Food Allergy News From Our House

• Nov. 15, 2007 - My Personal Feelings...

Posted in My Thoughts

     I have come to realize that I don't need to use this site for information only, but that it can serve as a great place to spill out my thoughts and fears as I gain them.  I also figure that by sharing my feelings with you, it will help to clarify our personal journey in the unfortunate world of food allergies.

     I watched the documentary that I just posted about early this morning.  Everytime I come across someting like that, it serves as a great reminder to me just how serious are Randy's food allergies.  His allergy to peanut is definitely a fatal one.  Egg I can only suspect based on the testing he has done and how badly he has reacted in the past based only on coming into contact with it.  He has only been fed egg in its plain form once, and that was when he was just a year old.  He was fed the egg the same day he had the anaphylactic reaction to the peanut butter.  So, I don't know 100% if he is or is not anaphylactic to egg.  But, I do know that by feeding him the egg that one time his body is now sensitized to it. 

     We have made many recent changes in our lives, as you have come to learn.  In retrospect, I realize that we should have made many of these changes long ago.  I guess that I was either living in denial, or I was just plain stupid about certain situations.  Again, every time I learn of another food allergy kid, especially one that has lost their life to a reaction, I am reminded completely of just how careful we must be...AT ALL TIMES!

     This is easier said than done.  In the past we would dine out from time to time.  I no longer feel safe doing so.  Even though some of the restraunts appear to be safe, the possibility of cross-contamination is enough of a hazard that it is a threat to Randy.  It is sometimes hard to explain to Randy why we can no longer go to these places.  (you can read about a recent experience here)  For a kid, McDonald's has become almost a right of passage in our culture! 

     Another example is our decision to homeschool.  Even though there is a lot of progress being made in the schools, due to the fact that Randy's peanut allergy is life threatening, we do not feel safe sending him there.  (I have to add here, though, that I am proud to have made this decision for other reasons than keeping him safe.  I have learned so much about homeschooling that I now realize there are many other benefits in doing so.) 

     These are just two of the aspects of our lives that are effected.  I could write more about other things such as birthday parties, family reunions, and everything else in our culture that includes food.  But, I would be here all day.  The thing is, sometimes I get overwhelmed and start second guessing myself.  I start asking myself questions like, "Am I being overprotective?," or "Am I ruining his life by making so many restrictions on our/his life style?" 

     These questions may seem ridiculous to some of you, but they are examples of the struggles I deal with on a daily basis.  Some days are better than others.  Like I said before, much thanks to the other families out there who are sharing their heart wrenching stories. It is because of you, I do get stopped in my tracks and am forced to reckon with the reality that this is our life.  I am doing the right thing! 

Post A Comment!

• Nov. 15, 2007 - Untitled Comment

Posted by Big Randy
I think you are doing what needs to be done. You are a Great Mom, Randy is lucky to have such a wonderful mother. I am with you 100%
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• Nov. 15, 2007 - <i>Untitled Comment</i>

Posted by MOMatHWTK
We lived as hermits for the first few years when our son was too young to know how to be safe. We take him out now, but never to restaurants. *Maybe* we could find something safe, but it's just not worth the risk. We very seldom do large family gatherings. Though, after a few years of our "tough love" most of the grandparents did come around, one house is completely safe and the others try their best which usually is good enough and if not, we can remedy the situation. They do now take is seriously. (We use a photograph of a reaction to help educate.)

We still face difficult going anywhere, too much dust or food residue and a mild reaction will start and we have to go. But, there are lots of amazing places we've made it through safely.

Just know that you and your child will get better at managing this each day. BUT you don't need to feel like you have to do everything now. This is one long training session for your child so that when he's 30 he can navigate a business meeting without you. ;-)

Here's our reaction shot:
http://www.homeschoolblogger.com/HWTK/287419/

Edited by MOMatHWTK on Nov. 15, 2007 at 12:41 PM
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• Nov. 16, 2007 - Stay Vigilant

Posted by FoodAllergyAngel
Amy, you are a wonderful mother -- doing everything in your power to keep Randy safe. Don't feel guilty about that... you know what is best for Randy.

Keep up the great work...

Randy is very lucky to have you as his mother.

Stay Vigilant,
Paul
www.foodallergyangel.com
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This blog will be used to communicate news on the topic of food allergies. Some of the details will be general where as others will be specifically about my son, Randy. I welcome all comments.

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