Spina Bifida Awareness and Support

Oct. 1, 2009 - Foleys, Processing, ADHD and more

September was wild and wooly. Emma had a rough month with her bladder and kidneys. We also had Emma tested by a nueropsychologist concerning some processing issues I have noticed.

With her urologic issues she had been battling an infection as well as her new ureathra (the outspout for urine) producing a lot of mucus. The middle of September, she was occluded somewhere along the catheter and the urine filled her bladder to an alarming and uncomfortable amount. We went to ACH ER for help. (I'm getting pretty good at reading an ultrasound, by the way.) After a few weeks, the infection is better but she still has a lot of inflammation in her left kidney. Surgery can be done on her bladder to correct this but we are hoping that a little time and medicine will take care of it instead. We are praying that if that is God's will, so it will be and if not I know He will give us the grace to accept it. We will see the doctor at the end of the month.

Her nuerologic issues that have changed markedly since her April surgery were addressed at the end of the month. Some of the findings were alarming to me, but overall not surprising. Emma, like Macie & myself, was diagnosed with ADHD. The doctor believes it to be genetic, and I had already seen evidence of it over the last several months. Another thing was the fact that sometimes Emma can tie her shoes and others she would honestly not have a clue. What we learned is that Emma has issues with the part of brain that performs executive functions. To help with this we must really b-r-e-a-k down our day for Emma. We are expecting the final report from the doctor later this month.

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