Well we finally got the brace. She officially hates it and says she is not wearing it outside of the house. She is really being a trooper about it though at home. We have not tried sleeping in it yet I told her tomorrow night we will. It is very uncomfortable and everytime she sqauts down to get something, it is so slick her pants nearly fall off. I tried to get her to tuck her pant under it but she does not want it to show. We will go and see the dr this week for another xray.
I am very discouraged about the whole situation. I have now read 2 books about scoliosis and both books (plus the info I have found on the web) say that curves over 40 degrees should not be braced. Since surgery in alway necessary with curves of this magnitude. I wish that we would have gotten a second opinion before we got the brace fitted. I know it will not harm her to wear the brace but if it is not going to help her why put her thru the trama of wearing it. I am still waiting to hear from the specialist in St Louis to see if we have been accepted and can go there. If not we will try KC.
I am also furstrated with my husband about all of this. He just does not get it. Hedoes not seem to understand the enormaity of it all. I feel like I am carry this all by myself. He just keeps asking me how much this is all going to cost. He has even been teasing my dd about the brace. He does not seem to understand how this is affecting her self esteem.
I need a lot of prayer in this situation. I know ultimately the only one I can count on to support me is my Heavenly Father. But I just pray he will send someone for me and my dd to support us thru this all.
I have been sick for the last 3 days. Life has just run me down.
Sarah |
• Apr. 11, 2006 - Untitled Comment
I've known 2 people to have surgery to put rods down their spine, at the same time actually. One was my aunt, and she was 42 I think. The other was our babysitter, and she was 17, and had it 2 weeks after my aunt. My babysitter recovered really quickly, just a couple months. It took my aunt a year or more because of her age. But they both have done so well.
I'll keep praying.
~Kelly