Friday, July 25, 2008 - The craziest year of my life
How does one sum up the craziest year of her life in one blog post?! Let's see...
Where did we leave off?
Oh yeah..
marriage falling apart
pregnant
want a homebirth
found a midwife!
I'm measuring WAYYYY too big for my dates but I KNOW that they are accurate
schedule the ultrasound I swore I wouldn't have
It's TWIN boys!!! Oh my gracious!!! Thank you God!!!
Oh my gracious...it's twin boys....what am I going to do?!
How many placentas did she say were in that ultrasound?!
one
How many sacs did she see?
one
Oh well that means they are identical!
cool.
wait a minute....doesn't that mean they could get tangled in eachother's cords?!
Forget homebirth, we've got to find a doctor!
Oh great, we found a doctor!
Oh great, the doctor dumped us.
what are we going to do?!
hey what about this doctor?
oh wow I like this doctor...well his midwife at least...
Sorry about those kidney stones babe, but I can't find a sitter to keep the kids for my check up...I'll see you this afternoon!
What do you mean go straight to the hospital (3 hours away)?! I can't...my hubby's at home and I can't do this without him!
What do you mean I have to stay here till the twins are delivered?! That could be weeks! I can't do that, I have 5 kids and a sick hubby at home!
Babe, you better find a sitter and get up here, they are taking the boys in the morning...
In hell, they will be doing epidurals, I just KNOW it.
It's a boy...and another boy, but you can't see them.
The Apgars were 3 and 6 at one minute, doctor...
No mam, I'm afraid you can't touch the babies from the gurney because you can't scrub in first.
Here's your chance to hold your baby for the first time, mam...the social worker needs to know what type of birth control you plan to use.
We're leaving the NICU in the morning after just 9 days! Great!
I can't nurse my babies because I don't have a doctor's order to?! You do realize we're leaving in the morning, right?
I can't believe they've been home for 3 weeks...oh my God, Malachi's not breathing!!!
Now Seth's not breathing either!!!
What do you mean you need directions?! This is the 911 address you people gave us and you don't know where we are?!
So your wife was home alone with the babies when they stopped breathing?
What's that got to do with anything?!
Well they seem fine, sir, we're just trying to figure out what happened...
Turn around Doc! You'll see for yourself what happened! They're turning purple!
breathing tubes
ventilators
RSV
life flight to Tulsa (3 hours from home)
too windy for the helicopter...must take ambulance
I know it looks rough now, but they'll be home in a week.
Family separated again
Malachi needs a higher powered ventilator
We're not going home just yet are we Doc?
Seth is ready to wean from his vent!
Oops...maybe not
His right lung has collapsed and his left lung has over-inflated to make up for it, but it's pushing his heart completely out of place
Are they preparing us for the worst?!
God, I surrender this to you...I'm not giving up on Seth, but I know that my worrying can't keep him here...it's in your hands now.
Look at this x-ray! His lung popped back open and he's on his way back to us!!
Thank you LORD!!
Look his eyes are open! The paralytic drugs are wearing off!
Why are his eyes moving like that?! Why won't he look at me?!
Why aren't you telling me anything?!
Oh, he's okay...well alright then...if you say so...
I need to get home to my family for a day or two...poor hubby is falling apart.
Honey, what is this on the computer?! THIS right here! Don't try to deny it!
I can't handle this! I've got to get back to the hospital...
The boys are off their vents...and crying non-stop! What a welcome sound after 3 weeks of silence!
What do you mean they can't share a room in the new building?! How can I care for them both in separate rooms?!
Honey, they're releasing us tonight! Oh, you're already on your way? You were coming to surprise me? Wow. That was thoughtful.
27 days in the PICU...that was the longest "week" of my life.
So this whole thing could have been prevented if the NICU doctor had just given them an RSV vaccine before he released them...he never even offered!
Honey, please ask if the nurse can just call us on your cell phone or wave to us to come in...I can't see taking these boys in there to sit in a germ-ridden waiting room after all they've already been through.
Well if they won't work with us, we'll call the Soonercare helpline...that's what thy are there for.
I can't believe they just FIRED 8 week old babies in the parking lot over us calling the Soonercare line. What are we supposed to do now?!
Who knew it took 2 months to get assigned a new PCP?
Mommy, why does Seth look past me instead of at me?
Seth's not tracking! Why isn't he tracking?!
Why can't we get him into see a pediatrician?! You're his PCP...why won't you give us a referral?!
Money...or lack thereof
Hey look, this place says they can help Seth, we just need the PCP to sign off on it and it's covered!
I can't believe the PCP didn't even know what this place was...but at least he said he'd sign off...
or not
Okay, let's just jump through this hoop to get him to sign off...maybe this eye specialist CAN do something for Seth
His eyes are structurally sound, but he doesn't track...we already knew that!
They want to recheck him in October and then send him for brain scans
Oh wow, the PCP finally signed off!
Seth's evaluation is set for August 11th!
Time for the boys 6 month check-up
Seth's head is too small to register on the charts?! What does that mean?
Phew!
Now you're up to speed...next time I'll attempt to post pictures of our newest blessings...for now stats will have to do. ;)
About 9 am on December 30th, 2007, 7 weeks ahead of our schedule but precisely in God's timing, our family welcomed 2 more of God's richest blessings into our home and hearts.
Seth Jonathan
5 pounds 2 oz
Malachi David
5 pounds 8.9 oz
Comments
Saturday, July 26, 2008 - Untitled Comment
Posted by holyhart
Oh Trish, even knowing all this already, it was hard/amazing to read. You know I love you right? Seriously. Praying for those precious boys. Evelyn remembers to pray for them all by herself everynight (she's turning into quite the little prayer-warrior!)
I'm leaving you with my new favorite verse (with everything that has happened in the past year in my house, He has had to just about beat it into my head...and heart...but I guess I'm just a slow learner).
"Have I not commanded you? Be strong and courageous. Do not fear nor be discouraged, for the LORD your God is with you wherevere you go." ~Joshua 1:9
Monday, August 18, 2008 - Catching up!
Posted by Cristy
Wow Trish, you have been through so much! I've missed all this, hadn't heard from you since the boys were born. I'm so sorry you've had to go through all of this, but I'm so glad that now I can keep up with you all, and know that I'll be praying.
{{{{{{HUGS}}}}}}}
Cristy
