Thank you all for praying for my daughter!  We were able to talk to a different neurosurgeon, who was better able to explain why surgery is not a good option for my daughter.  My husband and I both felt much better about monitoring her condition rather than treating it.  The surgery would be far too risky due to the anatomy.  The MRI showed that despite the difference in the outside of the skull, internally, the blood flow looks either the same or even a little better.  Please continue to pray for her safety.  Since she does have a hole in her skull, a head injury would be very very dangerous.  They would like to find a noninvasive method to try and protect the hole in her skull.  They said that a helmet wouldn't help her.  So, please pray for wisdom for my husband and I as we try and keep her safe.  Also, please pray for angles to protect her little head   I wish I could better explain the situation.  The last meeting, the doctor went into a lot of detail about the anatomy in her brain.  All I know is that the clot is caused by her anatomy, not a blood clotting disorder.  We are also praying that the Lord would heal her vein that is clotted the same way he allowed the blood to flow through this other vein.  Our God is the great healer.  He has already done an amazing miracle in my daughter.  It is very humbling to watch her talk and run around the house.  I am so thankful that God has made my baby girl into such a beautiful person.  Thank you for your continued prayers.  This condition is much more rare than the doctors originally thought.  However, she is also doing better than they can medically explain!  Praise God!  It is very humbling to have the Lord intervene in our lives in such a personal way!  Whenever I think about the situation, the Lord always reminds me of the blind man.  "As He went along, He saw a man blind from birth.  His disciples asked Him, "Rabbi, who sinned, this man or his parents, that he was born blind?"  "Neither this man nor his parents sinned," said Jesus, "but this happened so that the work of God might be displayed in his life..."John 9:1-3  I know that God is glorified through my daughter's life!