Joyful in Hope
Dec. 16, 2008
Where do I begin?

So much has happened in the past few weeks since I posted!! I am teetering between  "over-the-edge overwhelmed" and "take-a-deep-breath and relax".  We've been taking it one day at a time here with new developments and challenges that would've made me zany a few years ago before adjusting to my life of unexpected twists and turns.  In it all, we have clearly seen the Lord's grace & mercy in a big way.

Since Thanksgiving, Greg and I sadly have both lost grandparents.  Thankfully, we were both able to join close family and friends for their funerals back on the East Coast.  What a reminder of the sovereignty of God as one who gives and takes away.  My family was blessed to have our Nana for 90 years and is continuing to be blessed by her legacy.  Imagine what the world and your family will be like if you live to be 90?  For me that's in 55+ years!  In some ways, I hope I can live that long to see our chlildren, grandchildren and great-grandchildren grow up & enjoy a long loving marriage with my sweetheart.  I realize though that the joys and splendor of this life are but a flicker compared to the flame of glory that will be waiting for me in heaven, and for that, I do long.  After reading Mary Chapman's (Steven Curtis Chapman's wife) Christmas letter on her blog, it reminds me that all we have, the joys and sufferings, are from our gracious Father in heaven.  While we mourn our losses, we give thanks we had them to love & cherish.

We have seen healing (physical) in a remarkable way in the past few weeks for me.  I am usually very healthy and injury-free, but just before Greg was traveling for a week I burnt the palm of my hand badly on the stove.  You don't realize how much you use this body part until you can't use it!  Even washing that hand was out-of-the-question for about a week.  It healed beautifully and quickly with no infection or troubles and came at a time that everyone could pitch in a little more to offset my slack.  Another example of God's goodness is that I came home from a week of traveling to the Mayo Clinic and my grandmother's funeral with a head cold that hit me like a freight train.  Again, the timing was perfect (if there can be a good time to be sick) & after staying in bed all weekend with Mr. SuperHusband continuing to carry the load from when I was away, I felt 100% better by Monday (which was a good thing for dh has left again for 3 days for work).  I have never gotten over a bad cold in 2 days & can explain it no other way than to thank God's healing powers.  Boy it's neat to see prayers answered and the Lord working in your life!

OK - to the big event of our month so far - the trip to the Mayo Clinic.  The trip was worthwhile but a little disappointing.  I think I put "all my eggs in one basket", so to speak, in hoping this doctor could "figure it all out for us".  While he was typically busy, rushed and had not given even a look at the medical records we sent ahead of time, he seemed to be a very skilled physician and was eager to take on her case.  He agreed with the findings of our other eye doctors and ruled out a prenatal stroke or brain injury as causes for her challenges.  He leans towards investigating genetic metabolic causes.  We have already had lots of bloodwork to test for metabolic causes and so far everything has come back normal. 

Amazingly, her vision is GOOD and does not need correction, patching or surgery.  We heard this from our doctors here but coudln't rest in doing nothing, thinking her vision in her left eye was deteriorating.  We don't understand how her vision continues to be good?  This isn't the first finding though that was unexplainable (in a good way) to her doctors.  THE LORD IS WORKING in little Phoebe, and I think she will lead folks who want to explain everything by science to question another power at work!  As we see that unfold, we GIVE THANKS for the opportunity to show others Christ in such a unique way. 

The neuro-ophthamologist wants us to come back in a couple months and see a neurologist and geneticist at the Mayo Clinic, but we probably won't be able to.  We would rather have him and anyone he can pull together out there review and interpret what's already been done from her records and determine if they can do something out there that we cannot have done here.  The logistics of getting there were tougher than we expected, partly due to the terribly, horribly fussy travel day Phoebe had, the 4-5 inches of snow that fell on our 2 hour drive to Rochester on top of the already slippery roads there, the temperatures in the teens, and getting our other kids, dog and tadpoles off to friends' houses at the last minute when my mom had to cancel her trip due to a bad case of shingles.  Whew - again, despite the last minute setbacks and challenges we are thankful the Lord protected all of us, provided this opportunity free-of-charge to see a world-class physician, has healed my mom, and brought us closer as a family and to the Lord in depending on HIm. 

For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future".  Jeremiah 29:10-12

In his heart a man plans his course, but the LORD determines his steps.   Proverbs   16:8-10 


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Dec. 17, 2008 - Untitled Comment

Posted by Anonymous


What a journey you all are on! We'll continue to pray for little Phoebe and a diagnosis that can make sense of everything (if that's even possible!)

~Allison


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