Hey!

 

Today has been another day of ups and downs, but we feel like they may be on to something.  They had decided to do a sleep apnea test, but then they consulted with a specialist and he came and talked with us.  He thinks she has severe reflux.  He explained that it could be causing her spells while sleeping and awake.  She does have a spell usually after she eats.  Harmony doesn't spit up, but a small percentage of babies with reflux don't have strong enough muscles to get spitup out so it goes back down which explains the nasal congestion.  So she really hasn't had a cold for 8 wks.  Her peditrician had talked with me about reflux, but her not spitting up had thrown us off.  They are going to start her on Zantac and another med tonight and try to take off the oxygen and see what happens.  They may do an upper G I on Monday if she isn't better, if the meds cause the spells to stop then we will assume that's what it is and continue the meds.  They didn't think doing an upper G I would be accurate, because Harmony has been on Pepcid since we got here Monday.  They give it to all babies on oxygen.  Now, with that said she still had spells on Pepcid when they took her off oxygen.  He said it would take about 24-48 hrs for the meds to start working so she may still have a few spells when they take her off oxygen, so it may be that she goes back on it a few times.  The next few days we will just watch and see what happens. She's still on oxygen now and in the PCCU.  I feel like they are listening to us and are truly trying to help her get better.

Leaning on the Lord,

Belinda