Posted in Noah Updates
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As you can tell from my lack of blogging, Noah seems to have recovered from whatever caused that fever last week. We never got a call to bring him back so the cultures must have been negative. We are very thankful for this! Hannah and Jeff got to go on their trip and had a wonderful time. She will blog about it soon. Even though Noah's labs evidently look good and his fever is gone, he just doesn't feel good. He has taken to walking partway across the room, then dropping to a crawl, then just lying down on the floor. He has times where he is more like himself, but overall he just seems weaker and wearier. I don't know why, and of course he can't tell me. It could be that he just feels bad from fighting the C. Diff for so long.He has a nephrology (kidney) appointment tomorrow in Greenville and I had hoped to take him back to the zoo - with my camera this time - but now I'm not sure if he will even feel up to it. I'll just need to play it by ear, I guess. When he is feeling good, he has been up to some really cute stuff. I've been trying to teach him the sign for "bubbles" since September, and last night he finally did it! He LOVES bubbles so much. We just got him one of those "no spill bubble tumblers" since SOMEBODY has a wee control issue over who holds the bottle of bubbles LOL. His newest passion is "helping" us fix his TPN. Fixing his TPN and meds every night generates an enormous amount of rubbish. Some has to go into the sharps container, but Noah takes care of the rest. I put him in his high chair next to me and toss each piece of (non sharps) trash on his tray. He leans over and drops it into the wastebasket. :-) It isn't anything yucky - just wrappers and flush syringes and caps and plastic vials etc. He is tremendously proud of his contribution, even if he misses the trash can most of the time! I'm thankful that I hit on the idea to let him manage the trash as he had been thinking that he needed to take over the "sharp needles and glass vials" department and was being a stinker every night at TPN time. This whole business of throwing things away has evolved into a hobby for Noah. We've pulled his little soccer ball out of the kitchen trash can five times today. He put a fork in the sharps container last week, and yesterday I caught him hustling in and out of the dining room. He was very diligently emptying his drawers of medical supplies and throwing all of them away in the kitchen. As I look around I'm even seeing a set of tubing and a couple of heparin flushes in the wastebasket at my desk. Hmmmm . . . anyone know of a child lock for wastebaskets?? I'm not complaining. It's great to see him up to some "typical" toddler antics. Besides, he is SO cute when he does it. He gets this incredible look of grim determination on his face. I've got my camera on the desk and am hoping to photograph him in the act. We've been asked for details on Noah's cooling vest. We are getting it from www.silvereagleoutfitters.com If you need a vest like this, you can call customer service and they will put you in touch with the right person for a custom made child sized vest. They are expensive (Noah's will be $65) but we hope that the vest will allow Noah more freedom outside. We haven't sent in the final order for ours but are hoping to do so soon. We've also gotten some questions about our homeschooling company. Jeff and I own www.handsandhearts.com . We produce hands-on living history kits and also sell a variety of other homeschool and family products. We aren't a huge company because we only want to sell carefully chosen products that we love and can stand behind personally. I don't want to turn this into an ad, but I do want to let you know that if you are interested in products like this, you can go to our website and sign up for our newsletter. We used to produce a really long newsletter each month and had to stop last year when Noah got sick. We are starting back up again this week! The newsletter will only have one or maybe two articles, but each issue will contain a discount code for subscribers only. This week we will be featuring a number of our favorite things as well as some awesome new toys and puzzles from Lauri. Anyway, if you're interested, you can sign up on our site.  If you know anyone else who would be interested, feel free to share our link. We also offer an affiliate program for people who have blogs/websites/newsletters. This allows folks to earn a commission (money or free products) by referring customers to our site. If you are interested in something like this, you can email our office manager James at affiliates@handsandhearts.com and he will send you an application and details.Whew - we've made a point of not pushing our business on this blog and now I feel like I just did an infomercial LOL. I'm not expecting anything earth-shattering from nephrology tomorrow. It's just kind a routine check, but I'll let you know how it goes. Blessings, Kate |
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