Teaching Jeremiah, A Journey into the Mind of an Asperger's Child

May. 9, 2008

Meet Neena

Neena


Meet Neena, the newest member of the Bertic family. Yes, we got a kitty!

The kids have been wanting another pet since we moved into our apartments and couldn't bring Mazy with us. Mazy was our dog. She was a little dog (wiener dog actually), but she was very, very aggressive. We were told that the apartments were strict about aggressive animals and you could be evicted if enough people complained about your pet. Mazy had enough of a bad reputation with previous neighbors that we didn't want to take any chances.

She was wonderful with us. She was simply overprotective and prone to escaping out the front door and chasing people for blocks while convincing them she was a doberman. We left her with John's parents and still cared for her basic needs, but when mom and dad went to Illinois for a month at a time (at least two times a year), we had to figure out how to care for her while they were gone. Sometimes, we planned to be on vacation at the same time they were. This posed a real problem.

In the end, we prayed and found a wonderful new home for Mazy on ten acres of ranch with eight other dogs just like her and dozens of ducks and stray cats to chase and torture. The kids were satisfied that she was safe and happy, but still sad that their pet had to find a new home. Thus started the "wanting".

Last weekend after the camping trip, we took Jonathan's friend Leo home and he introduced us to Neena. Leo's dad found her under a car, stopping traffic just outside Busch Gardens on Busch Boulevard. He took her home, cleaned her up, and they began the process of finding a home for her. As far as the kids were concerned once they saw her, she now had a home.

They worked on dad for hours, begging, pleading, offering to take care of her every need that arose. John was never opposed to a cat, but it would mean coming up with a security deposit and $15 a month extra for our lease. He told the kids he would find out what the deposit was on Monday and let them know his decision then.

The answer was in the total...$300.00!! Ben and Jonathan produced half with their saved chore and birthday money, but in the end, it was just too much to justify for a pet, especially with other bills looming. The kids were disappointed, but relented just the same. Jonathan did refuse to give up however, even to the point of calling Leo and telling him to hold the kitten a few more days while we prayed. He asked all of youth group to pray for us as well. Spontaneously throughout the next few days, Jonathan would ask me to pray for us to be able to somehow get the kitten.

Laying in bed the other night I remember a website someone sent me for Jeremiah about service cats. The website explains that cats can learn to initiate play, recognize and interrupt repetitive or compulsive behavior, provide tactical comfort by staying in the child's lap and sitting still for several minutes at a time, and play without use of claws, or teeth. They can also be trained to assist the child when they feel overwhelmed in over stimulating situations, social situation tolerance, distract the child when they are becoming frustrated with routine tasks, provided some sense of "sameness" if the child's routine changes suddenly, facilitate child's improved communication. The cats will also be able to carry via her tags information about the child's condition, who the child is, and how to help in the event of a "shut down".

Needless to say, the wheels started spinning and I went to the office the next day and asked about service animals. There is NO security deposit or additional monthly fee for service animals! I phoned Jeremiah's doctor and spoke with her and she agreed that a cat would provide great behavioral therapy for Jerry and she sent a prescription to that effect to the apartment's office. They added Neena to our lease and the rest is history!

The kids were overjoyed of course and Jonathan sees his prayers as answered, though we did discuss that sometimes the answer is "no" and we just have to accept that. He agreed though he said that would have been difficult to accept. I told him it usually is, but God always knows better than we do.

We headed to the pet store and got a scratching post (to save our furniture), a few toys, food, and a littler box. God is so good! The store refills your litter tub with scoopable little for only .39 a pound. So next is to the vets for shots and spaying.

And then the training begins. First we will harness train her. Then we will leash train her and work on simple commands. We have the help of Tenere Kingdom, the website we were sent. Tenere Kingdom was created by a boy named Samuel. Samuel is 14 and has Asperger's Syndrome. His mom gave him an assignment to write a paper on a business he could "create" that would help others. After finding two stray cats, Samuel not only created his business on paper, but has made it his desire and goal to help others like him for real.

Samuel has a service cat that was prescribed for him and he has reaped the benefits of its companionship and training. Samuel's vision is to create a service/therapy placement center for children with autism and other kids who would benefit from a service cat. Traditionally, therapy and service animals are dogs. However, Tenere Kingdom believes that cats may be a better choice for some kids with autism. Their small size makes them less frightening than dogs, and their independence makes them easier to care for. Cats can be fully trained for many tasks and even obey command like dogs.


Samuel's story is amazing and he is working on his business licensing and non-profit status through recycling soda tabs! Such a neat kid and passion to help others! Anyway, his website features training tips, a downloadable guide, and videos of his cats that he is currently training, as well as updates on their progress.

For more information about Tenere Kingdom, visit http://www.freewebs.com/tenerekingdom/index.htm.

So we're off on our new adventure! Cat ownership and training 101! We'll keep everyone posted. I will probably post videos and update everyone of Neena's training progress on this blog. We appreciate your prayers on this journey!


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May. 5, 2008

Pseudostrabismus

Yeah, whatever!  Praise God, this is what they diagnosed Jeremiah with today at the opthamologist.  Basically, because of the shape of Jerry's face, his right side being more rounded than his left, he appears to have lazy eye, but does not. 

His pediatrician thought he had lazy eye in his left eye at his six-year check-up a few weeks ago and she referred him to the opthamologist.  He said it was a common misconception in kids whose faces are shaped like Jerry's. 

Personally, I never noticed either his left eye looking different or the shape of his face being different from one side to the other.  Either way, thank you Lord that Jerry does not have another diagnosis to add behind his name! 

And the thought of glasses, surgery, or even an eye patch made me cringe.  Poor Jeremiah is clumsy enough.  We don't need to add an eye patch and obstruct half of his vision on top of it.


They did have to dialate Jerry's eyes for the test today and he was not at all happy with that procedure, but the consolation was in the cool sunglasses he received afterwards!



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May. 1, 2008

"The Very Busy Spider"

Ok, I am officially Eric Carle'd out!  We ended our bug unit with "The Very Busy Spider"...a stretch for me since everyone knows how much I HATE spiders!!  We had so much fun though.  We made another of our crawling bugs, this time a big, black, hairy tarantula.  We also made a cool spider snack with marshmallows, pretzel sticks, and M&M's.  Then we drizzled chocolate syrup over our yummy pet to look like he was in a web.  Jerry loved eating this critter up, especially licking the chocolate syrup off the plate.


We circled eight-legged things on a worksheet, made "The Itsy Bitsy Spider" finger puppets to act out the song.  We also made a cool egg carton cup spider craft that you pulled through a piece of PVC pipe as you sang "The Itsy Bitsy Spider".

I stuck one end of a piece of masking tape to Jerry's shirt and he spun around as I unrolled the roll of tape and "caught" him in my web.  Boy, did he giggle!

One of my less enthusiastic projects was finding a vacant spider web, spraying it lightly with blue spray paint, and then transferring it to a piece of paper to dry so Jerry could see its pattern up close and touch it.

Here's a picture of our spider handprints craft too.


Notice he is sitting in our masking tape spider web on the living room floor where Jerry pretended to be a spider all week.


Webs are really fun to make.  We made one with tempera paint, yarn, and Jerry's thumb print.  We also made one with glitter glue and a tin foil spider.  It's hanging near a sunny window and looks real cool at night with a flashlight shining on it too.


Yarn & Tempera Paint

Glitter Glue

We hid fake plastic flies around the house and went on a scavenger hunt for them, played animal pictures memory, and animal sounds B-I-N-G-O.  We also went on a search around the house for silky stuff that feels the way a spider's web does.

Well, that's it for bugs, though Jerry has been recently infatuated with bees and the fact that they make honey.  So who knows what's next.  We may do some more ABC's first though.  All of these insect units are driving me a little "buggy"!

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Apr. 24, 2008

"The Grouchy Ladybug" by Eric Carle

On with the bug theme!  Next was "The Grouchy Ladybug".  We collected six ladybugs from the bushes outside our apartments and put them in a habitat to watch for a few days.  We found a bunch of bush branches that had aphids all over the leaves and we stuck the branches in a cup of water in our habitat so we could watch the ladybugs eat.  This was fun!! 


Jerry enjoyed it so much that last week at Pioneer Clubs at church he tried to collect some ants to keep in his habitat and watch....fire ants!  Yes, he scooped a big pile of a mound up in his hand before we could stop him.  Twenty-nine bites in all!  He said, "I was just trying to keep them mommy!"  The first few days of redness, swollen fingers, and itchy little pimple bites hurt us all to look at.  They were all in between his fingers.  His left hand of course...the hand he uses for everything.  Poor guy.  I don't think he'll do that again.  At least I hope not.

Anyway, back to the ladybugs.  We made emotion face cards by taking pictures of Jerry's sad, happy, surprised, and mad faces and talked about how grouchy our ladybug friend was and what makes someone feel grouchy.  By the way, twenty-nine ant bites make you feel very grouchy! 

Jerry's Sad Face

We made a ladybug puppet using red Solo plates and black felt spots that we Velcro'd to the ladybug so we could count them as we removed and added them.  We also gave our puppet a felt smile and used a paper fastener to attach it to his face so we could turn it around to form a frown when our ladybug was not so happy anymore.

Ladybug Puppet

We made a ladybug life cycle wheel and learned the parts of a ladybug.  We also made more fingerprint critters.  This time we added green felt leaves to our picture and put glue on the leaves and then sprinkled green sand on top to look like aphids.  It came out looking pretty cool.  Jerry liked feeling the sand on the felt.  He kept running his fingers over the leaves.

Fingerprint Ladybugs

We annoyed the other kids by walking around singing "I Wish I Were A Little Ladybug" to the tune of "If You're Happy and You Know It".  By the end of the week Jerry learned from the song the ladybug's colors and what they eat so it was worth the repetition in my book. 

We counted ladybugs and made ladybug ABC cards.  We also made a crawling ladybug, similar to our crawling caterpillar. 

Crawling Ladybug

We made an "L" is for Word Wheel to learn other "L" words, talked about the other animals and insects in the grouchy ladybug book, and even made a paper plate clock to introduce Jerry to the concept of time.

Overall, this was a fun unit and now Jerry walks around spying bees, ants, dragonflies, and other outdoor critters and exclaims, "Hey you, wanna fight!"  He puts his fists up and assumes the fight position and everything.  It's too cute...as long as he only directs this at bugs anyway!!

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Apr. 15, 2008

I forgot "H"!!

Cool "H"at!!

In reading over my last entry for typos, I realized I never blogged about "H"!  We did learn the letter and have not stopped singing "My Hat Has Three Corners" since!!  We put heart stickers all over a big masking tape "H" on the floor, made a big decorated foam heart magnet for Miss Kim, and Jerry even decorated his own hat.  We hot-glued army men, greenery, and guns all over a camo-colored baseball cap.  Jerry thought it was pretty cool.  Hot Tamales became the candy for the week too!

Miss Kim's Heart Magnet

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Apr. 15, 2008

Going "Buggy"!

No, we have not quit learning our alphabet.  In fact, we still go over the eight letters on our coconut tree everyday so that we don't forget them, but Jerry took an interest in caterpillars a few weeks ago and so, in step with the reason we home school, we took a break from our "routine" and have been studying caterpillars and butterflies instead.

I think Jerry knows most of "The Very Hungry Caterpillar" story by heart now.  We've read it so much!  We also saw the play, along with two other Eric Carle stories, at the Tampa Bay Performing Arts Center.  That was fun.  We visited the butterlfy garden at MOSI and Miss Helen is waiting anxiously for a few of her caterpillar eggs to hatch so that she can give us a few to watch change into butterflies.  We have a butterfly habitat and had fun with it a few years ago, but Jerry doesn't remember that time.

So what have we been up to?  Whew, where to start!  Jerry made a caterpillar out of a clothespin and some colored pom-poms and then wings from paper towels so that we could turn our caterpillar into a butterfly whenever we wanted to by attaching the clothespin to the wings.  Jerry used an eye dropper (great for fine motor skills) to color the wings with food coloring in water.  He was amazed when I put some blue food coloring into the red water to make purple!


We ate life cycle spaghetti for dinner one night.  I mixed shell (cocoon) pasta with corkscrew (caterpillar) pasta and bowtie (butterfly) pasta.  For a snack we threaded Fruit Loops onto a pretzel stick, added a marshmallow head, and broken pretzel pieces for the antennae.  Sounds strange, but anyone who knows me knows my theory.  Anything with marshmallows is yummy!


We made a Very Hungry Student story.  I filled in the blanks while Jeremiah told me his favorite things to eat.  He got a little goofy in the middle, but laughs hysterically every time he hears me read the story to him.  Here's what he came up with...

On Sunday Jerry ate one can of beanie weanies.  But he was still hungry.  On Monday Jerry ate two pears.  But he was still hungry.  On Tuesday Jerry ate three apples.  But he was still hungry.  On Wednesday Jerry ate four sausages.  But he was still hungry.  On Thursday Jerry ate five butterflies.  But he was still hungry.  On Friday Jerry ate one caterpillar, one sun, one snowman, one leaf, one cloud, one stick, one cheese stick, one can of Spaghetti O's, one mushroom, one tomato, and one potato.  That night he had a stomachache!  On Saturday Jerry ate one chocolate Pop Tart.  After that, he felt much better.  Whew!  Jerry sure was hungry.

We also made a coffee filter butterfly.  Jerry colored spots with markers on the coffee filters and then sprayed them with a water bottle so that the colors would spread out and run together.  We added a pipe cleaner body.

I sectioned a paper plate into fourths and Jerry made a butterfly life cycle.  He used a navy bean on a silk leaf for the egg, pom-poms for the caterpillar, a shall pasta noodle for the cocoon, and a butterfly sticker for the butterfly.  He also traced the words of each part of the butterfly's life cycle.


Jerry also used my potato peeler to shave some crayons so we could make a wax paper butterfly by ironing the crayon shavings in between the wax paper.

Then Jerry used Q-tips to put paint blobs on one side of a butterfly cutout.  He folded the butterfly in half and it turned out very pretty the way the paint blobs spread from one side to the other.


We re-created "The Very Hungry Caterpillar" story on a homemade felt board.  I used a pizza box from Pizza Hut for the felt board.  I decorated the outside and then covered the inside with felt.  Then I laminated the pieces from the story and put felt on the backs of them so Jerry could re-tell the story with the pieces or follow along on the felt board as I read the book.

Outside

Inside

Jerry used his fingerprints and inkpads to make his own butterflies and caterpillars.  He glued sticks on the paper for a tree and cotton balls for clouds.  This was a great sensory activity.  I also let him add his own things to the picture.  So he added a sun and a snowman!


For math, I laminated leaf pictures onto index cards and then numbered the cards from one to ten.  I gave Jerry navy beans (eggs) and he put the number of "eggs" on each leaf that the card said to.  He's not real good at counting yet and so I held up my fingers to represent the number on the card.  Then, as he put each egg on, I put down one finger so he could see how many eggs he had left to put on.

I printed out about twenty colorful butterflies as well and laminated them to index cards.  Then I cut the index cards (and butterflies) in half and Jerry had fun matching each butterfly half to its partner.

Then Jerry put laminated story cards from "The Very Hungry Caterpillar" in order to practice his sequencing. 

We also practiced beginning letter sounds by gluing pictures of things that began with either a "c" (caterpillar) or a "b" (butterfly) onto their appropriate page.

I found a cool craft in an Usborne book that uses yarn, a picture of an animal, a penny, two beads, and a straw to make the critter appear to "crawl" up a wall.  This was fun!
Crawling Caterpillar

We made a caterpillar from different shapes of construction paper.  Circles were his head and body, rectangles were his antennae, squares were his eyes, and triangles were his feet.  We actually did this project at Abrakadoodle with our other home school friends.

And of course, every creature can be made out of a toilet paper tube!


Last but not least was Jerry's favorite by far.  We made a puppet version to go with our Eric Carle story.  I glued google eyes and some spots to a green sock and slid it on Jerry's arm for the caterpillar.  I had laminated all of the food from the story and cut holes in the middle of them beforehand.  Then, as we read the story, Jerry could pretend his caterpillar was eating each piece of food by sliding his caterpillar arm through the hole on each piece of food.  At the end of the story, we put a brown paper lunch bag over the caterpillar's head to represent him in a cocoon.  Then, when we pulled the bag off, I used Velcro  to attach decorated felt butterfly wings to the top of Jerry's caterpillar arm.  He would run around the house flapping his arm to make the butterfly fly.  It was so cute!

Caterpillar

Butterfly

It was amazing how many skills we seemed to cover just with learning about caterpillars and butterflies.  We had so much fun in fact that next is Eric Carle's "The Grouchy Ladybug".  I promise not to make you wait three weeks this time to find out what we're doing.  I'll try to update everyone weekly this time.  Until next time, don't let the bed bugs bite!!

  

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Mar. 24, 2008

Jeremiah and Jesus

Yesterday at church the kids each received an egg whose contents told the story of Jesus' death and resurrection.  Jeremiah was so excited that he came running into the office where I was counting the offering afterwards and said, "Mom, I got an egg and it has surprises inside.  Wanna see?"  He opened the egg and I explained to him what each of the items inside stood for.  There was a penny to represent the thirty pieces of silver Judas accepted to betray Jesus.  There was a piece of leather to represent the whip Jesus was beaten with.  There was a thorn for His crown of thorns, a little wooden cross, a nail, a rock to represent what was rolled in front of the tomb, and a piece of cloth to show the kids what Jesus was wrapped in when he was buried.

Jerry, being very visual, hung on every word!  He has since opened the egg and retold the story in his own words at least six times!  If you click on link above the picture, you can see video of Jerry's version of the Jesus story. 

Anyway, Jerry learning about what Jesus did on the cross for him is obviously a huge part of what I have prayed for God to teach him through me...and anything or anyone else He can use.  Thanks to a .25 plastic Easter egg and a few objects he can touch and see and relate to, He is well on His way!  Praise God and thank you Terrace Palms Children's Ministry.



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Mar. 20, 2008

"A" and "F"...Here We Come!

The last two weeks were very successful!  Yeah!!  We did "A" two weeks ago and Jeremiah helped me make apple cake.  We even made a little one for Miss Ramos.  He was so excited to give it to her and tell her that he made it.  We also painted apple prints and played with ants I'd printed and cut out.  By the end of the week, my other kids were so tired of hearing me sing, "If All the Raindrops"!  Even now though, when I tilt my head back, look up at the ceiling, and belt out, "ah, ah, ah, ah, ah, ah, ah, ah, ah, ah", Jerry points to the letter "A" on the coconut tree.  So yes, driving my other children crazy is worth it!!

I was scared of the vowels at first and hope to start putting some words together for Jerry soon now that he knows some consonant and vowel sounds.  I'm a little nervous about doing that though so haven't yet.

This last week was "F" and we played with "f"ire trucks,  Jerry's "f"arm animals, and had a "f"inger "f"ood "f"amily night of "f"ish sticks and "f"rench "f"ries.  Whew!  Say that fast ten times!!

Behaviorally, Jerry is starting to resort back to some of his old habits.  He's started having some minor meltdowns again and is back to jumping up and down and flapping his arms when he gets excited.  We've noticed in picking him up that he's gained some weight and so I'm sure it's time to adjust his medication again, just as Dr. Rao had said we would need to as he grew.  His appointment is in May and so I am trying to hold off until then.

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Mar. 7, 2008

Five Down!!!!!


C, T, M, R, S

Well, after our little hiccup, we've been plugging away.  First Jerry learned his "T", and this past week, we worked on "S", which is very easy and a lot of fun considering all of the things that start with an "S".  We did sand art, made Model Magic snakes, rubber stamped, went to the park to enjoy the sand, slide, and swings, and...ate sprinkles for a snack, of course!

Our new fun everyday is testing Jeremiah's letter knowledge at the end of the school day.  He stands on the dining room chair so he can reach the top of our palm tree where we have put a cut-out of every letter he has learned so far.  Then, with everyone watching (and sometimes a drum roll from big brothers), I make a letter sound and Jeremiah points to the correct letter.  This week, he got all five letters correct all five days!!  If you're wondering why a palm tree then you really need to read "Chicka Chicka Boom Boom" by Bill Martin Jr. and John Archambault.  Jerry loves it!  And of course each letter he gets right is met with an onslaught of cheering, clapping, high-fives, and M & M's!!

We also have a palm tree picture we tape to the fridge or a cookie sheet so that, while I read the story, Jerry can use letter magnets to act out what happens.  We do this every week for repetition.  I guess I don't have to tell you how tired the other kids are of hearing me shout in my big voice, "Chicka chicka boom boom!"  Oh well, we're five letters down and so they only have to hear it another 21 times!

On the speech front, Miss Ramos is back to the "c" sound.  Why?  Because to teach Jerry the sound she taught him to say the words like this..."ccccc cup" and "cccc carrot".  So now he sounds like he stutters!  Great!  She had moved on to the "l", but decided that we needed to go back and fix the "c".  Baby steps, baby steps!

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Feb. 27, 2008

Happy Birthday Jeremiah!!


Six-years-old! Wow! Our baby!! Jerry had a great time with his friends after church on Sunday at CiCi's and then we went to Wordspring Discovery Center in Orlando for his actual birthday. Daddy took off from work and we ended the day-long celebration with dinner and cake at Pizza Hut.


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Feb. 24, 2008

The Taste of Autism


Jeremiah & Sammy

I just love this picture! It really sums up what yesterday was all about. It was Autism Speaks' Walk for Autism and it was all about raising support for research and programs for autism spectrum disorders. We were blessed enough to have the walking support of a few of our biggest life supporters and friends, the Cragg family. And when I say supporters, I don't use the term lightly. There have been times in my walk with Jeremiah and his diagnosis over the last year and a half that Kim has not just supported me, but carried me. And as for Sammy...well, he has put up with his share of Jeremiah in the past. Still here he was, his short little legs huffing it faithfully the entire mile for his friend.


Though we could clearly look around and see how blessed we are that Jeremiah's Asperger's is not as severe as some of the other children we saw at the walk, John and I shared a moment where we just reflected on where we'd come from, where we were, and where we had yet to go on this journey. When you have children, you envision the birthday parties, the sleepovers, the parades, carnivals, and even the simple get-togethers that await you with your children.

I stood in the midst of thousands of others yesterday and could honestly say that I never pictured myself at such an event when I pondered things I'd do with and for my children. There was such a cameraderie. Kids were crying. Some wondering off the path we were to walk. Others were holding their ears shut from all of the noise. And still others were having complete meltdowns at the overstimulation of it all. But no one seemed to notice really. Everyone was in the same "boat". No one looked at another's child as if to judge them or their behavior. Compassion ruled.

Jeremiah overheard me speaking with a resource person at the walk and she mentioned autism and smiled as she looked down at Jerry. We walked away and Jerry said to me, "Mommy, what autism? Will I like it? Does it taste good?" I wanted to cry and wasn't quite sure how to answer him. I just smiled and told him that autism wasn't something that you ate, but something that you had. He asked me then if he had it and I said yes. I know he didn't understand what I'd just told him because he looked almost proud, as if he'd won some contest and autism was the prize. But I couldn't get his question out of my mind and thought about what autism tastes like the rest of the day. My final conclusion...bittersweet. I'd give anything to shield Jeremiah from the
disappointments, hurts, and uncompassion he will face in his daily challenges with autism, but I wouldn't change the blessing he is to our family and the joy he brings to us just the way he is. Bittersweet.

"Team Jeremiah"

Mommy & Jerry

A Sweet Treat

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Feb. 20, 2008

A Speed Bump

Ok and it's not the big table size speed bumps that you can glide slowly over either.  It's one of those little obnoxious ones that jar you uncomfortably no matter how slowly you go over them.

For the last year at speech class, Jerry's teacher has focused mainly on teaching Jeremiah the "c" sound (hard c).  He has made tremendous progress and, when he thinks before he speaks and speaks slowly, he actually uses what he has learned and says his "c" words right.  Last week at speech Miss Ramos (Jerry's teacher) told me that she was going to switch to a new letter for a while because Jerry was over-exaggerating the c sound now.  I sort of knew what she was talking about, but found out for sure this past week.

Week 4, letter four.  I picked the letter Tt.  Jerry has always been able to make the "t" sound and so I chose this letter for success.  I asked Jerry to say turtle.  He said, "curtle".  I said toys.  He said, "coys".  I said table.  He said, "cable".  I said tooth.  He said, "cooth".  Do you see where I'm going with this?  And the more I tried to correct him, the more frustrated he got and he just shut down, yelling, "I can't do it!"

Now, can you say, "AAArrrggghhhhhh!"  It's like three steps forward and two steps back.  After a little re-grouping, I decided to just make this a review week and reinforce the C, M, and R sounds he learned over the last three weeks.  At this rate, he might know the alphabet by the time he's ten!!  Ok, now I know I am exaggerating and that he will get it eventually.  I also know he needs more time to process and learn things that other kids his age learn in 1/2 or 1/4 of the time, but remember, I am obsessive-compulsive!!  I want him to learn NOW!  God is working on me.  That's for sure!

All mommies reading this...when your child whines during school, when they cry over writing a paragraph, when they take an hour to do five math problems just because they daydream too much...just be grateful they are getting it!  I know Jeremiah is too, but it sure is an eye opener when you have three other kids in the home to compare learning styles and rates to.  I wanted to cry on Monday at this new discovery, but I know it's just another little hiccup that we'll get over soon enough.  Just wanted everyone to know how they could pray for us this week.

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Feb. 14, 2008

Fort Foster Field Trip

We went on a cool field trip today to Fort Foster across from Hillsborough River State Park. Fort Foster was the site of the second Seminole Indian War. We got to tour the fort itself, sample some yummy "wares", and see some really neat artifacts, including arrowheads, and real musket ammunition. Everyone at the re-enactment was in full military or Indian dress and spoke and acted as if it were war times and they were really a part of the historical Fort Foster. We saw a demonstration of musket loading and firing (which Jeremiah could have used a warning beforehand), learned where the Seminole Indians got their name from, and saw so many authentic raccoon and wolf skins that it's amazing they are not extinct! We learned the roles of each gender, whether Indian or military and learned about ways each group of people was resourceful in times when food was scarce and weaponry archaic.

Jeremiah's only concern during most of the trip seemed to be whether or not EVERYTHING we saw was real and if the real Indians were going to kill some bad guys!

Jerry at the Infirmary Desk

The Group with an Indian named "Turkey"

Fascinated with the Firewood Pile

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Feb. 14, 2008

More Super Sounds

It's been a while since I last posted, but I wasn't sure just how much everyone wanted to know about each and every letter we cover in our new quest to learn the alphabet.  I can tell you it has been an incredibly long three weeks since we started.

Review, review, review!!  And I say it again...review!  We spend about as much time reviewing the last few letters we learned as we do learning a new one each week because Jeremiah has such a hard time retaining information.  He is getting it.  It's just slow going.

Two weeks ago was M (capital letters only at this point, of course).  We made Model Magic M's and toothpick and "m"arshmallow creations.  I try to have him play in a different medium each week too and practice writing the letters in it so that he can feel their shape for better recognition.  So far, we have played in shaving cream and "goop", a combination of water and cornstarch until it is the consistency of toothpaste.

This past week was R and  Jerry practiced writing them in "r"ed fingerpaint.   He also lined "r"ocks up on a masking tape R on the living room floor. 

Whew!  Only 23 letters to go!!  Keep praying!

Model Magic M

Toothpicks & Marshmallows

Fingerpainting R's

R is for Rocks


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Feb. 10, 2008

"What Kind of World Do You Want?"

Click on the following link to see what kind of world we want for Jeremiah.


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Feb. 2, 2008

Super Sounds

I was so eager to get going on another unit study with Jeremiah after the success of the planets study.  I was almost too eager...out of fear really. 

You see, Jeremiah's medicine has helped him to concentrate and be able to learn like he never was able before.  I had this eagerness to cram all I could into his little head before...and here comes the fear part...the medicine stopped working; or John lost his job and we couldn't afford it anymore; or our insurance changed and didn't cover the medicine anymore.  Yeah, I know, I'm loopy, but if you could only see how much progress Jeremiah has made since starting the medication, and the difference in his personality, behavior, and learning ability, you might understand just a little. 

Anyway, my plan was to cover the ABC's and their sounds next in hopes that Jeremiah might someday learn to read.  I thought I could cover a letter a day and he'd know the entire alphabet in a month.  Then my good friend, some call her the other half of my brain, reminded me that they only cover one letter a week in preschool or kindergarten and expecting more from Jeremiah was simply unreasonable.  She also reminded me that God is in control of what Jeremiah learns and retains and not the medicine.  My fear was unfounded.  I knew that.  I just let my anxiety get the best of me...again!

So, we are starting our Super Sounds unit study, one letter a week.  This past week we focused on the letter "Cc", as it is the hard "c" sound that Jeremiah has struggled so much in his speech therapy with.  We had so much fun.  He practiced writing the letter on a cookie sheet smeared with shaving cream, we used a "C" cookie cutter to make sugar cookies, he made a "C" block letter out of dry coffee grounds, we took pictures of everything we saw during the week that began with the letter "Cc", and we even made Jerry a superhero "c"ape to "fly" around the house in.  We also put a masking tape "C" on the carpet for the week for Jerry to drive his cars on to feel its shape.  His Asperger's self enjoyed lining his cars on the letter too of course.  It was a good week.  By the end of the week, I could point at the letter and he would make the sound clearly and without hesitation.  Here are some pictures of our learning fun.

Masking Tape "C"
Coffee Grounds "C"
Super Jerry's "C"ape
   Shaving Cream "C"
 

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Jan. 25, 2008

Planet Heroes

Don't you just love those toys that are not just space-occupiers, but educational too?  I do!  And now there's Planet Heroes.  Jeremiah got a few of these action figure heroes for Christmas and has now made it his personal goal to own them all, their arch enemies, and their spaceship, of course. 

Planet Heroes are heroes that use their different "properties" to fight the enemy, the Black Hole (yes, that's really his name and he is quite evil looking too).  And let's not forget his comet and asteroid sidekicks!   For example, Neptune uses  water because there is water on his planet.  The commander of these heroes is none other than the sun himself.  Each hero is the color of the planets they represent and each has a number on his outfit to signify their planet's distance from the sun. 

Where am I going with this?  Well, I have come to learn that for Jeremiah to enjoy and really get something out of his "school", I need to center it around those things he loves and often times obsesses over.  So I created a two-week long unit study focusing around the Planet Heroes. 

For two days we would study one planet.  We would add that planet to a lap book we were making, a mobile, and a Great Big Book of Planets that I made for Jeremiah.  He would color a box to show the planet's color, trace the planet's name and number from the sun, learn the letter the planet started with, and then learn one fact about that planet.  I would try when I could to put rhyme to the facts, like Mercury's number one and it's closest to the sun or Earth is number three and it's home to me.  For Venus I walked around the house all day shielding my eyes and asking Jeremiah why I needed my sunglasses on.  He would tell me, "Because Venus is so bright!"  For Mars we made a homemade volcano to erupt because Mars has the largest volcano in the universe on it.  As you can plainly see, I learned as much about our solar system as Jeremiah did!  Jerry also made a space collage to hang on the wall, complete with a tinfoil rocket picturing him as the pilot soaring through outer space.  

I taped a ten-foot long piece of bulletin board paper behind the couch.  Jeremiah sprayed it with diluted white paint so that it looked like it had "space dust" on it.  With each planet, we would add our Planet Hero, the planet's letter and number, and a picture of the planet itself to "outer space".  We have quite a mural!  It was cool to see how excited Jerry was each day when daddy got home to show him the new addition to the wall and tell him what he'd learned about that planet. 

We just finished with Pluto today and ended our study with the Magic School Bus Gets Lost in Space movie.  He got so excited to see the bus land on each of the planets he'd learned about.

If you copy and paste this link into your browser you can check out the Planet Heroes for yourself, and even order their first DVD for free!  http://www.fisher-price.com/fp.aspx?st=10&e=planetheroeslanding

Here are some pictures of our projects.  Enjoy!

Jeremiah's Great Big Book of Planets

Mercury in the GBB of Planets

Planets Mobile

Planets Lap Book

Inside of Planets Lap Book

Outer Space Collage

Mars & Venus on the Solar System Wall

Uranus & Neptune on the Solar System Wall

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Jan. 23, 2008

Humility

If you read my last blog then you know that this is where God has been most busy in my life lately.  A few thoughts I wanted to share. 

My first few years of parenthood were filled with pride.  I remember seeing those haggered moms in the grocery store lines while I was pregnant.  You know the ones.  They have two different colored socks on, something sticky in their hair, and three screaming little ones pulling at their shirt tails and throwing tantrums over the candy she refuses to buy them.  She also licks her thumb to wipe something brown from one of their faces and then uses her own sleeve to wipe the other one's nose while her oldest child tells her why he likes it better at his friend's house!  I used to cringe!!  "That'll never be me.  My kids won't behave that way." 

Then I became a mom.  And at first, I tried pretty darned hard to keep the June Cleaver front alive.  I dressed my kids nice and changed their clothes if they spilled anything on them.  I kept Wet Ones and tissues in my pocket.  I said things like, "Now dear, let's not talk that way to mommy.  It's not very nice."  Oh yeah, I was good!  A good faker was more like it.  Behind closed doors my kids fought over toys, overfilled the bathtub and flooded the floor, colored on the walls, tore pages out of their books, and yes, they even had temper tantrums.


Thanks to my home church and Bible studies like, "Shepherding a Child's Heart" by Ted Tripp and "Raising Kids Who Hunger for God" by Benny & Sheree Phillips, as well as to the veteran home school moms before me that so graciously imparted to me their wisdom, I learned how to deal with and often times effectively handle the above situations.

And mind you, it was not always my kids that acted foolishly or childishly.  I could be pretty good at throwing temper tantrums myself and "ssshhhh, don't tell anyone, but I'm still a yeller"!  Oh no!!

Then came Jerry...God's ultimate humility hammer in my life.  My child is the one who throws sand in other kids' faces at the park.  He laughs at his friends when they get hurt and cry.  I cringe when I hear someone near me say, "Ma'am, is that your child?"  He intentionally knocks down another child's Lego tower, throws and breaks things that do not belong to him, and laughs at and appears to disrespect other adults when they speak to him.  Granted, Jeremiah cannot read the emotions of others and so does not know how to properly respond to them.  He does not know how to properly get someone's attention that he wants to play with and so he gets it the only way he sees he can...by destroying whatever is currently holding their attention.  He cannot both look you in the eyes when you are talking to him and comprehend what you are saying and so he simply will not look at you at all.

Now I'm not making excuses for Jeremiah and sometimes he is just being downright disobedient, and often it's hard to tell the difference.  But what I wish people would do is not just assume.  It is a mistake I will never again make when seeing a child throwing a temper tantrum in the middle of McDonald's.  Why?  Because I've been the recipient of the dirty looks, the shameful expressions of disgust over not being able to control my own child or his emotions, the shocked expressions, and the defensive attitudes of the parents of kids Jeremiah hurt or offended.

I recently discovered a website that asks, "What Kind of World Do You Want?"  It is a place where you can upload a video of your autistic child and voice your answer to that very question.  Each time your video is viewed by someone, so much money is donated to the charity of your choice.  In many cases, it is Autism Speaks.  I have linked this website onto this blog so that you can watch a few of the videos.  They are very powerful and I plan to create one for Jeremiah in the future. 

But back to what kind of world I would want.  There are endless answers to that question and I know that I could answer it in many different ways and they would all be true to what I believe.  But in relation to Jeremiah, here is how I would answer that question.  I want to live in the kind of world where people do not make assumptions about you and your family based on outward appearances.  I want to live in the kind of world where compassion runs deeper than condemnation.  I want to live in the kind of world where Jeremiah will be given every opportunity to fit in, and the grace he will need when that's not possible runs deep.  I want to live in the kind of world where other parents admit their imperfections openly so that we all can learn from them, and they don't just speak of their kids' successes and achievements, but of their failures and character flaws they are praying for God to use in their lives.

Amen.

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Jan. 23, 2008

To Medicate or Not to Medicate...That Was the Question

What a dilemma!  When we first visited the psychiatrist and received Jerry's Asperger's diagnosis, the doctor gave us the names of several community organizations to call for resources and information and told us to call him back when we felt Jeremiah needed medications.  I didn't ask out loud, but in my head I thought to myself, "Medications for what?" 

After joining a support group for other home schooling families with Asperger's children, I learned that a lot of their children needed medications for their obsessive-compulsive behaviors, their mood swings, their hyperactivity, and/or their anger.  Naturally, being the sinful and prideful mom I've strived NOT to be, the conversations in my head went something like this.  "Jeremiah will never need medications.  We'll use behavior modification and just give him all of the attention and love he needs and that will be enough.  Besides, what kind of mom medicates her child to make them behave a certain way?  Have they even thought about the side effects or other disadvantages to their child?  That'll never be our choice?" 

Yeah right!  Funny how God takes those areas of sinful pride and thoughts of condemnation towards others and uses the very circumstances they created to humble you straight to the floor.  You gotta love it...after you've gotten up and brushed the carpet threads from your knees anyway. 

Nearly a year after Jeremiah's diagnosis, our family was learning firsthand why medicating Jeremiah might not be such a bad idea after all.  His aggression over not being able to do things his peers or siblings could do increased significantly.  He would often retaliate in his anger by hitting someone or hurting himself by hitting his head or biting himself.  His emotions roller-coastered.  He would go from giggling uncontrollably during praise & worship in church (and I don't mean he was just giddy with an overabundance of the Holy Spirit either) to crying uncontrollably because he discovered that the shirt he was wearing was blue when he thought all day that it was purple.  Positive reports from his Children's Church teachers were far and few in between. 

Jeremiah would impulsively hurt his friends and siblings without being provoked as well.  And as for school...well, it just rarely happened.  School was done when Jeremiah was in the mood to do it.  We did what he wanted to do and for however long he wanted to do it.  And Jeremiah could never be wrong to need to be corrected during school because the results would be a half an hour "screamfest" while rolling around on the kitchen floor.  In the meantime, no one else in the house could do school either because they could not concentrate above the hollering. 

Then there was bedtime.  We were lucky if Jeremiah fell asleep before eleven...and without laying there an additional twenty minutes or so making strange rhythmic clucking noises with his tongue.  His obsessive-compulsiveness was out of control as well.  If he felt he "needed" something, like a piece of candy or to watch Batman, and we weren't fast enough in fulfilling his request, Jeremiah would walk in circles or kick the wall while repeating his request over and over and over and over and over (you get the idea) again!  Needless to say, ALL of us were drained and our nerves frayed by day's end.

After a trip back to the psychiatrist and several weeks of .25 mgs. of an antipsychotic called Risperdal four times a day, our peace is slowly being restored.  Jerry's siblings aren't begging him to go to his friend's house anymore for our annual respite from Jerry.  Don't get me wrong, we still enjoy our Jerry break one afternoon a week and will be forever grateful to my girlfriend Kim for taking Jeremiah for those few hours, but if she can't take him one week, it's not the end of the world.  Jeremiah can be easily redirected now when we sense him obsessing over something or a meltdown coming on.  Unless he's tired or it's close to his next dose of medicine, Jerry cries only when he's hurt himself physically.  He's more remorseful of his actions and even apologizes and shows compassion towards others he has hurt or mistreated.

We did not tell his speech teacher that he has class with three times a week that we medicated him and, after about the third week she said to us, "I don't know why, but Jerry seems to like coming to class all of a sudden and is really working hard."  Before medication, speech class was hit or miss.  Sometimes Jerry would participate and other times he refused.  And still, after nearly a year of speech, he would get easily agitated at your request of him to pronounse a word correctly.  Now, he touches his hand to the back of his throat to remind himself that's where the "k" sound is when pronouncing those words.  He is taking his time more.

After about two weeks on the medicine, Jeremiah began bringing me book after book and activity after activity to do "school" with him.  If I correct him now he just says, "Oh, okay mom." and he changes whatever he needs to...no tears, no fits.   Best of all, for the first time it seems that Jeremiah is retaining what he is learning.  He could never remember colors of things or people's names, or how to put his socks on or button up his jacket.  Now he remembers that Mercury is number one and closest to the sun!  I feel like we're playing catch up and the look on his face when he remembers something he's learned is worth so much more of my time reaching out to teach him something new everyday now.  He is so proud of himself.

Here is a picture Jeremiah made at Abrakadoodle, a monthly art class he attends.  His teacher had to raw the fish for him and then he watercolored it.  As you can see he didn't get far before he felt his wasn't as good as the others or that he wasn't doing it right and just gave up.


Now here is a picture of a fish mosaic Jeremiah made just this past Monday.  He sat for the entire class period and worked on it.  He cut the paper pieces out himself until his hand got tired.  It was also his idea to put the frame of paper squares around his masterpiece.

Wow!  What a difference.  And bedtime...well, since the only two side effects of Risperdal in the amounts he's taking are mild weight gain due to an increased appetite and sleeping better, it has been nearly impossible for him to keep his little eyes open past nine o' clock!  Praise God!  And since Jeremiah only weighs 35 pounds at nearly six-years-old, we're not too worried about the weight gain either.

Jerry's Risperdal only costs us $20 on John's insurance, which saves us about $350 each time it's filled!  John and I joke about what we would be desperate enough to do to earn the money to pay for the medicine if John ever lost his insurance!  Bottom line, I regret my pride keeping me from getting Jeremiah the help he needed sooner.  He's happier, we're happier, he's developing and learning much quicker, and hindsight about where he'd be now had I just not been so "fleshy" is 20/20.  Lesson learned.  Thanks, Lord.

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Jan. 21, 2008

"You Might Be An Aspie If..."

This is a great resource I found when trying to explain to people what Asperger's is and what makes Jeremiah different from his siblings and peers.  It's a lighthearted approach to the topic and you might be surprised to find that even you have a few of these quirky traits at times.  Enjoy!

"You Might Be An Aspie If..."
  • ...if when you were a kid, and other kids wanted to play ball, you wanted to turn toy cars over and spin their wheels.
  • ...you have passed many a happy minute watching a fan spin.
  • ...the word "Hallmark" makes you think "When you care enough to send the very best", and you can remember tons of those kinds of "ad" lines and you use them in everyday speech. (Jeremiah says, “Eat Fresh” whenever we pass a Subway.  After hearing me talk about specials at Publix, he also now repeats the phrase, “Buy one, get one.”)
  • ...if you think an old fashioned egg beater is a very cool toy.
  • …you get irritated when people come up to talk to you when you are doing something important like staring at a wall, watching the tires spin on an upturned bicycle, or trying to find a space in your mind that is not overwhelmed by noise.
  • ...you have more than once gone out into public with socks that don't match or your shoes on the wrong feet and refuse to change them once you notice.
  • …you go into a tizzy because a family member who ought to know better gives as a birthday present something you already have.
  • …you not only line things up, you always line them up in a symmetrical arrangement.

  • ...your get told not to step on someone's toes at work so you start looking at the floor while you walk because you took it literally.  (Jeremiah cried when he heard that a girl’s fever had “broken”.  We also cannot say it is raining cats and dogs outside!  Also, ask him to hold his breath and he grabs his mouth in an attempt to literally hold his breath.)
  • ...someone wants to get past you and says "excuse me" and you reply "sure" without moving a bit.
  • …you run into someone three times without ever apologizing, but then run into a tree and stammer, “I’m sorry.”
  • ...you collect action figures and have more than 300 and know the names of all of them (and their personalities), but you still mix up your relatives.
  • ...you follow rules to the letter - but only if they make sense to you.
  • …as a child you believed anything your family told you because you didn't comprehend the concept of lying or "teasing".  So if your older brother told you that thunder was God bowling you believed him until you learned otherwise.
  • …when you were a little kid playing "Doctor", you ignored the other kids and fixated on the stethoscope.
  • …you've ever told somebody, "I'M NOT IMMATURE--I'M NOT, I'M NOT, I'M NOT, I'M NOT, I'M NOT!!!!"
  • …when someone recommends that you ask Jesus into you heart, you form a mental picture of him changing the wallpaper in your left atrium.  (Jeremiah ran in a panic to someone’s front door once because we commented that it looked like a tornado had ripped through their front yard, as they were in the process of cleaning out their garage.  He took us literally!)
  • …you own more than 3 different types of earplugs or sunglasses.
  • …you play 'Name That Bruise!' in the bath, because you have no idea where you got them.
  • …you hate having to talk on the phone and confine your conversational depth to 'Yup', 'Nope', and 'Bye'.
  • …your hands are always covered in burns, cuts and scars, and the only ones you noticed getting are the really spectacular ones, but they never hurt anyway.  (Jeremiah watched his finger burn after putting it in a candle and wax.  He had third degree burns.  He has touched light bulbs in the past and burned himself then too, but doesn’t remember doing it and doesn’t react to the pain.  Other times, he could barely bump his head and scream bloody murder!)
  • …you wave at people on billboards or manequins in store windows and then have a meltdown because they didn’t wave back at you.  (Yes, Jeremiah has done this.)
  • …you wave your arms, flap your hands, and jump up and down while watching your brothers and sister play video games because you are visually stimulated by the graphics.  This behavior is called stimming, by the way.
  • …you insist on sitting by the window in a restaurant so you can stare out the window and watch cars going by the whole time.
  • …you cry because there are too many kids in your class, and you don’t really want to play with any of them.
  • …you are loud yourself, but cry from the over-stimulation of hearing someone or something else be loud.
  • …you find yourself always asking, “What’s that smell?”
  • …you ask for cereal for breakfast, only to end up in tears because you really wanted waffles, and then cry because the waffles are not what your sister is eating and what your brother has looks even yummier.  (By the way, this repeats at lunch and dinner too!)
  • …you repeat yourself over and over and over because you just don’t feel like anyone is listening to you (or at least not responding to you).
  • …you laugh when someone you love gets hurt or in trouble, but you don’t know why it’s funny and you know they are going to get mad at you for laughing.
  • …it’s almost painful to have to look someone in the eyes.
  • …you can’t tell the difference between someone really bleeding and a Halloween costume.
  • …you think you too can shoot webs from your wrists like Spiderman, and then cry when it doesn’t work for you.
  • …you ask if stuffed animals and baby dolls are real.
  • …you habitually make strange noises in your throat because you “can’t help it”, even though it annoys everyone around you.
  • …you wonder how many more songs the praise & worship team plans on singing or how much longer the pastor is going to speak and you voice your frustrations over these concerns with everyone around you (loudly).
  • …you mimic others’ actions and speech like a parrot.
  • …being kissed on the lips is out of the question.
  • …getting your hair cut or brushing your teeth is almost painful and usually involves whining and/or crying.
  • …you have to go to the bathroom and your mom gives you instructions.  She tells you to pull down your pants and underwear, lift the toilet seat, go pee, flush the toilet, and then pull your underwear and pants back up.  You then stand in the bathroom so long trying to remember what she said to do first that you pee your pants.  (For Jeremiah, following simple directions means giving him only one or maybe two tasks to complete at a time.)
  • …you hold your pencil with two hands to keep it steady.  (Jeremiah’s fine motor skills are very poor.)
  • …you remember that your mom promised you a Slurpee on the way home from the store (and you remind her often), but you can’t seem to remember how to put your underwear on and that the little pocket goes in the front.
  • …the doctor looks in your ears during a check-up and tells you he sees a little birdie in each one.  Then you go around all day telling everyone you have a birdie in your ear and then get upset because he won’t come out so you can see him.
  • …the doctor tells you to count backwards from 10 and you turn around on the exam table and start counting.
  • ...your mom tells you that dinner will be ready in two minutes.  After thirty seconds, you scream, “Is it almost done yet?”  You keep screaming this until dinner really is done.


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About Me

I am a home schooling mommy of four children 11 and under and happily married to my best friend for the last fifteen years. Our youngest son Jeremiah was diagnosed with Asperger's Syndrome in 2006. This blog has been created to document the home schooling challenges and rewards of teaching Jeremiah.

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