home with all four

• Apr. 11, 2006 - My daughter got her brace and other things

Well we finally got the brace.  She officially hates it and says she is not wearing it outside of the house.  She is really being a trooper about it though at home. We have not tried sleeping in it yet I told her tomorrow night we will.  It is very uncomfortable and everytime she sqauts down to get something, it is so slick her pants nearly fall off.  I tried to get her to tuck her pant under it but she does not want it to show.  We will go and see the dr this week for another xray. 

I am very discouraged about the whole situation.  I have now read 2 books about scoliosis and both books (plus the info I have found on the web) say that curves over 40 degrees should not be braced.  Since surgery in alway necessary with curves of this magnitude.   I wish that we would have gotten a second opinion before we got the brace fitted.  I know it will not harm her to wear the brace but if it is not going to help her why put her thru the trama of wearing it.  I am still waiting to hear from the specialist in St Louis to see if we have been accepted and can go there.  If not we will try KC. 

I am also furstrated with my husband about all of this.  He just does not get it.  Hedoes not seem to understand the enormaity of it all.  I feel like I am carry this all by myself.  He just keeps asking me how much this is all going to cost.  He has even been teasing my dd about the brace.  He does not seem to understand how this is affecting her self esteem. 

I need a lot of prayer in this situation.  I know ultimately the only one I can count on to support me is my Heavenly Father.  But I just pray he will send someone for me and my dd to support us thru this all.

I have been sick for the last 3 days.  Life has just run me down. 

Sarah

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Comments

• Apr. 11, 2006 - Untitled Comment

Posted by kleo30
(((Sarah))) I've been praying for your daughter and you and wondering how things are going. I'm so sorry about your husband's attitude toward this. That is so hard. Are you still going to get a second opinion?

I've known 2 people to have surgery to put rods down their spine, at the same time actually. One was my aunt, and she was 42 I think. The other was our babysitter, and she was 17, and had it 2 weeks after my aunt. My babysitter recovered really quickly, just a couple months. It took my aunt a year or more because of her age. But they both have done so well.

I'll keep praying.

~Kelly
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• Apr. 11, 2006 - Untitled Comment

Posted by Juldos
So sorry that it's such a difficult time right now. I will be praying for God's provision, protection and healing for you as you seek care for your daughter's spine.
Julie D.
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• Apr. 11, 2006 - Untitled Comment

Posted by WalkInFaith
Oh Sarah, I've lifted you up in prayer and will continue. I'm also praying for your dd, for courage & healing. That the Lord will lead you to the help she needs & that those who provide care for her will be Christians understanding they are His tools! Also, praying for your husband.

I sometimes think men are more delicate than women! They guard their hearts, their thoughts, and their feelings with rough exteriors and, sometimes, the most inappropriate responses for the moment - all because they know the power is not really theirs. I'd be willing to bet he truly does understand the enormity of it all - and it overwhelms him. Thinking about my husband with our son, I'd also be willing to bet your husband teases your dd about the brace because that's his clumsy way of trying to comfort. Odd huh? I'm thinking he's thinking "if I make it seem like it's not a big deal then dd won't either". Know what I'm saying? I'm praying he'll be touched and soon *get it* that you & your dd need a different kind of "manly" response and support.

As for you, take care of your physical health. Rest when you need it and pray when you worry and fret - it's less stress on the body and medicine for the heart and mind! You do have support - we're all around!
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• Apr. 12, 2006 - Untitled Comment

Posted by ktneis
You need support and hubby seems scared. You two should try hard to communicate your feelings and the future of your dd together. I bet he is overwhelmed as you are and that is how he will deal with it. Stay strong and persistant but take care of yourself as your other kids need you too. Maybe take some time off and find someone to care for the kids to just rejuvinate and get a new perspective? Gods Blessings to your family.
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• Apr. 13, 2006 - will be praying for you

Posted by ClagettsFLStyle
You are going through so much! I will be praying for you. I pray that you will continue to just seek HIS face in all of this. During the storms He so desires us just to trust. I know that can be so difficult.
The situation with your DH seems hard to. I will pray that maybe God will prick his heart and deal with him on that. Or give you words of encouragement to share with your DD and your DH. Let's pray that God will give your great wisdom and words to aproach him on how this teasing will be hurting her.
Remember that Christ tells us of the blind man that he wasn't made blind for sin ( or punishment, or for being ashamed) but so that God's glory would be revealed. I will pray that this will happen through your daughters situation.

just a thought. since I'm am such a computer geek. Have you thought of maybe doing a search for support group type things for teens with scoliosous (sp - sorry)? Maybe there is something near by. You never know what God can provide.

Will be praying for you!
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• Apr. 13, 2006 - Untitled Comment

Posted by WalkInFaith
Thinking of you all and keeping you in prayer. Just thought I'd stop in and share a smile :-)
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• Apr. 18, 2006 - Untitled Comment

Posted by MSAcademy
Oh Sarah, I'm so sorry to hear all of this!! I will be praying, not only for your dear daughter, but your husband. How sad that he's not being supportive of you and your daughter and all she's going through. I hope you get the much needed rest you deserve. Try to have a great day.

Blessings,
~Kim~
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• Apr. 19, 2006 - Oh Sara...

Posted by FaithfulGrace
My eyes are filled with tears as I think of this trial for you and Riley.
I wish I could give you a huge {{{{{{{HUG}}}}}}} and Riley to. I am so thankful that she has such a sweet momma.

I'll be praying for your husband's heart to be opened to what this means.
I can't imagine what you are going through. But you remain on my heart and in my prayers, even in my blogging absence.
Keep us posted,
God bless,
Linda
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• Apr. 20, 2006 - Hi Sarah

Posted by GodWillMakeaWay
I have been praying for your family and will continue. As for your hubby, I think the others are right, men can't seem to handle these things, it's not that they don't care but they just seem to want to hide from pressure situations. The most important thing is to remember that God Loves You All and He is in control. Right now you and your family are in the storm, the hardest thing to do when we go through storms (just like Peter) is keep our eyes on Jesus and not our circumstances. It is, however, the only way to get through the storm without sinking! Everytime your heart or mind gets burdened or overwhelmed remember to look to Jesus. Everytime I have to face my storms, when I remember Peter walking on the water, it reminds me to keep focused and refocusing on the Lord. One other thing I find that always helps me is to praise God. When I am so down I feel like I can't get up, if I remember to praise Him, and I make myself begin to do so, my spirit begins to lift within me. "Put on a garment of praise for a spirit of heaviness". I wish I could be there for you and help! God Bless You!
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• Apr. 22, 2006 - praying

Posted by MotherJoy
you are being so strong...

while I was reading about your daughter's pant's falling off, I was thinking...what if you put some velcro on the brace (it should stick) and another piece on the inside back waistband of her pants (just a few inches, not too long). THat might help her pants stay up.
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• Apr. 24, 2006 - hi

Posted by ClagettsFLStyle
Was thinking about you and wondering how things were going?....

I tagged you , thought maybe you might like the distraction. Check out my blog for the tag.
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This Weblog will be an opportunity for me to write down my thoughts on being a mom of 4, homeshooling boys who are dyslexic and girls who are gifted, and teenagers.

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