Spina Bifida Awareness and Support

Mar. 31, 2009 - Day 2 - In the room....a busy, busy day

MY day started early this morning, but that's a whole other story. Shawn & the other girls dropped Emma and myself at 6:50 this morning, After telling all the folks we had arrived, she successfully accepted a PICC line by 9:30. (A PICC is an intravenous line that leads to the Superior Vena Cava of the heart) This is great because it means no needle sticks. Emma's had this before and it works well for her. Later in the day an NG tube was placed.  She hasn't liked that very much but she is able to drink with it in place.

All her meds and fluids are going through the PICC line. She's taking NuLightly (aka GoLightly which is the BIGGEST understatement known to man) through the NG tube. At least she does not have to remember its nasty taste or chug-a-lug that stuff. I told her it's worth the trade of an NG line, but she's not buying my brand yet.

Old bedtime skills came back to me as I made my loveseat sleeper bed. My mom saved the day, actually months ago when Emma had her ortho surgery, by buying me Vols 1 Bible Word Search & Bible Cross Words. While repacking for the hospital, the smaller Bible didn't make it to my purse. Also, there was not a Bible in the room. Thankfully, in these puzzle books are passages of KJV scripture printed. I read Eccelesiastes 3:1-8. Then I did a puzzle with the scripture reference being Matthew 6:25-34 (I'll have to read that later) and the title, "The Cure for Anxiety." I appreciate you, Mama.

I spoke with Shawn tonight before my phone died. He told me that another batch of cookies were brought to the girls tonight. We'll have to compensate for all the deliactibles later.

Presently Emma is on a bedside commode and still disliking the NG tube. This may make for a long night. We are listening to great music. The Child Life team is so wonderful to Emma. They brought her several CD's to listen to: Newsboys, Casting Crowns, Cedarmont Kids. She also brought movies and lots of arts/crafts items. She has been showered with things to do today, some fun and some not so fun.

We are praying that:

  • The bowel prep with work smoothly for Emma
  • He appendix is healthy and long enough to be used for surgery
  • We can all find some rest along the way

Read her CarePages summary by clicking here.

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