Live, Love, and Learn - Homeschool Blogger

Wordless Wednesday

Tue, 16 Sep 2008 23:08:00 -0500

Kaylee draws a duck

Tue, 16 Sep 2008 22:34:00 -0500

It's official. Kaylee is in Kindergarten. Here's a sample of her writing and drawing.

UPDATE: Lou Gehrig's Disease

Tue, 16 Sep 2008 22:03:00 -0500

My mom saw the ALS specialist last week. He said that she has Bulbar Palsy- the nerves die that control the face, neck, and throat. This affects the speech and the ability to swallow. At first, this sounded like better news but it's not. Bulbar is not an easier disease than Lou Gehrig's disease, in fact, the life expectancy is considerably less. People with Bulbar Palsy usually choke to death or die from pneumonia that results from aspirating food or liquid into the lungs.

She will have additional testing but she is not eligible for any type of financial assistance, so treatment options are limited. In fact, the doctor never even mentioned the possibility of any kind of medication that could slow the process. He just told her to start thinking about a feeding tube since her ability to eat will soon diminish. We have also made contact with hospice.

At present my mom is still working. She is a secretary for a Christian publication. Everyone is aware that each day may be her last. We never know what changes lie around the next corner... but we must face these changes as they come.

Lou Gehrig's disease

Thu, 10 Jul 2008 09:26:00 -0500

We recently found out that my mother has (ALS) Lou Gehrig's Disease. The average life expectancy is 2-5 years, it has taken a year to get diagnosed and will take another 3 months to get a much needed appointment with a doctor who treats this disease. (Medication cannot be prescribed without this appointment). So we wait...

In the meantime, we can research and attempt to prepare ourselves for the future. This is not an easy task. Knowledge of the disease is not the same as preparedness. One can anticipate death but how can one anticipate being alive, locked in a body with only the ability to blink? The mind, memory, and all thoughts remain intact but the body slowly shuts down until the only thing that remains is eye response. How do you prepare?

I found this:

MY BATTLE

I am aware of the darkness that surrounds me; there is no world outside. There is no control nor is there a need for the control of pain that wells up within me at the thought of the words of dread that I rehearse over and over in my mind. I exist in my moments of despair. I can see no light of day but then; I do not see what others do. My world is filled with only that which those before me have glimpsed during their moments. My thoughts remain locked within the depths of my soul, for from there once came my feelings of love and joy and happiness and all things that are good. I feel a grieving from within the very depths of my soul...
I am afraid!

I want to leave the depths of despair; I yearn for my yesterdays filled with love and joy. I want to reclaim my yesterdays and overcome my feelings of hopelessness. My pain is measured by the love I have given and received in my life; therefore I cannot begin to tell you the measure of the pain I feel. I find myself hoping that I have given a part of myself to each life that I have touched; be it in words spoken or deeds done. I believe that I have a purpose on this earth to fulfill and I ask.... Have I fulfilled it? I feel not; I need more time. Then, into the darkness I grasp for strength and as with others before me, I am given a glimpse of hope as I realize that.... I have not begun to fight!

I then realize that my battle will be great! I ask you be with me in my fight. I ask that you be strong in my moments of weakness and above all, share my truths. I will fight with my very being! I will walk forward! I will pick up my light and lift it high; I will find my way through the darkness! I will fight with the strength of my memories; knowing that others share my journy; knowing others walk bravely by my side! My feet my not always carry me on the road I must take but I will not be defeated in the fall because I walk in the footsteps of those before me...I walk in the footsteps of HOPE!

When the day comes that I feel that my walk will not have been in vain, I will have won the battle I will so desperately fight for! We will have found a cure!

Millie P. Lorenz

I am trying to remain positive.. to embrace this disease and find something positive in it. I know that God has not allowed this happen without having a bigger purpose for us so it is my goal to find that purpose. When I am feeling all alone will you please help me to see the big picture?

***********
For more information:
What is ALS

UPDATE:

Thu, 10 Jul 2008 09:04:00 -0500

TJ made a full recovery regarding his heart surgery and is due to deploy to Iraq this fall. He still has chest pain but according to the doctor, it is due to his heart being NORMAL. His blood flow was abnormal from birth and now that it flows correctly, his body is not use to it so he feels pain. Hopefully, in time, this will resolve.

He is currently stationed in Germany and is expecting a third child (see previous post).

It's been a LONG time

Thu, 10 Jul 2008 08:49:00 -0500

I havent been in here in a long time so I really need to post an update.

I have 5 grandchildren now, with number 6 due next month. My daughter (Kimberly) gave birth to her first child three weeks ago.

Name: Emerson Adelaide
Date: June 19
Weight: 7 pounds 7 ounces
Length: 20 inches

****************************
Here's a 4D sonogram picture (of number 6 - Remy) for your viewing pleasure:

Yes, she is sticking her tongue out. I'm sure that means she will be as feisty as her brothers.

Wordless Wednesday

Wed, 26 Sep 2007 17:21:00 -0500

My categories are back

Wed, 26 Sep 2007 17:11:00 -0500

Thanks to the help of GiffordBabyJournal I now have my category section back up. Hopefully, this will make it easier for you to maneuver through my blog.

I've lost it...

Tue, 18 Sep 2007 12:58:00 -0500

I lost the category section that I once had in my sidebar. If you know the code for adding it, please let me know.

Thanks

Ask Mr. Bear

Sun, 9 Sep 2007 23:27:00 -0500

This book is about a boy's search for a gift for his mother and the special gift that he finds.

Lesson Plan:
Bible: "Every man according as he purposeth in his heart, so let him give; not grudgingly, or of necessity: for God loveth a cheerful giver." 2 Corinthians 9:7 .
Discuss what it means to be a cheerful giver.

Problem Solving: When Danny didnt know what to do, he sought the advise of others. He didn't have to act on their advise but he did listen to their suggestions.

Drama: Act out the story, including animal sounds.

Memory: Ask child to recall all the gift suggestions.

Thoughtfulness: Discuss gifts for Karsyn's birthday. Also discuss gifts for her daddy's birthday.

Science- Woodland Habitat: Explore the woodlands. Observe the trees and other plants that grow in the woods. Discuss what kind of animals live there.

Coloring Page: Birthday, Bear, Hug

Sign Language: Happy, Birthday, Love,