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Nov. 3, 2009
Tomorrow, Tomorrow, I Love Ya, Tomorrow!
So why do I have that Little Orphan Annie song stuck in my head? Can you guess? Yes, we are going home tomorrow!
Noah is still far from 100%. Even after two infusions of Venofer, his hemoglobin is an uninspiring 7.8, which is just very low for him. On the other hand, his reticulocyte count, which measures baby red blood cells, is trending up. This means his bone marrow seems to be trying to "get it in gear" and make more red blood cells. We'll go to the Hematology/Oncology clinic Monday to re-assess whether he needs more Venofer or some blood.
In addition to the hemoglobin issues, his trigycerides are still elevated, and his liver enzymes went back up - but none of these things warrant keeping Noah here any longer.
We are both so ready to be home. Just being home can be such good "medicine," and I'm hoping Noah will perk up and feel better overall in his home setting. Due to influenza precautions, no children 18 or under are allowed to visit. I haven't seen any of my other children for two weeks and Noah and I both really miss them.
In case you missed my tweets yesterday, we finally found out that this illness was NOT H1N1. This is a disappointment, as H1N1 would have been a handy explanation, and it would also mean that Noah had put that behind him already. While we put our trust in the Great Physician, it would be dishonest of me to say that this illness wasn't very frightening and unsettling. My own earthly, finite mind craves an answer and the reassurance that this won't happen again - but we aren't getting those answers this time. There is plenty of speculation, but all anyone can really say is that they don't know why Noah got so sick, they don't know why he got better, and they don't know how likely it is that he will do this again. Ugh. Those are dark thoughts, and Jeff and I are doing our best to focus on the positives: that Noah is doing so incredibly better, that he is coming HOME tomorrow, and that we know the One who does know all of the answers.
Please keep praying for Noah to get better and stronger, for a smooth transition back to home (he is still pretty weak and somewhat irritable), and for a loooooong stretch of health and wellness! If I don't get to update tomorrow, then I will update as soon as I can - I'm planning on being really busy at home doing all of the wife and mommy things that I love so much. :-)
Blessings,
Kate
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Nov. 3, 2009 - Better
"Have mercy on me, O God, have mercy on me, for in you my soul takes refuge. I will take refuge in the shadow of your wings until the disaster has passed." Psalm 57:1
Love in Christ,
C.O.L.E.'s Foundation
(Caring Openly, Loving Eternally)
www.colesfoundation.com
Email: sandy@colesfoundation.com
Sandy Daron