|
Jun. 21, 2008
We are home
Believe it or not, we are ALL home! Noah had his first test, which was an upper GI with small bowel follow-through. He's had this test before, and it consists of putting barium in his tummy via his g-tube, then watching it as it works its way through his entire digestive system. Every time he has had this test, it has taken about 10 - 14 hours or so for the barium to move all of the way through. That amount of time seems reasonable, since if he eats something it can be days before we see it in his diaper. Even at Scottish Rite, it took 18 hours for grapes to pass through. (Sorry if this is too graphic!)
When he had his upper GI at Scottish Rite, it only took 2.5 hours!! Because the point of these tests was to figure out ways to INCREASE his motility, and this test reflected very fast motility, there was nothing to do or fix. The test just didn't show any problems, so nothing was done to find solutions. We don't believe this was an accurate test at all. It stands alone as a single unusual result when every single other indicator of motility has shown problems. He isn't handling food any better, he isn't passing things any faster, etc. We have no idea why the test went the way it did. I wasn't there to ask questions. I know the antibiotics he was on cause diarrhea and I can't help but wonder if that caused such a rapid test. Jeff was told the results, told they were being discharged, and that was that. By the time I got there on the shuttle, the papers were all signed and he was discharged.
I'm not at all sure where this leaves Noah. I guess it doesn't change anything. We'll follow up with our great GI doctor here and maybe he can shed some light on the results for us. I would love to think that this means that Noah could go back to tube feeding, but it doesn't seem terribly likely in light of all of his other symptoms.
The bottom line is that we are VERY happy to be home!! We got in about 8:30 last night and it was wonderful to be in our own house and our own beds. I have to run and go the grocery store, the dairy, etc. and start trying to get everyone settled back in. :-) I have more to share but can't take the time right now. I absolutely promise to update as soon as possible.
Blessings,
Kate |
| �
Post A Comment! �
Send to a Friend!
|
Comments
|
|
|
|
Posted by 
Posted by 
Jun. 21, 2008 - Welcome Home!
So glad you are home. We will continue to pray for God's guidance and provision over your family.
I am amazed with your strength and endurance. It is a true testiment of your faith in our Savior.
Jennifer in TX