Apr. 14, 2009 - Homeward Bound for Her Birthday
Emma is waiting on results from her blood work. She has been on a strict Calorie observation because she has thrown up a lot the last few days. She still has her PICC line and that's how they draw her blood. "No pokes" as Emma says.
The Urology Team rounded this morning and started dispelling the plan. I was real excited but Emma just wanted to go back to sleep. She stayed up to midnight EST! We did get in a late walk that is a bit painful. I also did her site care and did her mineral oil flush all by myself.
They are setting us up with discharge supplies since we have such a long drive. Shawn would like to leave today and drive as far as we can. Everyone has been great but we are homesick and ready to get back ASAP. We will return to AR Childrens to decanulate late next week. We are thankful not to make another long trip here.
Emma's care team has ordered her a cake for today. What a sweet treat. I am going to get some breakfast and start packing on this side. Yesterday, I packed up the house so Shawn wouldn't have to do that. I'll keep everyone posted on our progress today.
