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Aug. 24, 2009
home!
We got home last night too late for me to post. The surgery went fine but Noah was in a good bit of pain. After all, he had a broviac put in, taken out, and a new one put in all in the same place in just one week. He was clingy enough that I couldn't blog, but do remember that I can almost always tweet and you can see the tweets in the right hand margin of the blog. No email updates go out for tweets, but if you are ever really hungry for news you can check the blog for tweets. :-)
The decision to go home was sort of a last-minute one. Noah perked up after getting some morphine, his line was working, and he was perfectly stable. No TPN had been ordered for him, so staying in the hospital would have meant another night of just glucose. We had TPN at home so it just seemed best to bring him home and get him on full nutrition, and boy were we glad to go home. This was his shortest stay ever, and it was only so short because SO MANY people were willing to go above and beyond to expedite things for Noah. It is such a blessing to have so many truly brilliant medical professionals who all have Noah's best interests at heart and who are willing to do whatever he needs.
Today was great. I spent it just really enjoying the children. I took Sarah, David, and Timothy (the younger bunch) out for the rare treat of a Happy Meal - they have Lego Racers for the boys and really nifty American Girl kits for the girls. Of course I got a girl meal so Sarah could have 2 toys LOL. I tried out a new brownie recipe with a bunch of them and spent a LOT of time rocking Noah and Mary Faith and singing to them. I had them both on my lap at one point, and had a head on each shoulder. Sarah walked by and stopped to look for a minute, then sighed and said, "You are SO lucky! You get TWO babies! I wish I could be you!!" It was just really adorable. :-)
While things were great overall, there were two little rain clouds on the horizon. Mary Faith seemed really warm to me when I got home last night, and sure enough this morning she was running a high temp. I took her right in to our doctor hoping that it was something non-contagious like an ear infection. Nope. It's just one of those non-specific but contagious viral bugs - you know, the kind that Noah can't afford to get. The poor little thing has had fevers over 104, but she perks right up when her temp goes down with medicine. All she needs are fever meds, lots of drinks, and galores of snuggles - but if Noah pops a temp like that we will be right back in the hospital, so please pray that he is protected - in fact, that we all are!!
The second little cloud is Noah's new line. As much as I hate to say it, we absolutely battled that thing tonight and came within an inch of going back to the hospital. When it was time to start his whole TPN routine, we had to draw from the line - the last thing to go in each day is pure ethanol, and we need to pull it out before we start putting things in. Well, the line would not draw AT ALL. Not even a smidgen. We called our nurse who suggested lots of position changes, non of which worked. She then suggested trying to push in some heparin. I got it in, but only by pushing so hard that it really hurt my hand. We locked that heparin in the line, then a few minutes later I was able to flush in more heparin with ease. Problem solved, at least for now. The big issue is that lines are usually locked with heparin so they won't clot. Noah's line is locked with ethanol which is crucial in helping fight line infections. Some lines are really tempermental, and we are praying that this line can tolerate the heparin locks without clotting issues. We sure would appreciate your prayers along those lines. (OK, I honestly did NOT mean to make a pun there - sorry!)
Everyone is finally settled for good, and our Peanut Chicken is minutes away from being ready, so I am going to go have my long-awaited date night with Jeff.
Blessings,
Kate |
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Aug. 24, 2009 - :-(