Gluten Free/Casein Free diet to try for 4 months, but the blood work will show if he needs to stay on it longer.

She recommended:

Supplements: Multivitamin/Mineral (Super Nuthera), Zinc, fish oil, cod liver oil, amino acid formula, and actifolate.

Liver Detox: Epsom salts baths (1 cup of Epsom salt, 1 cup baking soda)-soak for 15 minutes 1 x a week.            And, Magnesium Sulfate cream on days of no Epsom salt bath.

Colon Treatment:  Nystatin Suspension, Klaire labs Thera Complete, and Juice Plus (fruit and veggie gummy bears!)

 

She is also doing urine samples and hair samples to determine morphine in the body and metals.

 

 

She also said that his extreme reactions to mosquito bites and common occurrence of hand, foot, and mouth disease is a direct sign that his immune system is compromised…she recommended the Juice Plus kids vitamins to aid in rebuilding the immune system.

 

I left feeling hopeful that my son will improve and start “living” more fully.

 

She also gave us a recommended book list, so if you’re interested, let me know.

 

Hope that helps,