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Jacob's update
3:20 PM, Jan. 17, 2009
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Total hospitals visited to date: 4X-rays: 5 Ultrasounds: 2 I have been researching Pierre Robin syndrome, and it seems to be closely linked to Stickler syndrome. I know think that Stickler syndrome is a possibility because when I was away visiting family I asked a lot of questions, and it turns out that there are a lot of the conditions in Stickler syndrome throughout my paternal grandmother's family, including scoliosis and myopia. So when I go to Jake's next hospital appointment on Monday I am going to have to ask to see a genetic counsellor. When will all this end? Where will it end? Will I be the person to tell the people in my family that some of them have a syndrome that they've never heard of? Fun stuff... Leave a Comment { Last Page } { Page 12 of 345 } { Next Page } |
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