Our Quiverfull

Nov. 11, 2009

Mad as a hornet

Posted in Noah Updates
You all are not even going to believe this one.

We got to the hospital and got settled in, then headed off for a BUNCH of procedures in the treatment room.  Noah had to get cathed instead of getting a bag urine specimen because he has had gram negative bugs grow in his urine in the past and we had to be sure we had a sterile specimin in case the gram negatives in his blood had come from a UTI.  It is unbelievably hard to cath him, and he is usually sedated in the ER for this.  Up on the floor they can't do sedation, but he did get some ativan to help a little.

Noah has a very tight foreskin which means that they are just working blind when trying to cath him.  After almost 30 minutes of true agony the ID doctor came in and told us that she had called the lab in Greenwood to ask some more questions about his culture.  Turns out that, "oh, oops" Noah is NOT growing gram negative anything.  Oops.  His culture is growing a gram positive bacteria that is almost always the result of a contaminated specimen - in other words, the bacteria almost certainly isn't in his blood stream at all but is due to a speck of dust. 

ID said that we could go home.  Like I keep saying, Noah doesn't really look bad.  They stopped trying to cath him but did have to go ahead and get peripheral cultures (blood out of his arm), broviac cultures, and a bunch of other labs - but since he's looking OK we were given the go-ahead to go home and watch him with the understanding that if gets worse OR the new cultures grow something, then we come right back.

In the meantime, my baby was truly and literally tortured for 30 minutes because somebody wasn't paying attention to his or her work in a lab somewhere.  Even the really seasoned and always calm nurses were traumatized by watching Noah go through this. It was horrible.

So, yeah, I'm feeling a little conflicted right now.  I'm truly thrilled and stunned that we are going home, and I am heartsick and furious that Noah had to suffer like that for nothing.  He was in that room in pain for just short of an hour total.  He is covered in petechial hemorraging (little burst blood vessels all over from the screaming) and looks like he'll have bruises all over his thighs from being held while he fought so hard.  His little boy parts are raw and hurting.  Even when we were trying to do "no ouchie" procedures, he was so traumatized and terrified that he was screaming and shaking.

All because of a mistake.  This would have been agony enough if we had truly needed to do this, but it is unbearable to know that he didn't need to go through this.  Anybody need an object lesson for your children on why it is important to always do our best and always pay attention????


To top it all off, Noah just got a new Thomas DVD.  He was holding it in the car on the way here and had a meltdown because the package contained an ad for some new Thomas that you put in a tunnel and fix or something.  He decided he had to have that toy right now (sound like a three year old?).  Jeff and I were trying to calm him down and making a mental note to try and find this toy for Christmas or something.  Well, the Child Life worker brought that new Thomas DVD into the treatment room for Noah to watch.  It had a commercial for the toy, of course.  When we were done and ready to leave the room, I told Noah it was time to go to the prize box - and in the next breath said "Oh, and let's get your new Thomas too."  I MEANT let's grab the new DVD so we don't forget it, but Noah thought that the new TOY was going to be in the prize box.  Let's just say I am no longer a contender for the Mother of the Year award.  Talk about adding insult to injury - and I was so shocked by the news of the lab error that it took me a few minutes to figure out why he was sobbing instead of picking out a prize.

Fortunately Noah is very resilient and forgiving.  Child Life loaded him up with goodies which he is enjoying, and he is happy that he is going home.  So am I.  I just want to go home and hold him and rock him and pray that he will forget this all.

We'll be leaving as soon as we get the paperwork. 

Blessings,
Kate
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Comments

Nov. 11, 2009 - So sorry...

Posted by Robin
How awful that Noah had to go through all that... and that you had to stand by and watch the torture. I'm so sorry... I would be very upset too.

Praying that the Lord will calm your spirit and surround Noah with comfort also.

Robin M
COLE Prayer Team
www.colesfoundation.org
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Nov. 11, 2009 - Untitled Comment

Posted by Niki@ruralwritings
Oh I would be mad as a hornet too!!! Poor Noah! But Praise God that he is indeed not growing anything nasty and is ok to go home.....at least there is great comfort in that!
Have your cry and carry on!
Hugs
Niki
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Nov. 11, 2009 - It's shell in lexington

Posted by Anonymous
Oh...my...I'm speechless and in tears for poor Noah. (and Mommy too for having to watch your baby go through that for nothing!) Hugs and prayers for comfort and peace. I know that it's hard not to be mad when hospitals and labs make a mistake, I've been there too! This too shall pass my friend, just be thankful that the traumatic part is over and you get to go home with your little boy and spend the evening with your family!
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Nov. 11, 2009 - so sorry

Posted by Anonymous
Oh my! I am so sorry that you both had to go through all of that! sending lots of hugs your way

Erica in NY
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Nov. 11, 2009 - Untitled Comment

Posted by Anonymous
So sorry Kate. I know this was so hard. Glad you are at home and can cuddle. Praying you will be renewed and refreshed as it is so hard to see your little one go through something like this.
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Nov. 11, 2009 - Untitled Comment

Posted by Anonymous
Kate, I don't think I've ever commented, but I have read for a long time and have prayed for Noah and your family, too. This brought me to tears. It is just too much. Too much for Noah to suffer through - too much for a mom and dad to watch. I would be furious, too...that's not to say that anything can be done about it nor that there is a fix. I know your heart will heal and you will be able to forgive, but goodness - I just grieve for you and for Noah right now over unneccessary pain. Necessary pain is bad enough. Just acknowledging your sorrow and anger and frustration - and praying that somehow, God will make this easier for you all.

Holly
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Nov. 11, 2009 - Untitled Comment

Posted by Anonymous
Sorry to hear about your troubles. I accidently put Oil of Oreganol in my daughters ear at 3 in the morning thinking it was garlic. We ended up taking her to the ER because the pain was so bad. Mistakes happen and I was so tore up for putting my child through extra pain. Im sure the lab specialist is feeling terrible. I hope you have peace tonight and lots of Snuggle time. Praise God Noah is going home.
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Nov. 11, 2009 - Untitled Comment

Posted by Anonymous
(((Kate)))

Oh, sweetie! I'm sure it doesn't help right now at all, but try to hold fast to the knowledge that the Lord isn't surprised by this horrific injustice. I am praying that you find peace in that once you are able to stop quaking from the shock. Cuddle that precious boy while we all pray that there truly is nothing to grow in the cultures and for Noah to recover quickly and with little to no memory of this trauma. Praying, too, for Noah's nurses.

Much love,
Marsha (TLT)
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Nov. 11, 2009 - a broken heart for you & Noah

Posted by Anonymous
Dear Kate,

Lying here STUNNED that you both just went through this. Stunned.

Praying, meekly, that

"The Lord be with your spirit. Grace be with you (all). ~2 Timothy 4:22

and that (somehow!!) by His GRACE, through Him, you will be able to recover from this. I'm so very, very sorry.

~HveHope

PS: I will be reading this to our 13, 10 & 9 y/o's as a lesson in always doing your best.
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Nov. 11, 2009 - poor Baby!

Posted by solidrockhomeschool
I could not even imagine watching one of my boys go through that and have lasting reminders too and have it all be for naught! I am glad he is all right though! What Thomas toy is he wanting? Please email through HSB. Thanks!

Praying for you all!
Rachel & the fam
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Nov. 11, 2009 - My heart hurts for both of you

Posted by Anonymous
I am glad you are able to go home but so sad over what all of you had to endure.
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Nov. 11, 2009 - Untitled Comment

Posted by Anonymous
Oh, my goodness, Kate. Go PUNCH something! Honey, my heart is breaking for you and sweet little Noah. I feel SO bad that it was all for nothing and the word "oops" escaped ANYONE's lips. Oh, gosh. I was gritting my teeth reading that.

I'm mad right along with you, and I wasn't even there.

Once again, you are SUCH an amazing woman and Noah is SUCH an amazing little boy. *I* want to buy him that little Thomas whatever it is just for going through all of that.

(((((((hugs and tears))))))
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Nov. 11, 2009 - Untitled Comment

Posted by Anonymous
Oh, my goodness, Kate. Go PUNCH something! Honey, my heart is breaking for you and sweet little Noah. I feel SO bad that it was all for nothing and the word "oops" escaped ANYONE's lips. Oh, gosh. I was gritting my teeth reading that.

I'm mad right along with you, and I wasn't even there.

Once again, you are SUCH an amazing woman and Noah is SUCH an amazing little boy. *I* want to buy him that little Thomas whatever it is just for going through all of that.

(((((((hugs and frustrated tears))))))

Joy Horton, OH
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Nov. 11, 2009 - Breaks my heart

Posted by maureensk
Kate,

My heart is breaking for you, the nurses, and especially Noah. I'm so sorry that he had to go through all of that. I hope the lab person is made aware of the consequences of his/her carelessness. You still deserve a mother-of-the-year award!
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Nov. 11, 2009 - Untitled Comment

Posted by Anonymous
Kate, I have no words. This is unbelievable!! Relief that Noah is not super sick, but just sick at what he had to endure. I am so, so, so, so sorry, and praying Noah has a short memory!

Love and blessings,
Pam in SE MI
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Nov. 11, 2009 - poor Noah and poor Mommy heart

Posted by Anonymous
Oh Kate, my heart is so saddened for you. I will indeed share this with my children so that the lesson may be learned here. Praying for you all.

Cindy
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Nov. 11, 2009 - OH!

Posted by Anonymous
Kate ~ Iam praying right now and will keep on. Praying Dear Father that your Spirit will wash over Noah your deep peace. That this trauma will erase from his mind, body, and soul. Heal the pitekia and bruising quickly Jesus, and most of all, in your graciousness and mercy please heal and defend Noahs body. May he have a long stretch at home. So thankful for this evening to be going home. Wash over Kate, healing from this terrible experience. Bring your calm, peace, and restore her from this shaking. Praise you Noah can go home tonight, please bring rest to their home and healing. Trusting you now ~ Amen.
I can hardly believe this happened and I weep b/c of this happening. Iam so sorry. Praying ~ Cat
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Nov. 11, 2009 - So sad...

Posted by Anonymous
... to think little Noah (and you) had to go through this on top of everything else.

I think of you and your little boy often, and trust he will find comfort at home, cuddled by his Mommy.
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Nov. 11, 2009 - Untitled Comment

Posted by Anonymous
I am so sorry. I cannot express how horrible I feel for all of you and him, that he had to go through unnecessary pain over a mistake. I am praying for all of you--for the ability to forget for Noah. For your hearts, too, as you deal with this and step forward into yet another day (praise God that there is another day! I just thought of that when writing it--what a precious gift from the Lord, whose mercies are new every morning--that you have another day with precious Noah).

I know that I don't have the right words to say, but the Lord does and I am praying that He would fill your heart with His love and comfort at this time.

love
Corrine
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Nov. 11, 2009 - SO SORRY!

Posted by Mama9blessings
Oh, KATE! I am SO sorry this has happened!

My mama's heart is hurting for you, for Noah, and yes, I'm taking up an offense and UPSET, too! Goodness!

Praying that he will recover quickly from this--and yes, that ALL of us will learn the importance of attention to details!

HUGS!

Trisch
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Nov. 11, 2009 - Crumby ...[Crummy? - LOL]

Posted by Anonymous
...but I'm trying to focus on the good news part that he's home again. I know about the error part. BT; DT (won't bore you w/ ALL the details, but involved, full body x-rays, bone scan, sedation (NPO 2 yr. old, cath, IVs...), etc. yup, been there. GRRR.. OK, get to go home to DVD...Thank you Lord.

Hmmm...what Thomas toy?
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Nov. 11, 2009 - Untitled Comment

Posted by Keeley
Oh! Oh! I'm so upset that Noah went through this because someone wasn't paying attention. Oh I'm trying so hard not to be angry, because who knows what's going on in that person's life right now - don't want to judge - but OH! I'm upset.

Poor little guy. Please give him kisses from us.
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Nov. 11, 2009 - Untitled Comment

Posted by Anonymous
oh Kate, I feel so badly for you guys at the moment. :O(
Praying for you and yours (from over in New Zealand)
Michelle
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Nov. 11, 2009 - Untitled Comment

Posted by Kate
That would have infuriated me, as well. It's hard enough for Noah to go through all he does, but to have to endure MORE pain for nothing? Ooohhh, that's just WRONG!!!

I have a son with spina bifida who needs to be cathed 5 times a day, and before we started cathing him, I used a steroid cream on his foreskin to loosen it so it could be retracted easily. It took about 1 week of twice-daily application of the cream (that is a painless thing, truly) and then cathing was no longer the stressful "flying blind" thing it had been. I don't know if this would be an option for you to try with Noah, but it could make cathing him, when necessary, less traumatic, so I thought I'd mention it.

I'm so glad you are home and Noah isn't ill with a gram negative bug, but my heart is sad over what you and he went through.
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Nov. 11, 2009 - Prayers have been headed your way

Posted by Ben E. Brady - San Marcos TX
Hi Kate,
Just wanted to let you know that I've been praying for Noah for quite a few months now and will continue to do so. Take care and always know that the Lord is with you and Noah as well.
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Nov. 11, 2009 - Untitled Comment

Posted by Anonymous
How AWFUL!!!!! I would be steamed too!!!!!!! I hope the rest of your day went better.

Diane in CA [SHS]
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Nov. 11, 2009 - Untitled Comment

Posted by Anonymous
Poor baby! I continue to pray for Noah!

Shari
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Nov. 11, 2009 - Untitled Comment

Posted by narnialover95
Oh, poor Noah! I'm so sorry he had to go through all of that for nothing, but I am glad he is going home. I'll be praying that he stays home for a long time.
God Bless You,
Taylor
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Nov. 11, 2009 - So sorry

Posted by Rachel
I'm sooo sorry. Mistakes happen, but really, come on. That's so wrong. After watching my 4 week old scream for 1 hour as they used every available vein trying to start an IV, I can relate. Hang in there
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Nov. 12, 2009 - Untitled Comment

Posted by Ruby from Ky
I am so sorry that Noah had to go through such a horrible time when it wasn't necessary. I pray that he will forget it soon. Love, Ruby
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Nov. 12, 2009 - Noah and family

Posted by Anonymous
Sorry to hear of the mistake, but glad it wasn't as you thought. In all our prayers. I think you earn mother of the decade. K
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Nov. 12, 2009 - Untitled Comment

Posted by jewell
I SO understand! I'm seething right now because of a similar circumstance..
We are relieved it's not the nasty bacteria. And understand your horror and frustration!
Will pray for emotional healing for you and Noah.
hugs and prayers
Monique
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Nov. 12, 2009 - So sorry for Noah!

Posted by Anonymous
But...what if the culture really was growing negative rods and the power of prayer changed everything and we just witnessed a miracle? Thankful you are back home...hope you get to stay for a long time and Noah's cultures look good.
Rebecca
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Nov. 12, 2009 - "Up" Activities When Noah Can Handle Some...

Posted by Anonymous
Hi guys and gals!! This was in my email today. Must have been sent for you folks.

http://familycrafts.about.com/b/2009/11/06/up-movie-printable-activities.htm

Sibs can make it a family time if they're interested in any of these. Hope they enjoyed some popcorn with the movie. Hannah Grace, you did a great job posting!

Love y'all...((()))
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Nov. 12, 2009 - <em>Untitled Comment</em>

Posted by icecastle
Ohhh......there are no words! I am sooo sorry to hear about this. How awful! We are praying every day for you all. The Thomas thing was an easy mistake to make- please don't beat yourself up over it! I'm glad the nurse was was kind and brought Noah the toy!

God bless,
Deanna

Edited by icecastle on Nov. 12, 2009 at 9:45 AM
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Nov. 12, 2009 - Hi, Noah!

Posted by Anonymous
Hi, Noah! My name is Lance. I am homeschooled. I hope you feel better. I am very glad that you got the toy you wanted. We always pray for you, Noah.

God bless,
Lance.
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Nov. 12, 2009 - Prayers are coming...........

Posted by jkiessling
we will also pray that this horrible nightmare will be forgotten by that little guy!!!!

Love you guys!!!
((((((HUGS)))))) & PRAYERS & BLESSINGS from the Kiessling family from Fresno, California <><
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Nov. 12, 2009 - Tears

Posted by donnablain
Dear Kate,
They say crying is good for us to relieve stress and tension. Well, I should be very relaxed, because I cry for Noah a lot! My poor, sweet, precious boy! I cry for you too! How awful to have to go through that with your son! You just have to have gotten a glimpse of what God went through! I love you and pray for you tons!!

Donna Blain
Tulare, CA
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Nov. 12, 2009 - Untitled Comment

Posted by Anonymous
O-H * M-Y * W-O-R-D! Welcome to Greenwood, eh? I think I'd be making a personal visit to the lab and rolling some heads. Do people really understand that little things they do/say make such a HUGE difference in the life of someone else? Obviously not! How angering! and how utterly confusing to know that this was allowed to happen...for what reason? for what purpose? Oh to have all the answers now. and OH to find THAT PERSON who decided that texting or TV or WHATEVER was more important then getting it RIGHT the first time! I really, really hope the dr in Greenville was able to convey to the lab what the result of their mistake was! (I have a few other thoughts, but I'll keep them to myself! HEE HEE)

Hugs,
Lynnette
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Nov. 12, 2009 - (((((HUGS))))))

Posted by Anonymous
Thats aweful~ your poor boy!

What a beautiful family! I am a Quiverfull momma of 6 blessings so far! (we too have a Noah)

I came to let you know I'm having a Thanksgiving giveaway. If you want come take a peak?
I love to "meet" other QF families.

Blessings,
Georgiann
ourfruitfulharvest.blogspot.com
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Nov. 12, 2009 - Oh Boy :(

Posted by Anonymous
Ugh Kate! I can understand your extreme aggravation. I am glad you are going home, and glad Noah isn't so sick but we've had our share of stress due to lab errors, and I completely understand you sense of anger, frustration, and powerlessness.

Praying that God heals this wound and gives all of you strength.

love Jessica
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Nov. 12, 2009 - Labworker

Posted by Francie
Kate,I am so sorry little Noah had to go through that and I'm so glad he gets to go home.I honestly would report that lab worker to be reprimanded,that is just wrong.They never contacted the doctor back to let them know the test wasn't as they had previously stated.If people don't say anything,if these mistakes haven't already occured,they could happen again.They need to be made accountable,they could cost lives,honestly,due to thier negligence.
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Nov. 13, 2009 - Untitled Comment

Posted by Traci
Oh, Kate, I am so sorry that you and your precious baby had to endure this; and even more so because it was the result of an error. God bless you both, and may today be a truly peaceful day for you and your family. Know that you continue to be in my prayers.
Traci
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Nov. 14, 2009 - Untitled Comment

Posted by Aria
If I get started on medical mistakes, I'll end up swearing like a sailor, so I won't touch that.

I chuckled at Noah's tantrum because it's so much like a regular child. But really advertising aimed at children should not be allowed. They haven't yet learned to use their reasoning skills or to ignore ads. Marketing to kids is big business and a psychological game. Make a child thins he or she has to have something, a tantrum happens, and the parents buy it to try ending the tantrum.
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Nov. 14, 2009 - I'm so sorry!

Posted by Anonymous
I would first like to say that i've followed noah and your family for a while because of a prayer link in an e-mail. I pray that the Lord would perfect all that concerns you.


I'm a lab tech and on behalf of all lab techs i would like to extend a heartfelt apology. I have never personally made such an error, but it's not impossible. I regularly pray for wisdom and direction, as well as the patients whose labs i'm working on.

Most people don't realize that 80% of medical decisions are based on lab results. While most tests/departments are highly automated, micro is still very manual. While it can literally take years to reach a competent level on "reading" plates, the gram stain is much more basic. However, there is still a manual skill required to perform the stain correctly and then interpret the results. There is no safety net, except to have another more experienced tech follow up.

From what i've read, though, and my years in a hosp setting, it could be likely that there was a nursing error. The nursing staff has several factors stacked against them. They are generally under-staffed and over-worked, and additionally/especially, lab tests/results are not their area of expertise. I have often called gram stain results to a (good) nurse and had them have no clue as to what i was talking about. I have them write it down word for word and then i send a written copy. In the event of an error, it is easier (and our sinful human nature) to blame on someone not present, ie, the lab.

Most techs are very concerned about the quality of their work, and i would be shocked if there was a non-work realted distraction to blame. I am also sure that someone (lab or otherwise) has a corrective action taken against them.

I know that none of this can take away the heartache of watching your child suffer so much, and then so needlessly, i just thought i might shed some light on the subject.

I continue to hold y'all in our prayers.

Love, Karen
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Nov. 14, 2009 - Untitled Comment

Posted by Hannah
Praying Noah will feel better soon.
Hannah in Ms.
ps any suggestions on how to see pictures posted in the past? I'd really appreciate it.
Thanks.
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Nov. 14, 2009 - Untitled Comment

Posted by Anonymous
I think Karen's comment is spot on. I feel terrible that you both had to grow through this but to automatically say the lab tech must have been distracted by TV, Texting, etc... is passsing a serious judgement. It's unforunate that mistakes happen... but I have found that I am not perfect and am constantly being molded.
I also liked the other comment that what if this was an answer to prayer? We all seem so quick to embrace the negativity and blame...surely we all know better.
Yes, be upset, be mad, but be happy that the results were negative and that you got to bring your son home.
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Nov. 18, 2009 - Untitled Comment

Posted by Shevy
Thank G-d that Noah turned out to be okay in the end. However, you have every right to be angry over the error.

I've waited to post this because I wanted to think and pray about it for a while, but I want to ask you a question about one aspect of this.

It sounds to me as though Noah having to be catheterized is not an extremely unusual event, given his frequent hospitalizations. Given that, and given the fact that you say it is always a difficult procedure due to his tight foreskin, have you not considered having Noah circumcised?

I realize you may not be in favor of it for your sons across the board because you may not feel it is a religious requirement and that to do it may come across as doing it for a reason you don't believe in. Or you may have other reasons for not doing it. (From my religious viewpoint only Jewish males *need* to be circumcised, although there is no reason for anyone else not to do so.)

However, you've unfortunately seen how incredibly difficult this common procedure can be for Noah and how traumatic it can be for everybody concerned. Since there is the likelihood that this situation may (G-d protect us) occur again (ie where it has to be done without full sedation), would this not be a real kindness to Noah?

Please don't feel that I am in any way criticizing you. I'm not. Or that I'm suggesting you "take on" what you may feel to be a religious practice that is inappropriate given your beliefs. Again, I'm not looking at it from a religious perspective but rather from the point of view that Noah has such a tough time generally. Things that wouldn't be an issue for any other child can knock him for a loop and you're constantly being blindsided by very serious medical issues. If there is any way to reduce the impact of any aspect of his situation, does it not make sense to at least consider it? And, from a medical standpoint, a tight foreskin provides a place for smegma to collect and potentially a place for an infection to grow especially considering how often catheterizations in general result in infection.

May we only hear good news about Noah!
Shevy
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About Me

Take a look at our sometimes crazy but always blessed life as we homeschool our eight children, run a homeschool business, and serve God as He leads us. You can also follow our baby Noah as he struggles with some serious health issues - we covet your prayers for him.

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