Dec. 9, 2007
Some Christmas fun
Posted in Noah Updates
Well, I warned the other day that if I didn't post for a couple of days, it would be because I was having too much fun - and sure enough, we have been as busy as beavers trying to fit in lots of our Christmas traditions right now while Noah is home.
Friday we spent mostly just doing regular daily stuff in the morning - chores, homeschooling, etc. After lunch we dedicated the afternoon to making having fun, including making Christmas cookies. They weren't anything fancy at all. We took all-natural "ritz" type crackers from Whole Foods. The children made sandwiches with the crackers and natural peanut butter, then we dipped them in melted bittersweet chocolate and the dc sprinkled them with white, green and red colored sugar. (If anyone is looking for naturally colored decorations, we found a lot at www.squirrels-nest.com ) I knew that I had more decorations including some little white snowflake sprinkles but I couldn't find them anywhere. After some investigating we figured out that Hannah, in an attempt to be diligent, had gathered all of the Christmas candy and decorations and put them in a Walmart bag and tied up the top to keep out the little ones. (Not that Sarah would EVERY sneak anything LOL). She put the bag on a low shelf near the kitchen garbage can, where apparently someone bumped the bag and knocked it onto the floor. Matthew, in an attempt to be diligent, saw the tied-up plastic bag next to the garbage can and, thinking it was garbage, threw it away - the day before Thanksgiving, so it is long gone. Jeff and I were sick. Any of you who need to buy only natural treats know that they are very dearly priced and they are a big treat for our family. Since no one was at fault, (but both offered to pay for the treats) we decided to bite the bullet and replace the items. I'll go to Whole Foods when I take Noah to Greenville on Tuesday and am hoping they still have candy canes.
Anyway, the cookies were easy enough for everyone to do and we made a bunch of them. They are really very yummy. I'm planning to do gingerbread men Tuesday and frosted sugar cookie cutouts on Thursday. We'll see . . .
After the cookies were made and duly sampled we sat down and watched a really neat pyramid documentary from Netflix. We very seldom sit down and watch a movie during the day, so that was a treat in itself.
Yesterday we did a lot of work and had a lot of fun. Jeff and I lazed around in our room for the longest time just watching Noah sleep in the morning. The children kept tiptoeing in to watch him sleep too. (Who needs TV when you can watch a cute baby making sweet faces while he is sleeping??) I never did get around to our Great Playroom Clean-Up that I had planned several weeks ago, so we did it this weekend. The dc took turns choosing their favorite toys or sets of toys and removing them from the playroom. Once most were removed, we winnowed through the rest and got rid of all of the the things that were outgrown, no longer worked were missing pieces, etc. Then every single tub of toys was gone through and all of the pieces that didn't belong were duly sorted back to their proper places. (How do duplos end up in the Little People tub and Playmobil end up in the train tub anyway??) This was a big job, so we took a break late morning for milkshakes, then took a break late afternoon to go to the tree farm. We don't buy our tree there (we buy it from a stand that gives all proceeds to charity), but each child got to select an ornament. They took a hayride and played for about an hour at the petting zoo. There were bunnies, a calf, goats, sheep, etc. It was so nice out - mid 70's - and they had a great time running around and enjoying the animals. Noah was particularly impressed with the calf, but overall he has seemed very tired and spent most of the day with his head on someone's shoulder. He didn't really try to pet the animals except for the calf whose nose seemed very appealing to Noah.
We headed home to continue working on the house, then when it got dark we went to a local Children's Home for their annual Christmas program. They had a huge petting zoo including tiny baby bunnies which Noah seemed to like, horse-drawn carriage rides, and a great live Nativity presentation. It had cooled off just enough to make the bonfires and hot chocolate appealing and we had a wonderful time there. My wonderful husband decided that I had worked too hard all day to go home and fix dinner, so we wrapped up the day with a trip out for pizza.
We got every last bit of the playroom done today but didn't have time to decorate the tree. Jeff doesn't have to go work until mid-afternoon tomorrow, so we're planning to have a special breakfast of sweet rolls, bacon, eggs, and OJ then decorate the tree and watch a Christmas video. The children are obviously very excited. :-)
Noah has really taught us to seize every moment and to do the most important things first. We don't know hour to hour if he is going to be well or headed to the hospital, so it has been VERY important to me to get these special traditions done as early as possible. It makes me feel better that if he does end up back in the hospital this month, at least the other children wouldn't have been robbed of their special annual activities. We also finished wrapping all of the Christmas presents except for a couple of items that haven't arrived yet.
Noah has been very subdued, and we aren't really sure why. He was wide open the day we came home from the hospital but hasn't wanted to do much or play much since. He spends most of his awake time snuggling with someone, usually with his head down on their shoulder. He played a little bit this evening while I wrapped birthday presents. To be honest, I was hoping that the petting zoo visits and hayride/carriage ride and the Christmas lights would be big treats for him, but he was very solemn most of the time. When a little baby bunny was placed on his lap he sat up and patted it a few times, then wanted to lean back again. He briefly patted a donkey from the nativity scene, and patted the calf's nose, but apparently didn't feel up to doing any more than that all day yesterday. He doesn't want to eat either. He takes food eagerly into his hand and waves it around, then drops it. The only exception was the piece of Christmas cookie we gave him after lunch today - that little guy really enjoyed the chocolate and we loved watching him relish it. I'm hoping that he was just tired and will perk up this week. There isn't anything so clearly wrong that we can take him to the doctor, at least at this point. If he is getting sick, I am sure we will know all too soon.
I am adjusting to his medication schedule bit by bit. We did have to turn around on our way to church and return home because I forgot one of his pumps. It is a major mental workout for me to keep on top of everything and it was very challenging to time yesterday's outings so that we wouldn't have to change between TPN and IV medications (different pumps) while we were away from home. I did have to switch over and then back again during church today, but it was worth it to be back in church as a family!!
Thank you all so much for your continued prayers. I just can't tell you how good it felt to do these special things as a family this weekend. I'll never take these special little moments for granted again. I can honestly say that there is no where on earth I would have rather been than right here watching my children get chocolate all over their hands and faces, or squealing over the adorable animals, or exclaiming over the Christmas lights during our carriage ride, or or finally collapsing into bed and watching a great old black-and-white movie with Jeff last night.
Love,
Kate
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Comments
Dec. 9, 2007 - You are a blessing!
Posted by Anonymous
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You bless me on a regular basis with your faith and praises in the midst of all you experience, but today it was especially nice to receive this uplifting update! My mom attends New Life Church and they have been terrorized today, so my day has been spent with an ear tuned to the tv for updates and on the phone talking to relatives who couldn't get a hold of my mom. Thanks for the Christmas cheer! I really needed it!
JA in CO
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Dec. 9, 2007 - Untitled Comment
Posted by Anonymous
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Praises! So grateful to "hear" the joy in your "voice" tonight. May tomorrow bring another day full of the delight and happiness of a family to each of you. So grateful to God that you had that today.
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Dec. 9, 2007 - Hi Kate
Posted by Lachney1
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I so enjoy each and everyone of your posts. Sometimes they make me laugh and sometimes they make me cry. My girls know all about Noah and we pray for him daily. I appreciate you and Jeff keeping us up to date on his progress, but also on your whole family. Reading your posts encourages me in such a way. I try telling my husband how I am so amazed at the faith that your family has in dealing with all these circumstances, that you are going through and I just can't keep the tears from falling. You are truly loved by God. I love reading how God works out the small details in your lives daily. If someone wasn't a Christian reading your posts, I have no idea how they could say that there isn't a God. I have seen God answer the smallest of prayers in your entrys. He is such an awesome God. He has answered prayers in our lives too. Your children might get a kick out of this answered prayer for us. My mom's cat, Molly, came up missing on Oct. 19. There was no sign of her anywhere. We prayed and cried and begged God to bring her back or just to let us know what had happened to her. Almost a month later, my mom and my girls were taking a walk, a different way than they usually go. They got to our road to turn on to and my daughter Faith saw a black tail. She called out, "Molly?" and Molly lifted up her head. At that exact moment, my dad came by in his car and stopped. He brought Faith and Molly back home with him, while the others continued walking. On that day, my girls got to see that God answers prayers, even the very small ones. We don't know what happened to Molly the whole time she was gone, but I believe that God was watching out for her and leading her back home during that time. Molly is no longer an outside cat, but is our little baby now. She is so sweet and loving. Even my husband, who can't stand cats, likes this one. He holds her and plays with her too.
Anyway, thanks so much for the encouragement that you put in your posts. I especially love your thankful lists. I hope that you and your family have a wonderful Christmas and a Happy New Year.
Blessings,
Penny
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Dec. 9, 2007 - Glad you are having fun.....
Posted by Anonymous
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I was started to get worried because there hasn't been any news. I am SO glad to hear you are having fun !! your family deserves it, ENJOY !! God Bless !! Jessica in Fl.
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Dec. 9, 2007 - Awesome...................
Posted by jkiessling
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PTL for traditions and memories and chocolate and little faces.
We will pray that maybe Noah was just a bit overwhelmed.............and Lord willing - nothing else!!!!
Thank you for the updates! Have a good weekend.
Hugs and Blessings from the Kiessling family from Fresno, California
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Dec. 9, 2007 - Prayer for Noah and Your Family
Posted by Anonymous
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Dear Este Family:
I just wanted to let you know that I have been praying for Noah and the family but I belong to 3 email prayer groups and Our Church prayer chain and I have been sending the link for the blog to all of them.
God bless you and keep you always in His gentle cair.
Sincerly Yours In Christ Jesus the Messiah
Jackie Schlageter
Romans 1:16
A Jew for Jesus
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Dec. 9, 2007 - So wonderful
Posted by Anonymous
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I enjoyed this post so much. All the others have pretty much said everything. I do not respond much but I do read your posts everytime a get a notifcation and I pray. I feel like a part of your family. Thank you for allowing me to feel that. I do pray you have lots more of these kind of days.
God Bless,
JoJo in TX
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Dec. 9, 2007 - Untitled Comment
Posted by Cindee
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Noah seems to know how to do the most important things first--snuggles and love, then chocolate :-). If he is conserving his energy, it sounds like he's really good with priorities. You did a huge amount of treasured holiday adventure in one weekend. I'm impressed. Over time may the memories of the hard times fade behind the love and joy of your holiday celebrations.
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Dec. 9, 2007 - You are an inspiration!
Posted by Anonymous
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Kate,
I love reading your blog and my children all pray for Noah. You have inspired me to put aside time this week to do cookies. Thank you for reminding me what is important.
Blessings from Texas,
Jennifer
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Dec. 9, 2007 - Rejoicing with you...
Posted by DonnaC
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Rejoicing with you...on such wonderful memory-making days! Continuing prayers, of course, for "our" Noah.... I think having a special needs child totally changes one's outlook. I know that I grew so much during my son's 2 year life and it really changed the way I thought on even little day-to-day things. Life really is too short and we do need to grab the joy in each moment, rejoicing in the Lord Who gives us each moment.
{{{hugs & prayers}}}
In Him,
Donna C
http://donnac.com
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Dec. 10, 2007 - Untitled Comment
Posted by Anonymous
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What a great family weekend you had! I love your perspective to do the important relational things first, that is such good advice. Praying for many more fun family times this Christmas season, and especially that you all will enjoy your tree decorating party tomorrow!
Love and blessings,
Pam in SE MI (TOG)
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Dec. 10, 2007 - Untitled Comment
Posted by Hallmark
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We are continuing to remember you and Noah in prayer. Such a sweet narrative today, very heartwarming to read--thank you for taking the time to write it down. It is so important not to take anything for granted.
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Dec. 10, 2007 - Untitled Comment
Posted by Anonymous
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Kate...you are amazing...that's all I can say...and your family is lucky to have you!
Praise God for all His wonderful blessings!
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Dec. 10, 2007 - Inspiration
Posted by Anonymous
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You are such an inspiration! I'm worn out and ready for a nap after reading your adventures this weekend!
Is Noah on additional IV fluids? I'm wondering if that would help "perk" him up some.
:) Melody
www.caringbridge.org/visit/natalieholmes
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Dec. 10, 2007 - Untitled Comment
Posted by Kelly
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Kate,
God is so gracious in giving us those fun and precious seasons of the year, including Christmas! I am so very glad that your family was able to have time to spend together and celebrate. I will keep extra prayers going that Noah will not come down with anything. Love,
Kelly
http://mamarussellsblog.blogspot.com/
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Dec. 10, 2007 - Untitled Comment
Dec. 10, 2007 - Noah Update
Posted by Anonymous
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Kate, Jeff and family,
So happy to hear how much family time you are having with Noah and all the children!! So nice to sense the excitement in your heart Kate! God Bless you all and a very Merry Christmas to your family.
Praying for you.
Janet
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Dec. 10, 2007 - Untitled Comment
Posted by icecastle
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I'm so glad that your family got to spend time together doing so many fun things!
God bless!
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Dec. 11, 2007 - Thinking of you
Posted by Anonymous
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Kate, as I read Sunday's post, I sensed a real poignancy in your heart--all the enjoyment, all the family fun times, tempered by Noah's more restrained reactions to things. Feeling that poignancy called up for me the memory of the weekend we realized what was probably going on for my redhead--still many weeks before a firm diagnosis or even any specialist visits--just the time when all the facts came together and I became pretty certain what they would lead us to as a diagnosis--and suddenly I saw my daughter in a new light, through different eyes and a changing heart--and every experience became more precious, because I no longer assumed we would be sharing them together for as long as I had always thought. I know you realize that every moment is precious--and I know you and your family have always "sucked the marrow" out of all you do--it was just so much more apparent in this post than in some. Sorry to run--I need to get back to her. Hope the news from today's visit is good. Love from Shriners (I was looking up at windows yesterday wondering which had been yours---)
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