http://www3.caringbridge.org/sc/blakester

I am sorry that i have taken soooooo long in updating this page.

Blake is continuing to WOW me everyday with is tenacity, charm, Adventures  & the ability to learn more & more....especially through reading!!!!

Blake has been doing really well with his sub-q.  We did switch brands due to lots of problems by the Vivaglobin. He is doing the same med. he was doing when it was IV. We also hav ehad the pleasure of not having to use premeds!!!  Thats right....NO Benadryl!!!!

This month Blake has joined a baseball team that is for Special Needs CHildren. he is one of at least 100 kids playing each week.  The needs range from Don Syndrome to Epilepsy. Micro encephaly to Mito. disorders, from Spina Bifida to All levels of Autism!!! What these folks have done fo rthese children is totally amazing.  Blake is on the "Dodger's" team. He has a shadow who helps him learn the game. Joe is his name. Blake really liked Joe. You could see Blake talking to Joe.....if only one could be a fly on the shoulder!!!!

I will "try" to get the video up here.

http://www.onetruemedia.com/otm_site/view_shared?p=5999af5c09be6f4325e8b0&skin_id=601&utm_source=otm&utm_medium=text_url

Just go here 7 check out all of the kids.  You can tell these kids were not in it to win!! They were up to a challenge and excited to get to do something they had never gotten to do before & proove they are important as well as the "normal" person!!!!
Gotta run

I will be back very soon