Journey into the Unknown.....
Jun. 28, 2006
Soooo tired
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I think that I have written at other times about my son and some of his struggles... I am becoming more and more vocal about it for several reasons- one I need the support of other mothers myself, two- i know that other mothers need to know they aren't alone in this, and three- my writing - some of which will probably be public soon deals with a lot of it- soooo it will be public soon enough!
Bug has had several diagnoses over his short life of almost 5 years- ADHD, mood disorder Not otherwise specified, and sensory integration. all this means is that his poor little adorable body has a hard time processing things and that his moods are all over the place.
He doesn't sleep much. Doctors have no idea why as this is something that doesn't seem to fit with all the other diagnoses. Bug will often go to sleep around midnight and be awake by four for the day. Wide awake, ready to go. We have had him on some medication now for about 4 months to help with his sleeping, and it has helped some. But there are always those nights- they come fairly often and are very hard. Last night was one of them. He woke up at 1:30am and didn't go back to sleep (until 5 minutes ago- 10am) This isn't a power issue, he isn't coming to our bed, in fact he stays in his room and turns on his lamp and some classical music and plays legos until he either falls asleep again or the sun comes up. This was one of those all night times. I heard him raking through the legos several times and he even called out to me around 3:30 for some water. My husband left for work about 5 and he was still going at it. He finally called to me at 6:30 b/c the sun was up. I hate this for him. I know he has a hard time- but yet he keeps a good attitude about it. He has had a decent morning and just started falling apart. So here he lays, on the floor at my feet- a superman cape made out of a blanket around his neck, his batman pjs and his red converse high tops. worn out, tired from the demands his brain makes on his slight body and at peace. My beautiful son. How I wish I could help you.
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Comments
Jun. 28, 2006 - Untitled Comment
Posted by OurHomeSweetHomeschool
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Oh sweetie, I know exactly what you are going through... my little guy has some of the same issues but not quite to your extent. I will pray for your bug as I pray for my son. One thing that has been a help to me is to put up scriptures around the house that I can visually see and then pray for my son... my son has to be locked in his room at night (it is right across from ours) because he will just wander out and would even wonder outside... so on his door we have protection verses. Every night before bed I cuddle him on my lap and pray God's promises for healing over him. If I forget... he reminds me to "pray now" :o)
Father God, I lift up with precious mom and her sweet child to you today. Father I pray strength, peace, wisdome, creativeness and wholeness to this family. Father God, your word says each of us is fearfully and wonderfully made. That we are made in your image. Father I pray healing and restoration to this child... renew his mind and restore his behaviors to the way that you have designed them to work. Father in everything we give you thanks, because as a mother of a child like this, I too know that I can do none of this except by your strength and the leading of the Holy Spirit who lives with me. Thank you that you are growing fruit in this mothers life that she may share with others and bear witness to your name and goodness.
~Amen
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Jun. 30, 2006 - Untitled Comment
Posted by Tiany
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Heather,
I am so very sorry to hear about the struggles you are going through with your beautiful, precious little boy. I have a very strong willed, 5 yr old son who is just full of energy 24/7. I cant imagine how hard this must be for you but please know that I will be praying for the you and your family!
Big hugs coming your way
(((Hugs)))
Blessings,
Tiany
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Jul. 3, 2006 - Untitled Comment
Posted by writmm
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I am proud of your little fella for being able to do as well as he did at the fireworks show! Maybe ear plugs to muffle the sound would also help? Just a thought.
Thank you for your comment on my blog. For a long time, I thought to question God or 'fuss' at Him was unacceptable. Then several years ago, two very freeing things happened. I had a minister who told me that I was further along in my walk with God than those who never questioned and just blindly followed along. He said, it showed I was thinking, trying to understand and really trying to have a relationship (just like one would with any person). And then I did a Beth Moore study in my Sunday School class about David. David was so close to God, but he made very bad decisions and God still loved him. And he ranted at God and God still loved him. These two events have taught me that God can handle anything I can throw at him and still love me. Much as we do our own children who in their upset, tiredness or confusion of growing up can say and do things that hurt us to the very core. Thanks again for stopping by! God bless you and your son.
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Jul. 5, 2006 - Untitled Comment
Posted by 6blessings
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Dakota did the same thing. He would wake at about 3am almost every morning & be wide awake. I was at the end of a pregnancy at the time that it was worst & I was sooooo exausted. We put him on a gluten & casein free diet & the night wakings stopped. Now the only time he wakes at night like that is if he has too much sugar, even fruit. Apples are the worst of the natural sugars for him.
Im glad your little guy did better for the fireworks. we didnt even try them this year, just had a private show at home with 2 of our neighbours. 3 familys worth of fireworks is quite a few LOL. Dakota stayed in the living room & watched a movie, peeking out the window every few minutes. He tollerated it well that way & the other dc got to have their fun too.
Thanks for commenting on my blog. I'll add you to me friends list so I remember to check yours again. :0)
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